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Not Sure What This All Means...?

Tritty

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Tritty Rookie
Tritty
Posted

My youngest is almost 13 months. He had a ttg and all came back fine. He is small, but has always been a terrible eater (at first it was because his tounge was tied - that broke on it's own). He seems to have some texture issues though - and still has some trouble chewing. He did grow before his last appt and is 50% in height again, but is still 25% in weight. He hasn't gained any weight since he was 10 months old. He is EXTREMELY active. For example, I found him on the kitchen table today :o . He runs. He JUMPS! The doctor thinks that some of his weight issues could be that he is just so active and doesn't eat much table food. But he also said that if he hasn't picked up much weight by his next appt (15 mo) - he would call the GI at Children's again to look into other ways to see if it's celiac...

So the last two weeks I've really been pushing the table food and switched him from his formula to whole milk. His poop went from regular to bright green (like neon) and now to mustard yellow. Any idea what this means? Do you think he's intolerant to milk? Or do you think that it's all of the table food (and gluten therefore) that he's been eating? I'm so confused. I plan on calling my doctor tomorrow - but I was just trying to get some ideas...?

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Tritty Rookie
Tritty
Posted
  • Author

So I went and saw the Dr this morning - he went ahead and referred me to a GI. I can't get in for 2 weeks. Any suggestions what to do until then? Should I keep a food diary for the GI? Or cut back on his table food with gluten...?

Guhlia Rising Star
Guhlia
Posted

If you cut back on the amount of gluten he's consuming, it could skew test results. Does he seem to be in any significant pain or is it just his stools that have changed? If it's just his stools that have changed, I would continue to push the table food. You only have two weeks to wait.

My daughter was the same way, very active at a very early age, and skinny. She's still at 50% for height at 25% for weight and she looks great. She's a little bundle of muscles. It seems to me that 50/25 is still well within the normal range. That being said, if you're Celiac, then he has a much greater risk of being Celiac and you should definitely have him checked periodically.

Tritty Rookie
Tritty
Posted
  • Author

Yes, he is in pain - I think! He's waking up 3 or 4 times a night and just cries for 5 minutes or so and then goes back to sleep. He seems to have much more gas and burps quite frequently.

I think I would worry less if 5o/25 was closer to where he started out - but he seems to just keep getting lower...

The doctor said the color indicates that his stool is passing through him much more quickly - too quickly...

kookaburra Rookie
kookaburra
Posted
Yes, he is in pain - I think! He's waking up 3 or 4 times a night and just cries for 5 minutes or so and then goes back to sleep. He seems to have much more gas and burps quite frequently.

I think I would worry less if 5o/25 was closer to where he started out - but he seems to just keep getting lower...

The doctor said the color indicates that his stool is passing through him much more quickly - too quickly...

For my son yellow poop means that he has been exposed to gluten. When he goes off gluten, it takes about 5 days to turn back to brown. Also night waking.

flowergirl Rookie
flowergirl
Posted

Tritty, it sounds like lactose intolerance intolerance... :unsure:

chrissy Collaborator
chrissy
Posted

alot of burping sounds like it could be reflux.

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e&j0304 Enthusiast
e&j0304
Posted

If he has reflux that could be making him wake up at night as well. Some kids have reflux without us really knowing it. It's called "silent reflux." My son has a pretty severe case of this and also wakes up many times during the night crying. Food issues as far as texture and refusal to eat are also signs of reflux.

I'm glad you got in with the GI. He should be able to figure it out. I say that a little hesitantly because we've had our fair share of TERRIBLE Gi's but we cannot possibly be the norm and I'm sure yours will be fine.

Good luck to you!

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    • knitty kitty
      High DGP-A with normal IGA

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      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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