Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Expand Diet


SillyBoo

Recommended Posts

SillyBoo Newbie

I have been gluten-free for more than 5 months. I feel pretty good as long as I severely restrict my diet - no dairy, soy, eggs, nightshades, legumes, spicy foods of any kind, or RAW VEGGIES. I eat fruits, cooked veggies, poultry, fish, rice, and occasionally nuts, buckwheat, and corn. That's it.

Now that spring is here, I am craving salads, but I know what the consequences will be if I eat anything raw. Such "indulgences" are followed by several days of lethargy, brain fog, and unhappy guts. I had cheese last week for the 1st time in more than 8 months, during a self-destructive and hungry moment, and am still paying for that.

How long has it taken others to be able to add other foods? My family cringes now everytime they see a baked chicken, since that is one of the few foods I can eat. Any experiences to share? Suggestions?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Anonymousgurl Contributor

Well, I can't tell you how long it's going to take before you can eat those things again...BUT I just thought perhaps you'd feel a teency bit better if I told you that I feel your pain. LoL. I'm gluten free, dairy free, egg free, soy free, corn free and fatty acid free....which means no oils, nuts or butters :( I eat pretty much the same thing everyday too. I know how it is....I'm not particularly craving a salad...all I happen to want is a bowl of cereal! Too bad rice milk and almond milk have fatty acids :( But ANYWAYS...I hope you get some answers and start to be able to introduce things soon!

SillyBoo Newbie

I'm sorry to hear that your diet is even more restricted than mine! I try to tell myself "it's only food". And really, I'm ok with that. But I can't help wondering if healthy cravings (such as salad) indicate a nutritional need. It's not as though I'm craving things with gluten (pizza, cake, cookies) that I know I don't need. I would think the lack of fatty acids would spur similar responses for you! That must be really challenging...hang in there!

Jestgar Rising Star

How cooked do your veggies have to be? Could you do wilted salads? At least it would be some variety.

gfpaperdoll Rookie

don't forget about baked sweet potatoes. I also have no idea how long it takes, we are all different.

But I can sympathize with the food allergies, I have had them my whole life, I think the fact that I knew foods made me sick, helped save my life.

I personally would not eat buckwheat... You could be getting cross contaminated from it.

Is your house gluten-free? are you getting any cross contamination at home or at work?

I see you can eat fruits - so have a fruit salad - section an orange & add anything else to it that you have, for a protein you could eat with cold sliced leftover chicken, This makes a good breakfast.

saute an onion and garlic in extra light olive oil & then added cooked rice & a can of tuna or chopped leftover meat, eat with any cooked veggie. OR splurge & throw in a can of crabmeat!!! That was what I lived on when I was really sick.

add a baked sweet potato & I was all set. You can also make yourself some homemade soups & freeze...

Don't gorget to treat yourself to some boiled shrimp!! & a lobster if you are feeling really low :)

You might could add Lundberg Rice chips - sea salt flavor - I do not get a reaction from them & I also eat Mission Brand White Corn Tortillas - that is about all the "bready" stuff I eat.

I also try to make sure that my food is presented in an attractive way & I use only my best dishes - I got rid of the old stuff...

SillyBoo Newbie

Thanks for these great suggestions! I must admit that wilted salad has no appeal, but I could certainly make a salad of cooked beets and other cooked veggies, I suppose. And sweet potatoes are wonderful - thanks for the reminder.

I will be very happy to let my family know that I MUST splurge on lobster when I'm getting down! I hadn't even thought of that. Of course, it won't be the same without the melted butter, but I'm sure it will be very tasty.

lonewolf Collaborator

I spent a year eating only fish (salmon, tuna, halibut, cod - no shellfish), rice (rice cakes and rice milk too), sunflower seeds, most vegetables (no nightshades), sweet potatoes and most fruits. I think I ate corn 3-4 times during that year. After a year, I was feeling so much better that I decided to add things back. I started with things like bananas, lentils and potatoes. (Things that were lower on the ELISA test I took.) Over the course of the next year I added back everything except wheat (was told that I didn't need to be gluten free, but still avoided it 99%), dairy, eggs and soy.

I would suggest you give it as long as you can possibly stand, then add one new food a week to make sure you're not reacting. Also, you might want to try making some fermented vegetable salads or try one from your health food store. They are more digestible than plain raw vegetables. You can find recipes by doing a google search. I actually like fermented cabbage with carrots and apples.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elye Community Regular

I don't have a problem with raw veggies, but when my parents come over for supper and I am making a salad, I cook all the chopped veggies that I'm including in it beforehand (carrots, zuchinni) and then add the raw ones (tomato, cucumber, mushroom), as my mom can't handle hard stuff with all her false teeth. And instead of tomato I'll often put in sliced pear or apple, which she can handle raw. Really good!

SillyBoo Newbie

Thanks for these helpful suggestions. I never thought about fermented salads. Hmmm... And cooked veggies in a salad might be the way to go for now.

It's really good to hear a success story on adding foods back, although I do realize that my timeline may differ.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,831
    • Most Online (within 30 mins)
      7,748

    ATownCeliac
    Newest Member
    ATownCeliac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.