Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Been Glutened Over A Month?


Mtndog

Recommended Posts

Mtndog Collaborator

OK- I got glutened on January 31st and then ate some chips about a week later that COULD have been cross-contaminated (not sure...Lundberg rice chips) and I still don't feel good. My gas smells like sulfur (which when my primary first suspected I had celiac said was a symptom of malabsorption).

I ate out at Legal Sseafoods and ordered the gluten-free seafood casserole (with GLUTEN-FREE breadcrumbs) which I suspect may have gotten royally screwed up. Possibly real bread crumbs.

I have not been the same ever since- I feel like I have been glutened ever since. I'm nauseous, chills, night sweats, funky BM's like I did before I went gluten-free.

I have checked and rechecked everything and gone back to all my 100% safe products food-wise and personal care wise. I even bought new frying pans because my old ones were scratched just in case (even though they were mostly gluten-free anyway- my hubby used them a few times).

I feel fine unless I eat and then I feel uggy.

I'm seriously wondering if this glutening did some damage if it wasn't just CC and those breadcrumbs were REAL. :ph34r:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamabear Explorer
OK- I got glutened on January 31st and then ate some chips about a week later that COULD have been cross-contaminated (not sure...Lundberg rice chips) and I still don't feel good. My gas smells like sulfur (which when my primary first suspected I had celiac said was a symptom of malabsorption).

I ate out at Legal Sseafoods and ordered the gluten-free seafood casserole (with GLUTEN-FREE breadcrumbs) which I suspect may have gotten royally screwed up. Possibly real bread crumbs.

I have not been the same ever since- I feel like I have been glutened ever since. I'm nauseous, chills, night sweats, funky BM's like I did before I went gluten-free.

I have checked and rechecked everything and gone back to all my 100% safe products food-wise and personal care wise. I even bought new frying pans because my old ones were scratched just in case (even though they were mostly gluten-free anyway- my hubby used them a few times).

I feel fine unless I eat and then I feel uggy.

I'm seriously wondering if this glutening did some damage if it wasn't just CC and those breadcrumbs were REAL. :ph34r:

Sorry you are having such a rough time, Mtndog...I have had some long lasting glutenings. Usually they last 2 weeks or so, but I figure at least a couple have been strung together to last to a month or slightly longer. I haven't taken away dairy when it happens, because most of my dairy is yogurt and that usually helps me with its natural probiotics. I do make sure my vitamin intake is bumped temporarily then as I get the muscle/nerve twitches and cracks in the corner of my mouth. The extra B complex/folate and vitamin C helps that, too. I don't know if that will help you heal or not. It works for me. And figuring out what I ate that wasn't right! Not always so easy!!!! My last one was just over a month, so I had my serologies checked to be sure it had cleared up. They were normal, so my paranoia about it has abated now.....hope yours quits soon!!!

Jestgar Rising Star

Hi Sweetie, I'm so sorry you feel yucky. My prescription would be to curl up in bed with a warm puppy.

Mtndog Collaborator
Hi Sweetie, I'm so sorry you feel yucky. My prescription would be to curl up in bed with a warm puppy.

Oh would that it were so!!!!!!!!!!!!!!!!!!!!! Thanks for the good wishes- yes, it was the Triple Clown of glutenings but this a.m. it actually feels more like stomach flu.

It's so weird how the symptoms are the same bit feel TOTALLY different.

gfp Enthusiast
I'm seriously wondering if this glutening did some damage if it wasn't just CC and those breadcrumbs were REAL. :ph34r:

In my experience the quantity doesn't seem to matter.... it can but then every so often the tiniest CC can have me knocked for 6...

Another theory I have is our body stores up gluten in fat... (well around fat) and when we starve and start using the stored fat for energy we release the toxins... indeed we probably release lots of toxins so if your not eating then your using up your fat reserves and releasing the toxins stored away which can make you feel icky all by itself....

On the + side.... you are getting rid of these toxins... once and for all instead oif hiding them away...

emcmaster Collaborator

I had the same problem. I've been feeling 'off' for about 2 months after I know I got glutened at least 7 times over a week (holidays at the in-laws :blink: ). I think it's some other intolerances now, but it could just be taking you a long time. Who really knows with celiac!??!

missy'smom Collaborator

I'm sorry to hear that you're not feeling well. The same thing happened to me a while back. Ate out at a restaurant that can handle gluten-free. Got my dish and it looked like regular version so I had hubby try it and weren't sure so waiter checked and yup it was reg one so replacement came and I still got glutened. It took 1 week for the worst of it to get better but 2 more weeks for bloating, C depression, lethargy etc. to really improve. Now 3 weeks later I'm only starting to get back to where I was before. :angry: Made me wonder if 2nd try was still full gluten version. I made the mistake of going at a busy time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mtndog Collaborator

Thanks all for your commenst and support. It is DEFINITELY the flu........ :blink::angry:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.