Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hungry All The Time!


Jerri Ward

Recommended Posts

Jerri Ward Apprentice

My brother who was 42 at the time was diagnosed with Celiac in Oct. of 20 of 2005. I am his sister and I was 45 and I was diagnosed in Nov. of 2005. He has 2 daughters who are 7 and 10. The 7 yr. old is very petite. The 10 year old is slightly overweight. They have not been tested for Celiac yet. The 10 year is hungry all of the time. All she thinks about costantly is eating. She is aways hungry. I was wondering if this could possibly have anything to do with Celiac? My brother does not follow a strict gluten-free diet. He doesn't see any harm in cheating here and there. He figures if he cannot feel any effects from it that it is not hurting him. He will not listen to me, therefore I have given up trying to make him understand. I would appreciate any opinions that anyone has to offer. My nieces mom is trying to solve the problem by making her wear pants that are a size too small. That way she cannot grow anymore, and also she will be uncomfortable sitting in school all day in pants that are too small. I think that is child abuse, but there is nothing I can do about it. I think that they both should be tested especially since they not only have a parent that has Celiac, but they have an Aunt, their dads sister and we were diagnosed at the same time. I would appreciate your thoughts. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Jerri, you may be right. Being hungry all the time could be a sign of malnutrition. My naturopathic doctor also told me that weight gain can be a sign of malnutrition, too, not just weight loss.

If her intestines aren't absorbing essential nutrients, your niece would constantly feel like eating, because really, she is starving! So, yes, she may well have celiac disease.

And I agree, making her wear pants that are too tight to stop her from eating is definitely abuse. They are punishing her for being overweight, and it is not even her fault! How cruel.

MistressIsis Apprentice

Are there any other family memebers that can help you get them to see the light of day? And maybe warn them that if school finds out they're having her wear too small clothes to get her not to eat may very well call social services...

Is she mature enoughfor you to talk to her about elimanating gluten on her own?

As a kid I never ate bread, stuffing cereal etc, just because I didn;t like them...turns out my body knew what was good for me. I got greif but never punished!

Tritty Rookie

How sad :( Even if she doesn't have celiac - she's going to have a complex. The mom needs to be in charge of what she eats (making sure she gets a protein in the morning to stick with her, etc) - and make sure it's healthy - not make her diet at age 10! And not starve the poor kid either - let her eat if she's hungry! Activity, activity, activity. That's what my mom always said - keep them busy - good for their health - and not eating just because they're bored.

Since celiac is so prominent in your family - she definitely should be checked for that. I was SO HUNGRY all the time. I ate and ate and ate....

Good luck - I know it's hard to hear bad news about your own kids from someone else - maybe you could print off some articles or similar situations to help prove your point...?

Jerri Ward Apprentice
How sad :( Even if she doesn't have celiac - she's going to have a complex. The mom needs to be in charge of what she eats (making sure she gets a protein in the morning to stick with her, etc) - and make sure it's healthy - not make her diet at age 10! And not starve the poor kid either - let her eat if she's hungry! Activity, activity, activity. That's what my mom always said - keep them busy - good for their health - and not eating just because they're bored.

Since celiac is so prominent in your family - she definitely should be checked for that. I was SO HUNGRY all the time. I ate and ate and ate....

Good luck - I know it's hard to hear bad news about your own kids from someone else - maybe you could print off some articles or similar situations to help prove your point...?

Thank you for your responses. It is sad to say that my brother and my sil are so consumed with work that both of my nieces come in second place. My sil is tall skinny and my other niece is skinny and so she sort of punishs Alyssa because she is not skinny. Yesterday when I picked the girls up from school, Alyssa had on one her skorts. They go to a private christian school. I went to my bedroom while she was undressing and she could hardly get it off it was soo tight. I was soo mad that I could hardly keep from screaming. I cannot say anything to my brother about it, because he will go straight to my sil and she despises me and myi mother and would stop letting us see the girls and that would kill both of us and them. They need us badly. Also, I could not get my brother to understand that she needs to be tested, because he does not follow the diet properly. He cheats all of the time. He thinks that because he doesn't feels any effects of cheating that it is o.k. It is a real mess. Thanks guys for listening.

tarnalberry Community Regular

Gah! That IS disturbing. I'm not sure that child protective services wouldn't want to know... but then the family would *really* be pissed...

I'm sorry. :(

NoGluGirl Contributor

Dear Jerri,

Your SIL sounds like a complete idiot! People like that should not breed! I agree that your niece could be malnourished. You can still gain weight if you are malnourished. Your body craves more food because it needs nutrients. When it does not get them, it has you eat more and you take in excess calories. Her mother is being lazy. She does not want to deal with it. Let me guess...your SIL is not exactly the brightest crayon in the box?

Sincerely,

NoGluGirl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Thank you for your responses. It is sad to say that my brother and my sil are so consumed with work that both of my nieces come in second place. My sil is tall skinny and my other niece is skinny and so she sort of punishs Alyssa because she is not skinny. Yesterday when I picked the girls up from school, Alyssa had on one her skorts. They go to a private christian school. I went to my bedroom while she was undressing and she could hardly get it off it was soo tight. I was soo mad that I could hardly keep from screaming. I cannot say anything to my brother about it, because he will go straight to my sil and she despises me and myi mother and would stop letting us see the girls and that would kill both of us and them. They need us badly. Also, I could not get my brother to understand that she needs to be tested, because he does not follow the diet properly. He cheats all of the time. He thinks that because he doesn't feels any effects of cheating that it is o.k. It is a real mess. Thanks guys for listening.

On the issue of her clothing, you may be able to do something about that through the school. I would talk to a counselor or the priest, privately and express your concerns. She may be getting teased at school about it also. I would not involve child protective services unless she is in serious danger that can not be resolved in any other way. Her parents may not be perfect but the trauma of being taken away could have life long consequences. Talk to the child and always be available for her and her sister. Our society makes it very hard sometimes to raise children properly. In the past if a parent was not able to take complete care there was a extended family to take up the slack. You may need to do that. You can continue to advise on the diet but her parents may not listen, if that is the case any education and support you can provide is vital. She is lucky to have you caring about her, please don't risk her parents severing that relationship.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.