Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Day 4...

I3Daniel

Recommended Posts

I3Daniel Apprentice
I3Daniel
Posted

I just wanted to share the little bit of success we've already experienced. I have noticed that when we eat, Daniel doesn't have to immediately go to the bathroom. And, when he does, he's not in there for hours! This diet isn't just good for his health, it's good for our relationship! We have so much more time to spend together now! :)

The Food For Life bread is a definite NO. To clearly express to me his thoughts on the density of it, he did a few sets of curls with the loaf, stating "It may not make a good bread, but it sure makes for a good workout..." If nothing else, at least we got a good laugh out of it :)

I asked him if he has noticed a difference in how he feels yet, and he said he feels a bit gassy, and sort of constipated. I asked if maybe it's just that he's not used to actually digesting his food, maybe it's the feeling of being more normal. He said he doesn't remember what normal feels like, and it's definitely a possibility. We've been wondering what we should do about fiber. It seems like he's not getting enough...should we try the powdered fiber you can add to food or drink that is tasteless?? Also, we're going to get a good daily vitamin.

What do you do when it comes to "natural flavors"? There are a lot of foods out there that contain no weat, barley, oats, rye, malt, but they do have naturla flavors, carmel color, or smoke flavoring. Should I just contact the manufacturors for each of these, or is there some kind of list or general rule I can follow?

Thanks so much for all of your input, suggestions and support. I feel like I'm already a part of this big, gluten-free family!! You guys are great!

Sami

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
I just wanted to share the little bit of success we've already experienced. I have noticed that when we eat, Daniel doesn't have to immediately go to the bathroom. And, when he does, he's not in there for hours! This diet isn't just good for his health, it's good for our relationship! We have so much more time to spend together now! :)

The Food For Life bread is a definite NO. To clearly express to me his thoughts on the density of it, he did a few sets of curls with the loaf, stating "It may not make a good bread, but it sure makes for a good workout..." If nothing else, at least we got a good laugh out of it :)

I asked him if he has noticed a difference in how he feels yet, and he said he feels a bit gassy, and sort of constipated. I asked if maybe it's just that he's not used to actually digesting his food, maybe it's the feeling of being more normal. He said he doesn't remember what normal feels like, and it's definitely a possibility. We've been wondering what we should do about fiber. It seems like he's not getting enough...should we try the powdered fiber you can add to food or drink that is tasteless?? Also, we're going to get a good daily vitamin.

What do you do when it comes to "natural flavors"? There are a lot of foods out there that contain no weat, barley, oats, rye, malt, but they do have naturla flavors, carmel color, or smoke flavoring. Should I just contact the manufacturors for each of these, or is there some kind of list or general rule I can follow?

Thanks so much for all of your input, suggestions and support. I feel like I'm already a part of this big, gluten-free family!! You guys are great!

Sami

Sami:

If an item list natural flavors, it still must list wheat if added. I don't worry so much about it, but it does depend on the product. If a product would not naturally add barely, malt, rye and does not list wheat, I'm ok with that. Contacting the company is always good because sometime they change their ingredients. In other words, don't rely on a product that you knew was gluten free several years ago.

Regarding fiber. I always keep some wild, brown, of mixed rice available. Fresh veggies are always a good source. I drink a V-8 every day. Salads will be helpful.

You are a quick learner and doing a great job!!

mn farm gal Apprentice
mn farm gal
Posted

For fiber I just make sure I get lots of fruits and veggies everyday. This was a change for me.

I3Daniel Apprentice
I3Daniel
Posted
  • Author

Great! That helps a lot. I need to get him to try more veggies. He's a broccoli and corn guy, and doesn't stray much from that. Maybe I could make some kind of veggie casserole, or lasagna (is there a gluten-free lasagna pasta??), it might get him to eat more veggies.

I wouldn't know 90% of what I know now if it wasn't for this forum. You're all such a great help!

Thanks a million!!

Sami

BamBam Community Regular
BamBam
Posted

Yes, there is gluten free pasta out there, usually made from rice or brown rice. Tinkyada is a popular brand around here, but there are many others that are just as good. I didn't have much luck with corn pasta, the corn flavor was so strong, it was hard to taste the other things in the salad that I made. But everyone's tastes are different! :)

BamBam

I3Daniel Apprentice
I3Daniel
Posted
  • Author

BamBam,

Thanks! Is there a way to order the Tinkyada pasta online? I'll have to check if any of the stores in my area carry it. I'll definitely check that out!

Sami

P.S. I love your ID, my parents called me BamBam when I was young :)

ravenwoodglass Mentor
ravenwoodglass
Posted
BamBam,

Thanks! Is there a way to order the Tinkyada pasta online? I'll have to check if any of the stores in my area carry it. I'll definitely check that out!

Sami

P.S. I love your ID, my parents called me BamBam when I was young :)

You can get it on line and it's not a bad pasta.

I had horrible luck with lasagna, the noodles would be goo when I cooked them first so I decided to try it the lazy way. I brown my meats and then add one of the gluten-free Delmonte pasta sauces (the one with meat flavor is not safe but they have wheat on the label) Then I take the Tinkyada lasagna noodles UNCOOKED and my cheeses and start layering. After all is layered I pour about 3/4 of a cup of water over the whole thing and seal tightly with foil. About half way through a one hour or so cook I check and make sure the top noodle is still covered with sauce and it does not look dry. A bit more water can be added at that time if needed. About 5 minutes before it is done I take off the foil and add more cheese and let it brown. It's quick and it reheats in the microwave for lunch or supper the next day quite well.

Also with the natural flavors I always call. You never know when a bit of malt might be added. Always better to be safe than sorry and some times they'll send ya coupons.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


I3Daniel Apprentice
I3Daniel
Posted
  • Author

Awesome! That's so great! Thanks for the recipe, I'm definitely going to try.

The help I receive from everyone on this forum never ceases to amaze me!!!

Sami

NoGluGirl Contributor
NoGluGirl
Posted
Awesome! That's so great! Thanks for the recipe, I'm definitely going to try.

The help I receive from everyone on this forum never ceases to amaze me!!!

Sami

Dear Sami,

It is wonderful to find out Daniel is doing better! I do not know what fiber supplements are safe.

It is funny, you forget what normal is like. Then when you start feeling better, you think something is wrong! :lol: I always eat a couple of plums when I need to ease constipation. Really, apples are great as well. Make sure he eats them with the skin on! The peel is important to the fiber content. I would not take anything with psyllium husk, it really hurt me! He might want to stay clear of that, too.

Sincerely,

NoGluGirl

I3Daniel Apprentice
I3Daniel
Posted
  • Author

NoGluGirl,

It's good to know he's not the only one to feel that way! I'll let him know that it's common, and he might feel a little better about it. He does like apples, so I'll make sure he gets enough of those. I'm not sure about the plums, I'll have to ask him. Thanks for the warning about psyllium husk, I would have never known! I think we're going to try to take care of it naturally, and see if he starts feeling more normal. And, if that doesn't work, we'll discuss a supplement.

Thanks so much for all of your help!

Sami

NoGluGirl Contributor
NoGluGirl
Posted
NoGluGirl,

It's good to know he's not the only one to feel that way! I'll let him know that it's common, and he might feel a little better about it. He does like apples, so I'll make sure he gets enough of those. I'm not sure about the plums, I'll have to ask him. Thanks for the warning about psyllium husk, I would have never known! I think we're going to try to take care of it naturally, and see if he starts feeling more normal. And, if that doesn't work, we'll discuss a supplement.

Thanks so much for all of your help!

Sami

Dear Sami,

Anytime for our buddies! We are a tight-knit group! ;) We know how much it sucks to suffer. Easing others pain as much as possible is important to us all on here! It is so funny, because you do not realize you feel good at first! :lol: My first thought was "I feel different." Then I realized "I feel better!" :blink: "This is what your are supposed to feel like...good!" :o It was really something!

Apples contain up to 5 grams of fiber each. That is good. Also, plums are so good! They have been a great way to help constipation, but without suffering miserable after effects. I took FiberCon at the advise of a GI doc, and thought I was going to die! The pain was unbearable!

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748
    PatBurnham
    Newest Member
    PatBurnham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.