Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pernicious Anemia


Mtndog

Recommended Posts

Mtndog Collaborator

I was recently told I am anemic and I'm wondering if it's pernicious anemia. I know that for the last month (after a really harsh glutening) I have been having some of the symptoms I had before I went gluten-free like the tarry stools, nausea, muscle pain and spasms, numbness and tingling and I'm wondering if if may be this.

And if so, how is it traeted? b12 shots? Anemia confuses me because i always thought it was low iron so anyone willing to educate me, please explain! Thanks, B


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

What kind of anemia did the doctor say you have? There are many different forms. I am assuming it was diagnosed through blood work?

True pernicious anemia is caused by the body not producing something called the intrinsic factor. The intrinsic factor is what allows the body to absorb and utilize B12 from our guts. Many celiacs because of the damage done to the intestines are also unable to absorb the vitamin from food or supplements and are low in B12. It is not exactly the same thing but the effects are the same.

For many the use of sublingual B12 is enough to get relief. The sublingual tabs dissolve under the tongue and are absorbed by the mucous membranes into the blood stream. This can be a very effective way of bringing levels up quickly. Some folks choose to get injections, my Mom did for years, but for some the oral method works well. I had relief, even pregluten free, from 'tingles' in under a week with the sub tabs

Mtndog Collaborator
What kind of anemia did the doctor say you have? There are many different forms. I am assuming it was diagnosed through blood work?

True pernicious anemia is caused by the body not producing something called the intrinsic factor. The intrinsic factor is what allows the body to absorb and utilize B12 from our guts. Many celiacs because of the damage done to the intestines are also unable to absorb the vitamin from food or supplements and are low in B12. It is not exactly the same thing but the effects are the same.

For many the use of sublingual B12 is enough to get relief. The sublingual tabs dissolve under the tongue and are absorbed by the mucous membranes into the blood stream. This can be a very effective way of bringing levels up quickly. Some folks choose to get injections, my Mom did for years, but for some the oral method works well. I had relief, even pregluten free, from 'tingles' in under a week with the sub tabs

They actually didn't say what kind of anemia- I didn't realize there were different types. thanks for the info. I was looking over my labs and it looks like B12 and iron.

tiffjake Enthusiast
They actually didn't say what kind of anemia- I didn't realize there were different types. thanks for the info. I was looking over my labs and it looks like B12 and iron.

You might want to find out if it is pernicious anemia or not. If so, you will need B12 for life. I have pernicious anemia. I used to give myself weekly shots. I stopped doing that b/c I developed bad bruises and scar tissue. I started using the sublingual tab (from GNC).

If you do not have pernicious anemia, then you can use over the counter Iron or B12 tablets. (They would not have to be sublingual). The only reason people with pernicious anemia need the shots or sublingual is because they can not absorb the B12 through the stomach lining. Otherwise, regular Iron pills or B12 pills would be fine.

Hope you figure out what kind of anemia you have! :)

chatycady Explorer

I too have pernicious anemia. And will give my self monthly injections for the rest of my life. I was diagnosed through the "Shillings" test. Don't know if they use that anymore.

You can be anemic, due to poor absorption. I do not have that problem. I lack intrensic factor. Pernicious Anemia is an autoimmune disease.

Mtndog Collaborator

Thanks for all the info everyone!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,047
    • Most Online (within 30 mins)
      7,748

    terri migut
    Newest Member
    terri migut
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.