Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hungry All The Time!


Jerri Ward

Recommended Posts

Jerri Ward Apprentice

My brother who was 42 at the time was diagnosed with Celiac in Oct. of 20 of 2005. I am his sister and I was 45 and I was diagnosed in Nov. of 2005. He has 2 daughters who are 7 and 10. The 7 yr. old is very petite. The 10 year old is slightly overweight. They have not been tested for Celiac yet. The 10 year is hungry all of the time. All she thinks about costantly is eating. She is aways hungry. I was wondering if this could possibly have anything to do with Celiac? My brother does not follow a strict gluten-free diet. He doesn't see any harm in cheating here and there. He figures if he cannot feel any effects from it that it is not hurting him. He will not listen to me, therefore I have given up trying to make him understand. I would appreciate any opinions that anyone has to offer. My nieces mom is trying to solve the problem by making her wear pants that are a size too small. That way she cannot grow anymore, and also she will be uncomfortable sitting in school all day in pants that are too small. I think that is child abuse, but there is nothing I can do about it. I think that they both should be tested especially since they not only have a parent that has Celiac, but they have an Aunt, their dads sister and we were diagnosed at the same time. I would appreciate your thoughts. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Jerri, you may be right. Being hungry all the time could be a sign of malnutrition. My naturopathic doctor also told me that weight gain can be a sign of malnutrition, too, not just weight loss.

If her intestines aren't absorbing essential nutrients, your niece would constantly feel like eating, because really, she is starving! So, yes, she may well have celiac disease.

And I agree, making her wear pants that are too tight to stop her from eating is definitely abuse. They are punishing her for being overweight, and it is not even her fault! How cruel.

MistressIsis Apprentice

Are there any other family memebers that can help you get them to see the light of day? And maybe warn them that if school finds out they're having her wear too small clothes to get her not to eat may very well call social services...

Is she mature enoughfor you to talk to her about elimanating gluten on her own?

As a kid I never ate bread, stuffing cereal etc, just because I didn;t like them...turns out my body knew what was good for me. I got greif but never punished!

Tritty Rookie

How sad :( Even if she doesn't have celiac - she's going to have a complex. The mom needs to be in charge of what she eats (making sure she gets a protein in the morning to stick with her, etc) - and make sure it's healthy - not make her diet at age 10! And not starve the poor kid either - let her eat if she's hungry! Activity, activity, activity. That's what my mom always said - keep them busy - good for their health - and not eating just because they're bored.

Since celiac is so prominent in your family - she definitely should be checked for that. I was SO HUNGRY all the time. I ate and ate and ate....

Good luck - I know it's hard to hear bad news about your own kids from someone else - maybe you could print off some articles or similar situations to help prove your point...?

Jerri Ward Apprentice
How sad :( Even if she doesn't have celiac - she's going to have a complex. The mom needs to be in charge of what she eats (making sure she gets a protein in the morning to stick with her, etc) - and make sure it's healthy - not make her diet at age 10! And not starve the poor kid either - let her eat if she's hungry! Activity, activity, activity. That's what my mom always said - keep them busy - good for their health - and not eating just because they're bored.

Since celiac is so prominent in your family - she definitely should be checked for that. I was SO HUNGRY all the time. I ate and ate and ate....

Good luck - I know it's hard to hear bad news about your own kids from someone else - maybe you could print off some articles or similar situations to help prove your point...?

Thank you for your responses. It is sad to say that my brother and my sil are so consumed with work that both of my nieces come in second place. My sil is tall skinny and my other niece is skinny and so she sort of punishs Alyssa because she is not skinny. Yesterday when I picked the girls up from school, Alyssa had on one her skorts. They go to a private christian school. I went to my bedroom while she was undressing and she could hardly get it off it was soo tight. I was soo mad that I could hardly keep from screaming. I cannot say anything to my brother about it, because he will go straight to my sil and she despises me and myi mother and would stop letting us see the girls and that would kill both of us and them. They need us badly. Also, I could not get my brother to understand that she needs to be tested, because he does not follow the diet properly. He cheats all of the time. He thinks that because he doesn't feels any effects of cheating that it is o.k. It is a real mess. Thanks guys for listening.

tarnalberry Community Regular

Gah! That IS disturbing. I'm not sure that child protective services wouldn't want to know... but then the family would *really* be pissed...

I'm sorry. :(

NoGluGirl Contributor

Dear Jerri,

Your SIL sounds like a complete idiot! People like that should not breed! I agree that your niece could be malnourished. You can still gain weight if you are malnourished. Your body craves more food because it needs nutrients. When it does not get them, it has you eat more and you take in excess calories. Her mother is being lazy. She does not want to deal with it. Let me guess...your SIL is not exactly the brightest crayon in the box?

Sincerely,

NoGluGirl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Thank you for your responses. It is sad to say that my brother and my sil are so consumed with work that both of my nieces come in second place. My sil is tall skinny and my other niece is skinny and so she sort of punishs Alyssa because she is not skinny. Yesterday when I picked the girls up from school, Alyssa had on one her skorts. They go to a private christian school. I went to my bedroom while she was undressing and she could hardly get it off it was soo tight. I was soo mad that I could hardly keep from screaming. I cannot say anything to my brother about it, because he will go straight to my sil and she despises me and myi mother and would stop letting us see the girls and that would kill both of us and them. They need us badly. Also, I could not get my brother to understand that she needs to be tested, because he does not follow the diet properly. He cheats all of the time. He thinks that because he doesn't feels any effects of cheating that it is o.k. It is a real mess. Thanks guys for listening.

On the issue of her clothing, you may be able to do something about that through the school. I would talk to a counselor or the priest, privately and express your concerns. She may be getting teased at school about it also. I would not involve child protective services unless she is in serious danger that can not be resolved in any other way. Her parents may not be perfect but the trauma of being taken away could have life long consequences. Talk to the child and always be available for her and her sister. Our society makes it very hard sometimes to raise children properly. In the past if a parent was not able to take complete care there was a extended family to take up the slack. You may need to do that. You can continue to advise on the diet but her parents may not listen, if that is the case any education and support you can provide is vital. She is lucky to have you caring about her, please don't risk her parents severing that relationship.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,006
    • Most Online (within 30 mins)
      7,748

    Peg55
    Newest Member
    Peg55
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.