Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Day 4...


I3Daniel

Recommended Posts

I3Daniel Apprentice

I just wanted to share the little bit of success we've already experienced. I have noticed that when we eat, Daniel doesn't have to immediately go to the bathroom. And, when he does, he's not in there for hours! This diet isn't just good for his health, it's good for our relationship! We have so much more time to spend together now! :)

The Food For Life bread is a definite NO. To clearly express to me his thoughts on the density of it, he did a few sets of curls with the loaf, stating "It may not make a good bread, but it sure makes for a good workout..." If nothing else, at least we got a good laugh out of it :)

I asked him if he has noticed a difference in how he feels yet, and he said he feels a bit gassy, and sort of constipated. I asked if maybe it's just that he's not used to actually digesting his food, maybe it's the feeling of being more normal. He said he doesn't remember what normal feels like, and it's definitely a possibility. We've been wondering what we should do about fiber. It seems like he's not getting enough...should we try the powdered fiber you can add to food or drink that is tasteless?? Also, we're going to get a good daily vitamin.

What do you do when it comes to "natural flavors"? There are a lot of foods out there that contain no weat, barley, oats, rye, malt, but they do have naturla flavors, carmel color, or smoke flavoring. Should I just contact the manufacturors for each of these, or is there some kind of list or general rule I can follow?

Thanks so much for all of your input, suggestions and support. I feel like I'm already a part of this big, gluten-free family!! You guys are great!

Sami


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
I just wanted to share the little bit of success we've already experienced. I have noticed that when we eat, Daniel doesn't have to immediately go to the bathroom. And, when he does, he's not in there for hours! This diet isn't just good for his health, it's good for our relationship! We have so much more time to spend together now! :)

The Food For Life bread is a definite NO. To clearly express to me his thoughts on the density of it, he did a few sets of curls with the loaf, stating "It may not make a good bread, but it sure makes for a good workout..." If nothing else, at least we got a good laugh out of it :)

I asked him if he has noticed a difference in how he feels yet, and he said he feels a bit gassy, and sort of constipated. I asked if maybe it's just that he's not used to actually digesting his food, maybe it's the feeling of being more normal. He said he doesn't remember what normal feels like, and it's definitely a possibility. We've been wondering what we should do about fiber. It seems like he's not getting enough...should we try the powdered fiber you can add to food or drink that is tasteless?? Also, we're going to get a good daily vitamin.

What do you do when it comes to "natural flavors"? There are a lot of foods out there that contain no weat, barley, oats, rye, malt, but they do have naturla flavors, carmel color, or smoke flavoring. Should I just contact the manufacturors for each of these, or is there some kind of list or general rule I can follow?

Thanks so much for all of your input, suggestions and support. I feel like I'm already a part of this big, gluten-free family!! You guys are great!

Sami

Sami:

If an item list natural flavors, it still must list wheat if added. I don't worry so much about it, but it does depend on the product. If a product would not naturally add barely, malt, rye and does not list wheat, I'm ok with that. Contacting the company is always good because sometime they change their ingredients. In other words, don't rely on a product that you knew was gluten free several years ago.

Regarding fiber. I always keep some wild, brown, of mixed rice available. Fresh veggies are always a good source. I drink a V-8 every day. Salads will be helpful.

You are a quick learner and doing a great job!!

mn farm gal Apprentice

For fiber I just make sure I get lots of fruits and veggies everyday. This was a change for me.

I3Daniel Apprentice

Great! That helps a lot. I need to get him to try more veggies. He's a broccoli and corn guy, and doesn't stray much from that. Maybe I could make some kind of veggie casserole, or lasagna (is there a gluten-free lasagna pasta??), it might get him to eat more veggies.

I wouldn't know 90% of what I know now if it wasn't for this forum. You're all such a great help!

Thanks a million!!

Sami

BamBam Community Regular

Yes, there is gluten free pasta out there, usually made from rice or brown rice. Tinkyada is a popular brand around here, but there are many others that are just as good. I didn't have much luck with corn pasta, the corn flavor was so strong, it was hard to taste the other things in the salad that I made. But everyone's tastes are different! :)

BamBam

I3Daniel Apprentice

BamBam,

Thanks! Is there a way to order the Tinkyada pasta online? I'll have to check if any of the stores in my area carry it. I'll definitely check that out!

Sami

P.S. I love your ID, my parents called me BamBam when I was young :)

ravenwoodglass Mentor
BamBam,

Thanks! Is there a way to order the Tinkyada pasta online? I'll have to check if any of the stores in my area carry it. I'll definitely check that out!

Sami

P.S. I love your ID, my parents called me BamBam when I was young :)

You can get it on line and it's not a bad pasta.

I had horrible luck with lasagna, the noodles would be goo when I cooked them first so I decided to try it the lazy way. I brown my meats and then add one of the gluten-free Delmonte pasta sauces (the one with meat flavor is not safe but they have wheat on the label) Then I take the Tinkyada lasagna noodles UNCOOKED and my cheeses and start layering. After all is layered I pour about 3/4 of a cup of water over the whole thing and seal tightly with foil. About half way through a one hour or so cook I check and make sure the top noodle is still covered with sauce and it does not look dry. A bit more water can be added at that time if needed. About 5 minutes before it is done I take off the foil and add more cheese and let it brown. It's quick and it reheats in the microwave for lunch or supper the next day quite well.

Also with the natural flavors I always call. You never know when a bit of malt might be added. Always better to be safe than sorry and some times they'll send ya coupons.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



I3Daniel Apprentice

Awesome! That's so great! Thanks for the recipe, I'm definitely going to try.

The help I receive from everyone on this forum never ceases to amaze me!!!

Sami

NoGluGirl Contributor
Awesome! That's so great! Thanks for the recipe, I'm definitely going to try.

The help I receive from everyone on this forum never ceases to amaze me!!!

Sami

Dear Sami,

It is wonderful to find out Daniel is doing better! I do not know what fiber supplements are safe.

It is funny, you forget what normal is like. Then when you start feeling better, you think something is wrong! :lol: I always eat a couple of plums when I need to ease constipation. Really, apples are great as well. Make sure he eats them with the skin on! The peel is important to the fiber content. I would not take anything with psyllium husk, it really hurt me! He might want to stay clear of that, too.

Sincerely,

NoGluGirl

I3Daniel Apprentice

NoGluGirl,

It's good to know he's not the only one to feel that way! I'll let him know that it's common, and he might feel a little better about it. He does like apples, so I'll make sure he gets enough of those. I'm not sure about the plums, I'll have to ask him. Thanks for the warning about psyllium husk, I would have never known! I think we're going to try to take care of it naturally, and see if he starts feeling more normal. And, if that doesn't work, we'll discuss a supplement.

Thanks so much for all of your help!

Sami

NoGluGirl Contributor
NoGluGirl,

It's good to know he's not the only one to feel that way! I'll let him know that it's common, and he might feel a little better about it. He does like apples, so I'll make sure he gets enough of those. I'm not sure about the plums, I'll have to ask him. Thanks for the warning about psyllium husk, I would have never known! I think we're going to try to take care of it naturally, and see if he starts feeling more normal. And, if that doesn't work, we'll discuss a supplement.

Thanks so much for all of your help!

Sami

Dear Sami,

Anytime for our buddies! We are a tight-knit group! ;) We know how much it sucks to suffer. Easing others pain as much as possible is important to us all on here! It is so funny, because you do not realize you feel good at first! :lol: My first thought was "I feel different." Then I realized "I feel better!" :blink: "This is what your are supposed to feel like...good!" :o It was really something!

Apples contain up to 5 grams of fiber each. That is good. Also, plums are so good! They have been a great way to help constipation, but without suffering miserable after effects. I took FiberCon at the advise of a GI doc, and thought I was going to die! The pain was unbearable!

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748

    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.