Horrible Stomach Pain?

[holiday16]

until last week when we went to CA. I avoided eating out as much as possible and ate as safely as possible, but I must have gotten gluten somewhere along the way. We got back Sat. and I have been sick until today (Thurs). Still not 100%, but not near as bad as it was.

My question is after being gluten-free for a while does that make your stomach pains much worse when you are exposed? I had the worst intestinal pain I think I've ever had in my life the past few days. Even on a full gluten diet it was never this bad. I also noticed that when my dd accidentally had a twinkie she ended up doubled over in pain. Is this pretty typical even if it wasn't a symptom before?

The day after we got back I also was in so much pain all over I could barely walk. I'm looking into setting up an appt. w/ my Dr. to be evaluated for Fibromyalgia as my massage therapist and chiropractor both think my muscles are responding as if I have Fibro. Does anyone have both and how can you tell if symptoms are related to Fibro. or gluten when your gluten reactions are not mostly intestinal?

Some days this whole thing is very frustrating especially when you lose several days to it!!!

[ravenwoodglass]

I also get severe stomach pain when glutened, I take pepto and that helps a great deal without a lot of side effects other than dark stool.

As to the fibro, mine was severe and long standing in addition to having arthritis and ataxia. I was on canes before I was diagnosed. All fibro and arthritis symptoms were gone within a couple months gluten-free, unless I get glutened. Your fibro type pain may very well be due to being glutened.

It does get frustrating at times, but it will get better.

[holiday16]

I also get severe stomach pain when glutened, I take pepto and that helps a great deal without a lot of side effects other than dark stool.

As to the fibro, mine was severe and long standing in addition to having arthritis and ataxia. I was on canes before I was diagnosed. All fibro and arthritis symptoms were gone within a couple months gluten-free, unless I get glutened. Your fibro type pain may very well be due to being glutened.

It does get frustrating at times, but it will get better.

That sounds very similar to how I was. I was actually diagnosed with seronegative rheumatoid arthritis and was referred to a rheumatologist who felt that did not fit, but was closer to Fibro, but I did not have enough pressure points yet to be diagnosed. Then I was diagnosed by an NP to have a parasite that causes reactive arthritis. Part of the support to heal was taking things to heal the intestinal tract. I improved greatly (but not completely) for some time and then everything came back. I think what happened was I healed my intestinal tract enough to help for a while until it became damaged again. Prior to this I was having so many balance problems I was looking into getting a cane, but then improved enough with the intestinal healing to be able to avoid that. When everything went bad again my coordination went as well. Thank goodness the same NP diagnosed me as gluten intolerant and off gluten things are sooo much better. One of the biggest things I've noticed is in my signature. If I've had gluten it's almost a scribble, but off gluten it's perfectly legible.

I'll have to remember the Pepto tip if this happens again. The pain was just unbelievable!