Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Loaded-with-gluten Question

Silverfyre

By Silverfyre
in Coping with Celiac Disease

Recommended Posts

Silverfyre Rookie
Silverfyre
Posted

Hello,

My name is Chris and I'm a celiac.

I'm sure that one's been done to death but I couldn't resist. :ph34r:

Anyways, I have been gluten free for two years now and I have done what all of you have done: hunted through everything in our diet and house to make sure it doesn't have gluten in it.

My loving wife (God bless her and all the others who support us along the way) and I have been through. We only buy gluten free products that have gluten-free on the label or are from a company that lists gluten.

We have taken every step we can think of.

AND I still have the "Dreaded D". You all know what I am alluding too. It gets us in the "end" if you get my drift.

Being on the gluten free diet has helped some but I still have a lot of bad days. I've been on Imodium for several months now and it helps just a bit, not too much, and I'm beginning to worry about the long term effects of taking it for so long.

Do any of you still suffer from the "D" even though you have been gluten-free for a long time? I guess I'm just fishing for some advice here and maybe a little advice on what I can do to maybe help this.

Well, that's all for now.

It's a pleasure to finally find a great group of folk like yourselves. Been lurking long enough to see that I'm going to love it here.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Chris:

Have you removed all hidden gluten from your diet, such as toothpaste, soap, shampoo, lotions, lipbalms.

UNCHeel Rookie
UNCHeel
Posted

Someone on this board a while back before I started visiting posted a long discussion about how some still feel symptoms many months after going gluten-free. I was recently diagnosed in Feb and really took her research into yeast overgrowth to heart b/c the symptoms are so much the same. I am now eating a very large container of plain yogurt with fresh fruit every two days. I am hoping that will help me greatly. Momma Goose however is the Board Expert so I would also look into the things she's suggesting. I know...some days it's like trying to avoid air. Hang in there!

Lisa Mentor
Lisa
Posted
Someone on this board a while back before I started visiting posted a long discussion about how some still feel symptoms many months after going gluten-free. I was recently diagnosed in Feb and really took her research into yeast overgrowth to heart b/c the symptoms are so much the same. I am now eating a very large container of plain yogurt with fresh fruit every two days. I am hoping that will help me greatly. Momma Goose however is the Board Expert so I would also look into the things she's suggesting. I know...some days it's like trying to avoid air. Hang in there!

Oh My. I don't think anyone is an expert at this stuff. You did bring up a very good point in that there can be other things here working and bacteria overgrowth is a possibility.

Silverfyre Rookie
Silverfyre
Posted
  • Author
Chris:

Have you removed all hidden gluten from your diet, such as toothpaste, soap, shampoo, lotions, lipbalms.

Yeah, we've pretty much switched to "pure organic" soaps and the like. I use Pantene and they confirmed with me that the shampoo I use is gluten-free. The toothpaste checks out as well. I'm beginning to wonder if I'm allergic to casein or something of that nature.

I've already cut out all the dairy, being lactose intolerant (aren't we all? :rolleyes: ) so I'm really wondering. I'll keep searching though!

sfm Apprentice
sfm
Posted

Chris -

I had a similar problem, although I am sure I wasn't being exposed to any gluten. I added a fiber supplement to my diet (making sure it was gluten and casein free) and found that it helped a great deal - I know it sounds backward, but it has made a big difference in my daily "routine." :blink:

Sheryll

Silverfyre Rookie
Silverfyre
Posted
  • Author
Chris -

I had a similar problem, although I am sure I wasn't being exposed to any gluten. I added a fiber supplement to my diet (making sure it was gluten and casein free) and found that it helped a great deal - I know it sounds backward, but it has made a big difference in my daily "routine." :blink:

Sheryll

What is the name of the fiber supplement you use? I'll try to find one around here and give it a whirl! Thanks for the advice!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted

Chris, can you give us any kind of an idea what your diet is like? ( I know, we're all so nosy:)

gabby Enthusiast
gabby
Posted

Things got waaaaaaaaaaaay better for me when I stopped having all dairy (found out I was allergic to casein). It made all the difference in the world. Just mentioning this because I noticed you are lactose intolerant...and wondered if you're possibly also allergic to casein.

The easy way to test this out is to eliminate all sources of casein for about a month. I noticed an immediate small difference after just 3 days. But it took a full month of going casein-free to really see the results.

Hope this helps, and that you get to the bottom of this (sorry, couldn't resist the pun!) ;)

zkat Apprentice
zkat
Posted

Soy anything does it to me everytime. I am so sensitive that even a little bit of half and half in my coffee will give me an afternoon of misery. (and misery for anyone who has the misfortune of walking into my office at the wrong moment) HEhehe, no where else can I joke about that and everyone get it. I bet you guys all know why I have the strong vanilla candle in my office :lol:

Debbie65 Apprentice
Debbie65
Posted
Hello,

My name is Chris and I'm a celiac.

I'm sure that one's been done to death but I couldn't resist. :ph34r:

Anyways, I have been gluten free for two years now and I have done what all of you have done: hunted through everything in our diet and house to make sure it doesn't have gluten in it.

My loving wife (God bless her and all the others who support us along the way) and I have been through. We only buy gluten free products that have gluten-free on the label or are from a company that lists gluten.

We have taken every step we can think of.

AND I still have the "Dreaded D". You all know what I am alluding too. It gets us in the "end" if you get my drift.

Being on the gluten free diet has helped some but I still have a lot of bad days. I've been on Imodium for several months now and it helps just a bit, not too much, and I'm beginning to worry about the long term effects of taking it for so long.

Do any of you still suffer from the "D" even though you have been gluten-free for a long time? I guess I'm just fishing for some advice here and maybe a little advice on what I can do to maybe help this.

Well, that's all for now.

It's a pleasure to finally find a great group of folk like yourselves. Been lurking long enough to see that I'm going to love it here.

You know , I

sfm Apprentice
sfm
Posted
What is the name of the fiber supplement you use? I'll try to find one around here and give it a whirl! Thanks for the advice!

Sorry for the late reply - I take 'Renew Life' Fiber Smart - it comes in either capsules or powder. I take the capsules, but I know the powder comes with an additional probiotic blend, which is also good.

I get it from Vitamin Shoppe, but it's a brand that is probably available at other vitamin or health food stores.

I hope that helps!

:)

Sheryll

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748
    Nina J
    Newest Member
    Nina J
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.