Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cna You Answer These

joemoe003

By joemoe003
in Introduce Yourself / Share Stuff

Recommended Posts

schuyler Apprentice
schuyler
Posted

> > >1. how long have you had coeliac?

> > > I was diagnosed 3.5 months ago, but the doctor thinks that I'd probably had it for over half my life

> > >2. At what age were you diagnosed?

> > > 20 years and 7 months

> > >

> > >3. what foods do you miss out on?

> > > Sometimes I miss the flavor of pasteries, cookies, soft bread, pizza, etc. But honestly I don't miss eating them because they made me so sick for so long, that sometimes just the thought of eating them again makes me feel sick.

> > >4. How much does it cost to stay gluten free?

> > > For me, this gluten-free diet is costing me a lot more than my old diet used to. Not only is the food more expensive, but I'm actually eating (the 6 months prior to my diagnosis I barely ate anything). I really don't mind spending the extra money, because it's helping me feel better!

> > >5. Do you ever wish that you didn't have coeliac?

> > > YES!!!! I wish that I didn't have to worry about food all the time. It'd be nice to be able to just eat whatever I want without worring about ingredients, cross contamination and other things.

> > >6. Does the food taste better or worse or the same as ordinary food?

> > > It depends. Most of the prepackaged things are worse, but I've found some that I like more (kinninnick or however it's spelled is awesome!). I've also made some homemade things that were complete disasters and some that I really liked. I think it just takes time to tweak recepies and discover good brands for the prepackaged things.

> > >7. Have you ever eaten gluten without knowing it then suffered for it?

Oh yes!!! I had some trouble with cc initially. About two weeks ago I went out to eat to a little Mexican restaurant and I was assured that their chips were all gluten-free. Well I ended up so sick that I had to go to the hospital. I've also had problems with labeling issues where I've eaten something that was supposed to be gluten-free, only to find out that it wasn't.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

1. how long have you had celiac? Coming up on 4 years, after a bad bout of mono

2. At what age were you diagnosed? 22

3. what foods do you miss out on? French bread, hidden valley ranch dressing

4. How much does it cost to stay gluten free? A lot. I don't buy much replacement stuff, but there is so much trial and error involved, because a lot of it is stryofoam or cardboard.

5. Do you ever wish that you didn't have celiac? I'd make life easier, but at least I know what's wrong.

6. Does the food taste better or worse or the same as ordinary food? The same. Other than baked stuff, I make all the same stuff I did before. I cooked 95% gluten-free and didn't even know it!

7. Have you ever eaten gluten without knowing it then suffered for it? Too often. I'm still a "baby celiac"

cgilsing Enthusiast
cgilsing
Posted

1. how long have you had celiac?

I'm not certain, but the earliest I remember having celiac disease symptoms was in H.S. I was probably 14 or 15.

2. At what age were you diagnosed?

I was sortof diagnosed when I was 23, but I was never sent for a biopsy or a blood test....so it's not official I guess. I'm still working on that. I got back a positive gene test about a week ago though! I'm 25 now.

3. what foods do you miss out on?

I don't miss out on much....I make most of the things I like. If I miss out on something it's the experience of eating. I've always liked trying new restaurants, eating with friends...etc. That's hard now. I do miss McDonald's #3 without cheese though :ph34r: I heard it's not a #3 anymore though....ha that's sad it's been that long!

4. How much does it cost to stay gluten free?

It definatly costs more.....how much more depends on your diet though. The specialty stuff is outrageous! I get some of that for treats. Pizza dough mix, hamburger buns, cookies, etc. But if I wanted to cut back on spending I could, but just making more naturally gluten-free stuff. We do that a lot anyway.

5. Do you ever wish that you didn't have celiac?

YES! I don't dwell on having celiac disease, but if someone asked me tomarrow if I wanted a pill to make it go away, I'd bite their arm off to get to it! I look at celiac disease as being a good life lesson in self-control though. It has been good for me in that respect. I know now that I can have complete control over what I allow myself. But I've learned my lesson and if you have that pill you better hand it over!!! :lol:

6. Does the food taste better or worse or the same as ordinary food?

I think it's a matter of what you are used to. At first I didn't like the taste of gluten-free food. Everything had a funny aftertaste to me. Now I don't really taste it anymore in most foods. I do think now that I can taste wheat in food though! If I'm eating something by mistake, it tastes a little metalic to me or something. My husband sums it up though (he eats whatever he wants, but at home I make gluten-free for both of us). We were out to eat and he had some kind of pasta. I asked him how it was and he said he didn't like it, because it wasn't like the pasta at home! :lol:

7. Have you ever eaten gluten without knowing it then suffered for it?

Yes.....too often. It's a lot better now, and I am rarely glutened (once every few months), but it does happen.

Ashley Enthusiast
Ashley
Posted

1. how long have you had coeliac? A year this month!

2. At what age were you diagnosed? Fourteen

3. what foods do you miss out on? Pretzels. I loved pretzels. And poptarts XD

4. How much does it cost to stay gluten free? Depends how much you buy gluten-free foods specially made ( cookies, pastas, breaded meats, ect.) If you don't but these much (which I don't except for cake mixes, for decortating class), it's not really that much more expensive.

5. Do you ever wish that you didn't have coeliac? Not really. Celiac makes me unqiue and personally I think it's a better way of an eating living style.

6. Does the food taste better or worse or the same as ordinary food? It tastes the same, but, it gets repetitive sometimes. I live though.

7. Have you ever eaten gluten without knowing it then suffered for it? Yep.

melly Rookie
melly
Posted
can u answer these? a friend of mine is doin a report and he would like to know some information about us all!

> > >1. how long have you had coeliac?

> > >

> > >2. At what age were you diagnosed?

> > >

> > >

> > >3. what foods do you miss out on?

> > >

> > >4. How much does it cost to stay gluten free?

> > >

> > >5. Do you ever wish that you didn't have coeliac?

> > >

> > >6. Does the food taste better or worse or the same as ordinary food?

> > >

> > >7. Have you ever eaten gluten without knowing it then suffered for it?

i was almost 13 when i went gluten-free dont now how long i had celiac disease or that i really do have it because i diddnt sta rt feeling alot better if at all but since im growing i should stay gluten-free i miss ot on cake cookies brownies ALL THE GREAT HOMADE STUFF THAT KID MOM BRIG TO SCHOOL PARTIES TORTURE oreos mint and creem oreos chips ahoy coke (coca cola) gingerale taco bell frenlys kfccheese cake and my favorite icecream that bothered me the most for awile i had dream s i was jut eating thje icecream then in the midle i relized i couldnt have it ive allwas felt saic i didnt know what caused it i really didnt feel diffrent there is no glutenfree oreo we got one once you could break yourtooth so it does have its advantages jut eatig something and not looking through substatutes

  • 2 weeks later...
HillaryT Newbie
HillaryT
Posted
can u answer these? a friend of mine is doin a report and he would like to know some information about us all!

> > >1. how long have you had coeliac? i was diagnosed almost a year ago now, but i had symptoms for 6 months at least before that> > >

> > >2. At what age were you diagnosed? 18

> > >

> > >

> > >3. what foods do you miss out on? so many but mostly pizza, bagels, cookies....

> > >

> > >4. How much does it cost to stay gluten free? as a college student it costs alot. i go to school in nyc so instead of being able to eat a cheap luch or dinner of pizza it always costs over $10 for any meal

> > >

> > >5. Do you ever wish that you didn't have coeliac? every day...why would i want this?

> > >

> > >6. Does the food taste better or worse or the same as ordinary food? worst

> > >

> > >7. Have you ever eaten gluten without knowing it then suffered for it? yup

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but...
    2. cristiana
      - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10). Since then it has gone up to 10. I am not happy with that. I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I...
    3. Mike Maurillo
      0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

      until
      Hi everyone, I’m Mike, one of the co-founders of Academy Camps, a sleepaway sports camp for kids ages 10 to 16. I’m posting here because one of our camp families whose daughter has Celiac encouraged me to share our experience wit...
    4. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer. Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks...
    5. Scott Adams
      - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      Celiac disease is the most likely cause, but here are articles about the other possible causes:
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,209
    • Most Online (within 30 mins)
      7,748
    bwt34221
    Newest Member
    bwt34221
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Low iron and vitamin d

      By lizzie42 · Posted

      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.