Negative Blood Test?

[munnky]

Hi! I'm new here, Tori, 28/F, married, 1 daughter. I've been sick for about 9 years now, originally diagnosed with fibromyalgia and then a formal diagnosis of Ehlers Danlos Syndrome three years later (making the fibro secondary).

I am not convinced that fibro is all that is wrong with me, as I also have IBS, GERD and extreme fatigue - as well as weight gain that will not come off no matter what I do. About three years ago, I had a blood test done to check for celiac disease (not sure which one) and it came back negative. I still think there's a possibility of food allergies, though, and wheat/gluten seems the most likely choice.

I am going back to see the dr next week and ask for another blood test for food allergies, including gluten. I just was wondering, could I still have a gluten intolerance with a negative blood test?

Also, I started on a gluten free diet today - will this hurt anything if I'm not gluten-intolerant?

Thanks so much!

[AndreaB]

The gluten free diet is not bad. As long as you balance out your nutrients by eating a variety of fresh fruits/veggies etc you should be ok. The way I see it, any diet can be bad if you don't eat a variety of fresh foods.

You could have an intolerance, or non-celiac gluten sensitivity which wouldn't show up on blood tests for celiac. If you have an allergy test done make sure your doctor tests for both IgE (immediate)/IgG (delayed) allergies. The intolerance will more than likely show up with the IgG. If it was IgE you would know right away it was a problem.

[Judyin Philly]

HI

I'd like to suggest you ck out this thread "Reliability Of Stool Tests For Diagnostic ?" that is running right now.

you might find some answers to help you on there.

I just posted on that thread.

I still feel that the gluten-free diet, if it helps you, is the way to go.

In my other post, i didn't include in the absence of symptoms in the first 3-5 months on the diet, the disappearance of the fibro pain.

It is still 80% better than it was before going gluten-free..

Good luck and let us know how you do at the dr. next week.

Judy