Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Idea What To Expect...


farfromhome

Recommended Posts

farfromhome Newbie

I just got my biopsy done (not without a lot of crying, I assure you), and I'm wondering a few things. My doctor had never said a word about Celiac disease or a gluten allergy or wheat intolerance, I'd never had a blood test for it, but when I came out of the endoscopy, he told my mom (as I was a bit flighty) that they took a biopsy to check for a gluten allergy (and I would assume Celiac and wheat intolerance). Is there anything that would show up in my bowel if I had the allergy/Celiac? Wouldn't he need a microscope or something? I'm confused.

My symptoms are: nausea every day for the past few years, vomiting, anxiety, depression, D (sometimes), ichyness (sp?), vitamin deficiencies (we think), SEVERE heartburn every night, and a very poor immune system. The allergy/Celiac would explain most/all of my symptoms and I would really like to know if anyone thinks they're a good indicator.

I would LOVE any advice/thoughts/comments anyone has. Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

They do put the biopsy under a microscope to see if there's damage to the intestinal villi. The damage happens in the small intestine.

Even if your biopsy is negative, you still might want to try the gluten-free diet. Some of us don't have celiac, but non-celiac gluten intolerance, and we have the same symptoms as celiac.

In the meantime, try natural apple cider vinegar (like Braggs) available at the health food store. Put a tsp. in a glass of water. It helps with heartburn/reflux. You can drink it three times daily (according to the manufacturer) as it has wonderful health benefits. Open Original Shared Link

sherylj Rookie
I just got my biopsy done (not without a lot of crying, I assure you), and I'm wondering a few things. My doctor had never said a word about Celiac disease or a gluten allergy or wheat intolerance, I'd never had a blood test for it, but when I came out of the endoscopy, he told my mom (as I was a bit flighty) that they took a biopsy to check for a gluten allergy (and I would assume Celiac and wheat intolerance). Is there anything that would show up in my bowel if I had the allergy/Celiac? Wouldn't he need a microscope or something? I'm confused.

My symptoms are: nausea every day for the past few years, vomiting, anxiety, depression, D (sometimes), ichyness (sp?), vitamin deficiencies (we think), SEVERE heartburn every night, and a very poor immune system. The allergy/Celiac would explain most/all of my symptoms and I would really like to know if anyone thinks they're a good indicator.

I would LOVE any advice/thoughts/comments anyone has. Thanks in advance.

You have all the same symptoms I did and my biopsy came back positive for celiac. But it is hard to wait for the diagnosis. I was loopy after the biopsy as well. I have been on the diet now for 3 weeks and am doing okay but I was off and on this diet for 10 years. And I've had some practice at following the gluten-free recommendations. (My dr. wasn't in a hurry to find a diagnosis) So the good news is..you have had the biopsy and soon will know for sure.

If you don't know what gluten is or where it is hidden I would encourage you to get a spiral bound notebook and start collecting articles from online sources. that way you will have some information in your hands when they call to give you your diagnosis and won't feel so overwhelmed. If you are positive for celiac they should give you a referral to a dietician or you can collect information yourself.

So I am kind of jumping to conclusions but your symptoms sound so like celiac. Gluten free is just a different way to approach fooding, as my daughter calls it. She is a freshman at MSU and has food allergies so eating in the cafeteria has been a challenge for her but she is dealing with it.

Let us know how things turn out,,k??? Sherylj :)

farfromhome Newbie

Thanks you guys. I guess I should add- I'm a sophmore at USC (the old one- in South Carolina), I turn 20 next friday (not looking forward to trying to arrange for a gluten free cake if I am positive), and I live 2 hours from home. I keep saying "I can't do this" and my boyfriend, Shane, just tells me I have to if it comes back positive and I won't have any choice. We both secretly hope it's true because I want to feel better and he gets tired of my constant "my stomach hurts, I can't go out", but I'm terrified of trying to learn all this without my mom standing over me telling me what to do. I mean, I'm grown up, but I'm not that grown up. Don't worry about jumping the gun....I'm pretty sure that I have Celiac or at least gluten intolerance. The symptoms are just too similar and like they say in science- the simplest explanation is usually the right one. Or true one. Whichever. Sorry if I'm a downer- I'm just sort of overwhelmed by the possibility itself and I'm in the middle of a semester...so I'm in the middle of midterms, so lots going on and my brain is just trying to understand it all, I guess. :huh: At least I can tell my family doctor back home that I'm NOT making this stuff up (the popular opinion between him and my mom) and there really is something going on- even if it's just a hernia (they found a very small hiatal hernia that shouldn't even cause symptoms it's so small), it explains some of my symptoms.

Thanks again,

Sarah

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,170
    • Most Online (within 30 mins)
      7,748

    Lisa Crowley
    Newest Member
    Lisa Crowley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...