Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Upset With Myself


confused

Recommended Posts

confused Community Regular

I had gotten some crackers at the health food store. On front of the box it said proud sponser of the celiac foundations. So I didnt even bother to look at the back cause even the person at the health food store said they were gluten free.

Well the night i had the tuna with the miracle whip, i used the crackers like for mini sandwhiches. I then snacked on them on saturday, then i put one in my mouth yesterday, and i was like I am going to look at the back of the box. And guess what they are made in places that process wheat and other items. Plus they have butter in them.

I have been so sick since friday. I spent from noon til now in bed, and im still feeling like crap.

I guess i really need to read labels no matter what.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Sorry you're not feeling well. Just when we fall into a comfort zone and think we can relax a little....

Don't beat yourself up too much. I made the mistake of drinking a sip of tea yesterday and it was barley tea. I did ask but the answer wasn't clear and I should have known better and smelled it first.It's something I am familiar with so I would have known. I knew right away after that sip! But really I feel a little nuts at times checking and re-checking and sniffing things and picking apart my food in restaurants in front of the server to see if the fish hidden under the lettuce in the fish taco had been floured. Who does that?(except us :P )

Wishing you a speedy recovery.

tarnalberry Community Regular

Keep in mind that "gluten free" is ALL about ingredients, not processing facility. If you're sensitive enough that you have to avoid items made in shared facilities, then you absolutely must always read the packaging.

Most of us make all our regular meals in shared facilities - if the other members of your household have ever brought in something with gluten to your kitchen, it would make all the food you prepared in there "made in a facility that handles wheat" (by food processing standards). That's not to say that there's no reason to worry and sometimes avoid, but I think it helps to put things in context.

(Heh... if you want to use the analogy "processed in a facility that handles rat poison"... well, many of them probably use some varieties of pesticides. Now I'm curious! ;) )

confused Community Regular

The reason why I am feeling so bad is more from the milk then anything i beleive, Here i got milk in the miracle whip and milk in the crackers. I am also very sensitive to gluten, so that comes into play. But i feel most of what i am going threw is from the milk in two products.

I had to even call my husband to come home and take the boys to school, i was too afraid to be away from my house for that time period.

I just want to feel good again, and i feel i keep making dumb mistakes, and it is so frustrating.

paula

JennyC Enthusiast
Keep in mind that "gluten free" is ALL about ingredients, not processing facility. If you're sensitive enough that you have to avoid items made in shared facilities, then you absolutely must always read the packaging.

Most of us make all our regular meals in shared facilities - if the other members of your household have ever brought in something with gluten to your kitchen, it would make all the food you prepared in there "made in a facility that handles wheat" (by food processing standards). That's not to say that there's no reason to worry and sometimes avoid, but I think it helps to put things in context.

(Heh... if you want to use the analogy "processed in a facility that handles rat poison"... well, many of them probably use some varieties of pesticides. Now I'm curious! ;) )

Thanks for the perspective. I'm new to all of this. I think I bought similar crackers for my son. I almost threw them away when I saw that they were made in a shared facility, but I thought that most "normal" food is most likely manufactured in a shared facility (and our home cooked food). I'm not planning to be that restricting on his diet unless his medical condition warrants it. Until then, I'm letting the poor kid have his Cheetos!

carriecraig Enthusiast

Paula,

I feel your pain. I went to lunch yesterday, and got steak fajitas. I asked what was in them, and the reply I got back indicated that they would be safe for me. Well, let me tell you... I was at an open house an hour later, and had to run out. I had a severe reaction to what I ate, and was in the bathroom at least 7 times yesterday afternoon.

I have been gluten-free for almost 2 years now, with very few slipups (my last one was blue cheese). The reaction that I had yesterday was 100x worse then those I had before I was diagnosed. Or maybe I just got used to it and blocked it out of my mind. Either way, I can empathize with you as I'm still feeling the effects today.

Feel better, and know that no matter how careful we are, there are times when we get victimized.

Carrie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,681
    • Most Online (within 30 mins)
      7,748

    Donna Ybarra
    Newest Member
    Donna Ybarra
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.