Testing Information

[cchhrriiss]

I watched the View, and saw that there was a gene test to find out if you carry a gene that could cause celiac. How accurate is that test? If you are negative does that mean that you can't get celiac? I can't go back on gluten it gives me a severe rash on my face. Iv'e tried 9 times . My derm has finally given up after a year of treatment, and said, stay away from gluten. I have tried 7 months of antibiotics, steriods, and 5 months of Accutane. He said, he has no idea why I get this rash. He doesn't think it's DM. He would like to send me to the Mayo clinic. I'm not convinced that it's not DM, but maybe just an intolerance. Either way this forum has been great. I would like to know for sure. Any help would be appreciated.

[Jestgar]

A gene test is absolutely accurate (unless they mix up samples, which is uncommon). Your genes don't change.

They can test your rash to see if it's DH. It wouldn't be that hard.

[tarnalberry]

The gene test is accurate and precise - it'll tell you if you have the known genes for celiac disease. It won't tell you if you have the genetic makeup that makes you susceptible to developing gluten intolerance or the other genes that haven't yet been identified covering the rest of the people who have diagnosed celiac disease, and it won't tell you if you have the active disease or not.

[cyberprof]

The gene test is accurate and precise - it'll tell you if you have the known genes for celiac disease. It won't tell you if you have the genetic makeup that makes you susceptible to developing gluten intolerance or the other genes that haven't yet been identified covering the rest of the people who have diagnosed celiac disease, and it won't tell you if you have the active disease or not.

Hi Tiffany,

I'm in Seattle too.

Can anyone tell me how much a gene test is and how likely I could get insurance to pay for my son's test, given my diagnosis?