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Confused


KayJay

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KayJay Enthusiast

I am confused about a few things and looking for some answers.

Is Celiac an autoimmune disease? I don't think I actually have celiac just gluten intolerance according to Dr. Fine. I have never had a biopsy but have been gluten-free for 3 years now and doing fine until recently.

I read on here that if you have one autoimmune disease you are at a higher risk of developing more. 4 years ago when I was really sick they did blood test and thought I had Lupus. I know that is a common mistake right?

Well, I have been fine but recently got the flu. I think that triggered something and I have no idea what. I have had zero energy and can't get rid of a low grade fever even with the antibiotics I am on. I went to the doctor and he is testing my thyroid and blood counts but I have little hope of them finding anything. It just took so long to get diagnosed with this I have little faith in Doctors sometimes. (He even had little faith in finding anything) I guess I should mention that I have gained 11 pounds (in the last 7 months!) despite eating right and working out :angry:

Help! I don't know what is going on with me or who to turn to. I have an 18 month old and I feel like I am being a horrible mother to her because I have absolutely no energy to play :(


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wowzer Community Regular

Celiac is an autoimmune disease and so is thyroid. I don't have an official celiac diagnosis. I have been tested for lupus, herpes, all sorts of things. All my tests came out negative. I have had so many extremely itchy rashes and finally when I saw DH a light bulb came on. I went gluten free the beginning of the year and it has helped a lot of my symptoms. I still am missing something, but hopefully I'll figure it out. It sure is frustrating to feel awful. My husband thinks I make these things up. I have a little sister whom was diagnosed with celiac at a year. She has a long list of the autoimmune disorders going. I hope you find your answer soon.

RiceGuy Collaborator

When I first went gluten-free, it took about 6 months to really begin to see some changes. Once that started, I knew I was on the right track. However, like many others, over time other things began creeping up. Thanks to the member on this board, I did finally figure out some of the major ones. So now I take a sublingual methylcobalamin (vitamin B12) supplement, and also a magnesium supplement. It wouldn't surprise me if I find it necessary to supplement other nutrients, but I'm hopeful that won't be the case. I also had to cut out all dairy, though I wasn't eating much of it anyway. Getting more proteins from beans and grains also has helped.

One allergy which did surface was to corn. I think I've narrowed it down to GMO varieties, because organic ones and things like popping corn are still generally ok. I get cold-like symptoms from the ones that bother me. Nightshades also seem to bother me the last I tried any, but I don't consider the reaction to be an allergy. Rather, it's more of an inability on the part of my digestive system to filter out the neurotoxin which they contain. It happens to be toxic to everyone, but most people have a high enough tolerance such that the usual amounts consumed don't create enough of an impact to get noticed.

As for your fever, that I know is supposed to indicate some kind of effort by the immune system to kill off whatever microbial gremlin is bugging the body. I do imagine it's quite possible for a fever to be caused by other things, but I've not researched it. Sometimes though, antibiotics can do more harm than good, and I do know from experience how they can really mess with the body in all sorts of ways. So I'd caution about taking such things, or any drug for that matter.

Some other things which have plagued a number of the members here are canola and MSG. Though I haven't seen fever as being related to MSG, it does cause migraines for many. Apparently it can be in vaccines too. Here's a link to some good Open Original Shared Link for anyone who want to look into it.

I wish I had some definitive answers for you, but hopefully between all the replies and your own research, you'll find the solutions you seek.

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    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
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    • Ello
      I have always eaten gluten and never stopped until my recent episode. I started more wheat products as my Dr. requested for the Tissue Transglutaminase Iga Antibody. mye result Value <1.0 Value interpretation: <15.0 Antibody not detected > or =15.0 Antibody detected I do not understand any of it. After eating all that wheat product my body exploded with all sorts of symptoms. I stop gluten ASAP. I am still in the healing process. I started having issues after my surgery. 
    • trents
      Welcome to the celic.com community @Ello! You say you had a blood test for celiac disease after eating gluten for 2 weeks. Were you gluten free before that? Had you ever been officially diagnosed with celiac disease previously? You say the result of the blood test was 1.5. Can you provide the name of the test and the reference range for negative vs. positive for the test? I ask because different labs used different reference ranges so scores without a reference range aren't very helpful.
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