Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nassau County Ny

joel

By joel
in Meet Up Room

Recommended Posts

joel Newbie
joel
Posted

APRIL 2 207 730 PM AT THE WINTHROP UNIVERISTY HOSTIPAL OUTREACH CENTER 101 MINEOLA BLVD NY

GUEST SPEAKERS dR FELICE MIRSKY dR MICHAEL SULIVAN

I WENT TO THERE LAST MEETING OVER 100 PEOPLE WERE THERE.

  • 6 months later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


joelcontrol Apprentice
joelcontrol
Posted
APRIL 2 207 730 PM AT THE WINTHROP UNIVERISTY HOSTIPAL OUTREACH CENTER 101 MINEOLA BLVD NY

GUEST SPEAKERS dR FELICE MIRSKY dR MICHAEL SULIVAN

I WENT TO THERE LAST MEETING OVER 100 PEOPLE WERE THERE.

LONG ISLAND CELIAC SPRUE SUPPORT GROUP

DATE FRIDAY OCT 19 2007

TIME 730 PM

PLACE WINTHROP UNIVERSITY HOSPITAL OUTREACH CENTER LOCATED AT 101 MINEOLA BLVD MINEOLA NY BETWEEN 1 AND 2ND ST

wE WILL BE HAVING A "LIGHT" CATERED DINNER BY Dr b weLL nATURALLY HEALTH FOOD STORE, LOCATED AT 8 Washington AVE Plainview NY 516 932 9355. wE WILL BE COLLECTING $10 AT THE DOOR ON THE NIGHT OF THE MEETING FOR THE "LIGHT" SUPPER. our SUPPORT GROUP WILL BE PICKING UP THE BALANCE OF THE DINNER. pLEASE E MAIL CATHY CURRARO AT CATHYSPRU@AOL.COM OR CALL HER AT 516 437 3271 , TO LET HER KNOW IF YOU will BE ATTENDING. wE NEED TO GET A COUNT TO THE CATERER AS SOON AS POSSIBLE.

Lynn Newman CLINICAL NUTRITIONIST WILL BE A GUEST SPEAKER AT OUR MEETING. Lynn HAS OVER 25 YEARS OF EXPERIENCE AS A nUTRITIONIST. sHE WILL BE LECTURING TO OUR GROUP AND A SHORT QUESTION AND ANSWER SESSION WILL FOLLOW. tHANK YOU Lynn

Thomas kRUMMENACKER , OWNER OF OUTRAGEOUS FOODS, WILL ALSO BE coming TO OUR MEETING. hE WILL BE BRINGING PIZZA TO SAMPLE AND TO PURCHASE. tHANK you TOM!

wE WILL HAVE LOTS OF HANDOUTS REGARDING GLUTEN FREE RESTAURANTS,UPDATES ON DIFFERENT FOOD PRODUCTS,ETC jIM cALLAHAN 516 794 1654 1964 LINCOLN AVE E mEADOW nY 1154

cATHY CURRARO 516 437 3271 846 WASHINGTON ST FRANKLIN SQUARE NY 11010

pS THE MEETING IS NOT FAR FROM THE MINEOLA TRAIN STATION FOR ANYONE FROM THE CITY.

  • 4 weeks later...
de caps Contributor
de caps
Posted
APRIL 2 207 730 PM AT THE WINTHROP UNIVERISTY HOSTIPAL OUTREACH CENTER 101 MINEOLA BLVD NY

GUEST SPEAKERS dR FELICE MIRSKY dR MICHAEL SULIVAN

I WENT TO THERE LAST MEETING OVER 100 PEOPLE WERE THERE.

Are these GI doctors affiliated with Winthriop univ. Hosp.? Still looking for a specialist in celiac disease on Long Island. Peter Green and his group don't take my insurance and want $500 to walk in the door.

My current GI is ok but I would prefer someone with more knowledge on celiac disease.

THanks

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,382
    • Most Online (within 30 mins)
      7,748
    LisaLucier
    Newest Member
    LisaLucier
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Confusion about my son's results

      By trents · Posted

      Most doctors don't even order anything besides the tTG-IGA and maybe total IGA when doing blood testing for celiac disease. The EMA is the very first celiac blood antibody test that was developed and has largely been replaced by the tTG-IGA which is less expensive to run in the lab. My understanding is they both pretty much check for the same thing. The IGG tests are second tier tools that are less specific for celiac disease. It is not at all uncommon for the EMA and the tTG-IGA to disagree with one another. We frequently see this on the forum. I do not know why. Please realize that doctors typically run a number of tests when diagnosing a medical condition. If there was one test that was foolproof, there would not be a need for other tests and other testing modalities. It works that way with many or most diseases. 
    • lizzie42
      Confusion about my son's results

      By lizzie42 · Posted

      But yes seeing all those negatives does give me a bit of doubt! I feel confident but those results give me a seed of doubt. Especially since it's a lifelong diet for him! 
    • lizzie42
      Confusion about my son's results

      By lizzie42 · Posted

      When I originally posted I hadn't talked to the pediatrician yet and didn't realize about the budosinide. Now I feel pretty confident. I was concerned that all of the tests didn't come back positive - that seemed kind of ambiguous to me. I didn't realize that was common. Do a lot of people on here have a positive tTG but negative other tests? I thought the EMA was pretty "gold standard."  And yes I do now wonder about the asthma! I hope being gluten free will improve that! 
    • trents
      Confusion about my son's results

      By trents · Posted

      @lizzie42, So, I'm confused with what you are uncertain about. Do you really have any doubt that your 5 year-old son has celiac disease? Is it because he isn't exhibiting anemia and the rash as did your daughter? The genes are certainly there and the antibody testing certainly indicates celiac. And given the fact that he was on a reduced gluten diet and on a steroidal medication (which would likely suppress immune responses) do you really have any doubt? If you can't afford the GI consult with endoscopy/biopsy, why would you consider a gluten challenge after removing the remainder of the gluten from his diet? Have you considered that his asthma and "sickness" may be tied to celiac disease?
    • lizzie42
      Confusion about my son's results

      By lizzie42 · Posted

      These are my sons results. My daughter was high positive on everything and maxed out the tests in addition to being anemic, bad rash, etc.  Yes, he has been eating mostly gluten free (not completely). He was also on a high dose of budosinide at the time of testing due to some asthma and sickness. I didn't realize that affects the results.  This test along with my daughter being so sick with it prompted the pediatrician to diagnose him. We can always do a gluten challenge in the future. We will do that with our 1 year old. We will have her eat school lunch when she goes to prek and then test after a couple months. 
×
×
  • Create New...