Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy - Can Heal?


Blue-Skye

Recommended Posts

Blue-Skye Newbie

Good day I have a general question about Soy - Our son tested as high allergy to Soy but we see no visible signs of it ourselves.

In fact he insists he is not allergic to gluten or soy because he does not have full blown anaphylactic reactions like his father does to peanuts and fish.

I tried to ask about leaky gut as the cause but they said no - maybe they do not believe in it? That he will never heal and will always be reactive to soy.

Since we do not see any outward signs of allergy do we need to avoid it 100% and be paranoid about it or just an awareness of it and do our best to avoid it. It is in basically everything and we have cleaned out the fridge and cupboards due to the soy and gluten. Or could it be doing inner damage such as cognitive / or internal organ damage, setting the stage for cancer, etc?

The testing was done through enterolabs - should we take him to a traditional allergists - which we've done in the past - about 8 years ago - just to verify the soy allergy? We have no insurance to speak of so all this is being paid for by ourselves.

Does anyone have any links to reaseach about soy damage if one ingests it while "allergic"?

We have cut out all grains, sugar, soy, - we are doing the Specific Carbohydrate Diet to heal but would like to know there is an end in sight if possible - or if we need to face reality and know this is for life.

Thanks for all your help, I have another post with questions in the pre test forum.

Blue-Skye


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

Blue-Skye,

The enterolab tests don't test for immediate reaction allergies. As far as I know their test is similar to delayed reaction allergies (or intolerances).

The gluten and soy could cause intestinal damage, joint pain. Don't remember if soy can cause neurological problems or not.

I've posted a couple different articles on soy in this category. I'll see if I can find them and post the links.

Ok here is a link....

Open Original Shared Link

Juliebove Rising Star

My daughter is allergic to soy. She does not have the life threatening kind of allergy and in her case the reaction will vary. She once got stomach pains while eating soy containing crackers. But usually her symptoms are skin rashes and nosebleeds. Took me a while to figure out that the nosebleeds were related to soy and peanuts. She usually has a bleed the day after eating the offending food. Also her behavior gets bad if she eats something she is allergic to. She gets really cranky and can't pay attention.

Nantzie Collaborator

What I would do is to make a deal with him to completely cut out soy for a set period of time. A month or two? Then reintroduce it and see what happens.

I'm not up on the details of soy intolerance, but if it's anything like gluten intolerance, he'll feel so great off soy and so awful on it that it will be his choice to stay off of it and you won't have to police it.

I only did the genetic test through Enterolab (we couldn't afford the rest at the time). I did also notice a complete soy intolerance just a few weeks after going gluten-free. I had the soy intolerance for about two months and then it went away. Other food intolerances are common with celiac and gluten intolerance, some of which are permanent and others that are temporary.

I hope he feels better.

Nancy

Blue-Skye Newbie

OK my wheels are turning - he will be 13 on June 23rd. That would be about 3 months. I'm thinking maybe we could do a complete avoidance until then and then he could go to his favorite Chinese restaurant to see how he does. He begs for this restaurant. How much soy would we have to put back in - for how many "x" number of days?

I'd hate to put soy back in thinking there was no problem but it took several months to see the problem again - then we'd have to start over trying to get things healed and back to a great position.

We have cut soy and gluten (as well as sugar and processed foods) out of the home 100% - it is not in the home in any form - but he has been allowed teriyaki beef a few times at his favorite Chinese restaurant in the last 9 weeks.

My biggest problem is that I know what healthy eating entails and my thoughts were always that a bit of unhealthy here and there would not kill you - and hubby has anaphylactic reactions to peanuts and fish so I know what that does to a person but this subtle under the surface sensitivity being serious (as in needing to be 100% with zero tollerance for infractions) has been hard to drill into my hard head.

Not eating out has been our biggest struggle - learning curve. When one is tired or out and about it was just easier to eat out - but it seems there is gluten and/or soy in everything - at least at the grocery store all the premade stuff has it. I went to buy beef sausage this week and it had soy, I had to put it back and choose a brand not on sale. Then I realized the spices probably had gluten in it. This can be hard sometimes. Just easier to stick with all fresh foods to be 100% sure?

Blue-Skye

Nancym Enthusiast

Keep in mind that most soy sauce contains soy AND gluten (wheat). So if he's been eating teriakyi beef, I doubt he's been gluten free.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.