Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had Testing For Gall Bladder


plantime

Recommended Posts

plantime Contributor
I have been sick from my gall bladder all summer, and had trouble getting a doctor to test it. One of the tests ordered was an endoscopy, which was done last Wed. GI doc found two "patches of inflammation" that he took biopsies from. The gall bladder doc (2 different docs, here) read the results of the biopsies to me, telling me there was inflammation in two spots with blunting. When I asked Blunted what? he said villi. I said "Oh, that's the celiac rearing it's ugly head." He said "Ok, then you know what that is all about!" It sure felt good to already know and understand what the doctor was afraid to tell me! My gall bladder does have to come out. That will happen tomorrow at noon. I had previously been diet-diagnosed, now, by accident, I am also biopsy-diagnosed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



92939 Newbie

;) Dessa, may God be with you in your surgery and during your recovery.

Also did you have hurting in your side and back before you were diagnosed with your gallbladder trouble, because my brother has been having a hurting in his right side around his waist and in his back around that area and won't go to the doctor.

Sincerely

Jean of NC

plantime Contributor

I have a lot of pain in my right side, just under the ribcage. It feels like someone is running a hot poker from my front through my back, and it's coming out just under the right shoulder blade. 30 minutes after eating something with fat (dairy and meats are my triggers), I get the pain, and acid indigestion. About 4 hours later, I have to go do a #2, and it is acidic. It took a biliary scan to learn that it was the gall bladder. I wish your brother would see his doctor. Pain is not something to ignore for very long!

Guest jhmom

Dessa, you are in my thoughts and prayers and I hope you find some relief soon!

Please let us know how you are doing, Take care :)

Canadian Karen Community Regular

Hi!

Just wanted to mention that a very close friend of mine had her gall bladder out about six months ago after suffering with the pain for about 3 years. She has never felt better in her life! She is so glad she had it done!!

Good health vibes being sent your way!

Karen

j9n Contributor

Good luck on your surgery, I hope you feel better soon.

I am curious, I have the same pain and have had an ultrasound and ct scan which are normal. I have not had a biliary scan though. The pain always accompanies diarrhea and the sensitive spot in my back is painful to touch. I sat in one of those massaging chairs and when it hit there I was in pain. The doctor shrugged it off but I am not quite convinced

plantime Contributor

For my gall bladder, I had one xray, two ultrasounds, and a ct scan, all of which came back normal. The biliary scan came back normal on function, but abnormal on reaction. It was the only test that even hinted something was wrong with the gall bladder. It was removed today, and for the first time since April, I was able to eat without pain and nausea. I had the laparascopic surgery, and the only pain I have is the incisions (4 of them, all very small) themselves. I had to stand my ground with two of the doctors that were treating me, and tell them to forget about the insurance, I wanted it out! GB doc said I would only have a 50/50 chance of getting better after the surgery, so I told him I was willing to take that risk. I already feel so much better, it is almost unreal, and it has only been 12 hours since the operation! Stick to your guns. Insist on more definitive tests, and if you think it's necessary, surgery. One thing I learned with Celiac, is that my health is my responsibility, and I have to make sure it is taken care of!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mcalister14 Rookie

:lol: I'm glad that your surgery went well. It's such a great feeling when things go the way they are supposed to!

Best wishes to you!

Stacy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,936
    • Most Online (within 30 mins)
      7,748

    JHutchins
    Newest Member
    JHutchins
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Early guidelines from years ago concerning D3 supplementation was unduly conservative. There was fear of toxicity in over-supplementing because D3 is a fat soluble vitamin and not a water soluble vitamin. More recent studies have shown we can supplement safely at considerably higher levels for extended periods. But yes, 50,000 IU would not be safe over an extended period of time. That much is a kick start dose.
    • Shining My Light
      @knitty kitty I had an injury from assuming I could do work outs at the gym like I did in my 20s 😏. it didn’t work in my favor. My orthopedic doctor told me to go on 50,000IU /per week for 4-6 weeks for a boost and then do a maintenance. I took 2 and got nervous to take any more, it seemed so high to me. About 7  months later I had a blood test revealing that my Vit D levels are lower than normal. I started taking vit D supplements-4000IU./a day now. (the natural garden of life ones) I had a friend whose levels were low and she was having a mental breakdown.  My B12 levels were right in the middle of the range.     
    • knitty kitty
      @Ginger38, Have you been checked for nutritional deficiencies, besides iron?   Celiac disease causes inflammation which results in nutritional deficiencies.   Iron needs Thiamine and the other B vitamins to make new red blood cells.   Iodine and thiamine deficiencies affect the thyroid.  The thyroid is one organ that uses lots of thiamine.   Vitamin D deficiency leads to hormonal problems, including menstrual problems.  Vitamin D needs Thiamine to activate it.   Heart palpitations and chest pain after gluten exposure can be evidence of poor digestion and a drop in available thiamine.  Consumption of any  foods high in carbohydrates can cause a drop in thiamine.  This is called high calorie malnutrition. Anxiety, numbness, tingling, acne, and brain fog are symptoms of Thiamine and the other B vitamin deficiencies.  There's eight B vitamins that all work together in concert.  They are water soluble.  They can be hard to absorb by inflamed intestines.  Vitamin A can improve acne. I suffered from all the same symptoms which only resolved with B Complex and Thiamine (in the forms TTFD and Benfotiamine) supplements, Vitamins D, A and C.  Magnesium, Thiamine and B6 Pyridoxine will get rid of the nightmares. Replenishing your vitamin and mineral stores will help heal and feel better faster.  Talk to your nutritionist and doctor about supplementing. Think about adopting the Autoimmune Protocol diet to help with SIBO and MCAS to reduce bloating and heal the intestines. @Alibu and I were just discussing diagnosis without obvious villus damage here.   This study followed people who showed no or little villi damage at first....they accrued more damage over time. Outcomes of Seropositive Patients with Marsh 1 Histology in Clinical Practice https://pmc.ncbi.nlm.nih.gov/articles/PMC4980207/ There's a move to be less reliant on endoscopy for diagnosis. Biopsy‐Sparing Diagnosis of Coeliac Disease Based on Endomysial Antibody Testing and Clinical Risk Assessment https://pmc.ncbi.nlm.nih.gov/articles/PMC12074562/
    • Ginger38
      Okay, Thank you!! I already have thyroid problems and my total iron binding capacity is high which usually means low iron but everything else was normal, lower end but “normal” my hair falls out and my nails won’t grow without breaking but nothing is being treated iron wise.  I have started having palpitations and chest pain,  both of which seem to be attributed to exposure to gluten. I’ve also been having a lot of nightmares, anxiety, numbness and tingling, brain fog, spotting between cycles and acne. Idk if all those are relatable to gluten / celiac but I’m concerned  I’ve finally tipped my body/ immune system into a bad place. Is there anyway to detox and heal faster or treat these symptoms if related to gluten ? 
    • knitty kitty
      @Alibu, Start with this study... High-dose thiamine supplementation improves glucose tolerance in hyperglycemic individuals: a randomized, double-blind cross-over trial https://pubmed.ncbi.nlm.nih.gov/23715873/ "Conclusion/interpretation: Supplementation with high-dose thiamine may prevent deterioration in fasting glucose and insulin, and improve glucose tolerance in patients with hyperglycemia. High-dose thiamine supplementation may prevent or slow the progression of hyperglycemia toward diabetes mellitus in individuals with impaired glucose regulation." They used 100 mg of thiamine three times a day.  They don't say which kind of thiamine was used.  Benfotiamine is my recommendation because it has been shown to promote intestinal health and helps with leaky gut and SIBO.  Thiamine forms including Benfotiamine and TTFD are safe and nontoxic even in higher doses.   The old "gold standard" diagnosis is changing.  It must be confusing for doctors as well.  I went through all this myself, so I understand the frustration of the vagueness, but set your course and watch as your health improves. Keep us posted on your progress!   P.S. here's another link.... https://pubmed.ncbi.nlm.nih.gov/39642136/
×
×
  • Create New...