Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Symptoms Does Your Child Have When Glutened?


hannahsue01

Recommended Posts

hannahsue01 Enthusiast

My daughter was never officialy diagnosed and had the full blood tests wich came back neg. She is five and had constipation, mood problems, always had a stomach ache, always hungry sneaking food, is only in the 5%, and so on. We put her on a gluten-free diet ourselves and saw improvment with everything except growth. When she would get glutened she would throw up. We just tested her with some cookies while she was off school this week without her knowing. She complained of a stomach ache and a bad headache wich she kept saying was getting worse throughout the day. She woke up this morning with quite a few mouth blisters. I was wondering if this is typical? I am still argueing with a few of our friends and family who says she doesn't have it and that they can grow out of it.....errr. I guess maybe I need some reasurance that I am on the right track with her....and if you think not let me know.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ptkds Community Regular

I think you have found your answer. I have heard of ppl getting mouth blisters when they have gluten. My dd gets a bad stomach ache when she gets glutened. ANd my mom gets headaches when she gets glutened.

Just ignore what others say and keep her on the diet. The improvement on the diet is a test by itself, and it came out positive. So you can tell ppl that she has celiac disease, or at least a gluten intolerance. You are her parent, so you get to decide what she eats, anyway.

Good Luck!

ptkds

  • 2 weeks later...
purplemom Apprentice

I agree! When glutened...Our daughter gets headache, stomach ache, leg cramps, extremely moody, complains about everything, D (sometimes), dry sticky eyes, it is a nightmare....so anyway I think this disease can bring on all sorts of symptoms. Trust your instinct and don't let people break you down. You know your childs behavior better than anyone else. It cannot hurt her to be gluten free!

Best of luck

Cali

natalie Apprentice

My daughter gets clammy, sweaty, tired and vommits for a few hours. She also get really irritable for a few days after. Her legs get sore

Natalie

FeedIndy Contributor

My kids symptoms are all over the map with gluten. They can get a stomachache (older 2-no idea on the baby), headache (DD9), flushed cheeks (all 3), insane hunger (DD4), very tired (DD1) and become generally cranky, mean, angry kids.

ssjrobbins Newbie

I was thinking of posting this same question earlier today. Both of my children have been diagnosed with celiac disease through biopsy and we are very strict with their diet. I have recently started eating Gluten Free as well. I do not have any glaring symptoms but it doesn't hurt to eat the same way they do. Anyhow, we went to a birthday party for my niece on Saturday and my sister specifically prepared a gluten-free menu for myself, my kids and her (she is gluten-free as well). That night I had a migraine and the next morning my daughter (4) woke up not feeling well and had a slight fever of about 100.4 and then today my son (20 months) had a fever of 101.3 and was very clammy, sweating and I could tell just not feeling well. I hate to blame it on the food at the party, but I think it is ironic that the three of us all eat gluten-free and in the next two days were all feeling ill and my husband is fine.

My question is this....do any of your kids get a slight fever when they have been glutened?

Thanks!!!

girlfromclare Apprentice

My son gets overwhelmingly cross; everything upsets him... we can always tell when he has had some form of cross contamination because he will come in to a room and if someone even says hello, he is grumpy and crying... banging things around the place, generally a nightmare. He will also complain of stomach ache but it is never generalised... kind of all over so I think (as he is only 5) that he just cant voice exactly whats wrong - that he feels horrible all over. Thats my reading of it but boy does he get mean and cranky!!! We try to avoid cross contamination at all costs!!!

By the way I have read in tonnes of places on this board and on other sites that children (and adults) with celiac suffer from canker sores (or blisters) in the mouth... so sounds definite to me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.