Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nebraska Checking In

loco-ladi

Recommended Posts

loco-ladi Contributor
loco-ladi
Posted

Well, I checked nd didn't see anyone yet posting for Nebraska so here I am little ole me anyone else?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Merritt Newbie
Merritt
Posted

Where in Nebraska do you live? I lived and worked in Lincoln for many, many years and have retired back to my home state Missouri. I have been gluten free since January of this year, still struggling but getting there. I am trying to learn how to use the message boards and respond. Will see if this works. I need more help learning how to use this than anything else. I HAVE learned from just reading the postings. My name is Bunnie as in Rabbit!

Guest aparde
Guest aparde
Posted
Well, I checked nd didn't see anyone yet posting for Nebraska so here I am little ole me anyone else?

Hi! I am from Nebraska too! :) My daughter has celiac and has been diagnosed for 3 years now. My dad is also celiac.

Welcome to the boards!

  • 1 month later...
fifthprofession47 Newbie
fifthprofession47
Posted

I'm from Omaha. It's been a long time since I've visited here.

loco-ladi Contributor
loco-ladi
Posted
  • Author

I am way out west, darn near into wyoming in fact.....

I moved here about 2000 and LOVE IT! its so totally great you can see for miles and miles and since I was raised in Maine, land of mountains and trees its a big change for me!

Nice to meet you all!

sctwelk Newbie
sctwelk
Posted

I've been diagnosed silent celiac just over 3 years. That means I have benefitted from the gluten-free diet, but am not bothered by "falling off" occasionally. Just an honor system. I was anemic and losing/not gaining weight regardless of what or how much I ate. The doctor in Lincoln diagnosing me said I could decide whether to go gluten-free or not. I called the Mayo Clinic and talked to one of their gastroenterologists for a second opinion. He said by all means I needed to be on the gluten-free diet as I would not be absorbing crucial vitamins I needed. He suggested I have a bone density scan done for osteoporosis. That proved valuable as I have been on Actonel and 1800 mg of supplemental calcium daily for 2 years. I tell people that I have gained 25 pounds since going on my "diet"! I live in Grand Island and know of a local support group in Kearney that meets 1-2 times a year. ;)

loco-ladi Contributor
loco-ladi
Posted
  • Author

Let me know when the support group next meets, if I can afford the gas prices at the time maybe I will just pop in!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 5 months later...
thepeach80 Rookie
thepeach80
Posted

Anyone still here? This is all new for me (for my son) and local help is always good.

Ann1231 Enthusiast
Ann1231
Posted
Anyone still here? This is all new for me (for my son) and local help is always good.

Hi! I live outside of Lincoln a little ways. I'm in Lincoln all the time though. Where are you from?

Ann

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    2. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    3. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    4. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    5. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,867
    • Most Online (within 30 mins)
      7,748
    mark847
    Newest Member
    mark847
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.