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mm&j

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mm&j Apprentice
mm&j
Posted

I was just diagnosed with Celiac after 8 months of many doctors. Finally, after I asked for my Vitamin D level to be checked, I got a diagnoses of Celiac disease when my D level was at 13. I had no digestive/intestinal symptoms, just severe fatique, terrible bone pain and weakness were the main symptoms. I'm happy to go gluten-free as I thought the worst and figured that I must have something extremely serious to feel so awful. I just was wondering how long it might be before feeling some kind of physical improvement. Thanks so much to anyone who responds. This is my first time on a message board.

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missy'smom Collaborator
missy'smom
Posted

Welcome. I started to feel better immediately(brain fog and depression) but it was around 6 months that I hit a point where I felt my first significant level of overall healing. Fatigue has taken longer, maybe around 8 months it got much better. GI symptoms started to clear up immediately but I still have problems with dairy.

mm&j Apprentice
mm&j
Posted
  • Author
Welcome. I started to feel better immediately(brain fog and depression) but it was around 6 months that I hit a point where I felt my first significant level of overall healing. Fatigue has taken longer, maybe around 8 months it got much better. GI symptoms started to clear up immediately but I still have problems with dairy.
mm&j Apprentice
mm&j
Posted
  • Author

thanks for answering. It has been so long since I have felt well. It is nice to know there is some hope for healing...not having to go to bed before my 6 and 8 year old kids. Also glad to hear that the depression will begin to go away...I think having a DIAGNOSIS even has helped in that regard already.

cybermommy Newbie
cybermommy
Posted

I felt better almost immediately & felt significant improvement in 2 wks. I havn't felt this good in 20 yrs. :P If you read info in my signature, it goes into more detail. I actually have energy now & feel up to doing things like walking to do my shopping, gardening & trimming trees. I had been spending about 3-6 mos/yr unable to get out of my hospital bed & had become dependent on electric wheelchair. What a difference! I am continuing to improve.

Hope this helps & you are feeling better soon,

mm&j Apprentice
mm&j
Posted
  • Author
I felt better almost immediately & felt significant improvement in 2 wks. I havn't felt this good in 20 yrs. :P If you read info in my signature, it goes into more detail. I actually have energy now & feel up to doing things like walking to do my shopping, gardening & trimming trees. I had been spending about 3-6 mos/yr unable to get out of my hospital bed & had become dependent on electric wheelchair. What a difference! I am continuing to improve.

Hope this helps & you are feeling better soon,

mm&j Apprentice
mm&j
Posted
  • Author
I felt better almost immediately & felt significant improvement in 2 wks. I havn't felt this good in 20 yrs. :P If you read info in my signature, it goes into more detail. I actually have energy now & feel up to doing things like walking to do my shopping, gardening & trimming trees. I had been spending about 3-6 mos/yr unable to get out of my hospital bed & had become dependent on electric wheelchair. What a difference! I am continuing to improve.

Hope this helps & you are feeling better soon,

Thanks for responding. I can't believe that you felt as good as you do so soon. It gives me encouragement and hope that I will get to the gardening, walking the dog, etc....things that I used to love to do and now I just feel guilty because they are not getting done. Glad you are continuing to improve and thanks again for writing back.

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      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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