Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vegiac

Suzanne M.

By Suzanne M.
in Publications & Publicity

Recommended Posts

Suzanne M. Rookie
Suzanne M.
Posted

My son has celiac, and was diagnosed by DNA cheek swab testing. There are now 15 of us in our family. He is vegetarian and celiac. Makes it more challenging.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

I was already not consuming meat when I went gluten-free, so I didn't notice any additional challenge. To me it is simply an exchange of one grain for many, so I gained more than I gave up.

I hope this point of view is helpful.

mandasmom Rookie
mandasmom
Posted
I was already not consuming meat when I went gluten-free, so I didn't notice any additional challenge. To me it is simply an exchange of one grain for many, so I gained more than I gave up.

I hope this point of view is helpful.

My daughter is also a vegiac--she was already a vegetarian when she was diagnoses. the only real challnge she has noted (in additionn to the obvious) is eating out. Many celiacs will enjoy restaurant steak house type eating--steak salad potatoes--that sort of thing. Its much more difficult as a vegiac---not too many restarants have awesome beans!!!! But I did come to realize that this is her choice--she gets to choose what she eats within the confines of her gluten-free diet--if its veggies she wants then its veggies she gets!! Also need to keep an eye on things like anemia and other nutritional issues that are common in both vegetarians and celiacs!!

gfp Enthusiast
gfp
Posted
Also need to keep an eye on things like anemia and other nutritional issues that are common in both vegetarians and celiacs!!

Its really worth noting that and other deficiencies because being a vegiac and celiac they will compound and what was marginally OK can easily drop below...

and as usual ... (my tired old warning) lots of celaics develop otrher intolerances... especially dairy and soy... so whereby I wouldn't say avoid them like gluten I think its at least sensible to try and not make them staples or main sources of protein...

In other words celiac and veggie is possible, just needs some work and knowledge to keep it balanced.... but hey gluten-free needs work too.... however celiac, veggie and dairy and soy intolerant is going to seriously limit your choices and make a balanced diet even harder (not impossible... just harder)

Im not veggie but I wouldn't mind.(Ive done it for a couple of years)... I'd really dread being celiac, diary/soy intolerannt AND veggie :D

lorka150 Collaborator
lorka150
Posted

I'm a vegetarian and I also do not consume dairy and eggs. As long as you are well informed and knowledgable about how to eat balanced and healthy, there should be no problem. Produce, nuts/seeds, quinoa and amaranth and tofu make my diet - because none of that is prepacked, really, I never have to worry. :)

mandasmom Rookie
mandasmom
Posted
I'm a vegetarian and I also do not consume dairy and eggs. As long as you are well informed and knowledgable about how to eat balanced and healthy, there should be no problem. Produce, nuts/seeds, quinoa and amaranth and tofu make my diet - because none of that is prepacked, really, I never have to worry. :)

You are right!!~ A diet limited to these very wholesome foods really reduces the chance for a gluten reaction--quinoa has become a trendy new item..we discovered lots of things to do with it. Good luck

hathor Contributor
hathor
Posted

It can be done. For inspiration, look at Food Allergy Survival Guide (there is nutritional and mealplanning advice -- everything is vegan and there are plenty of recipes for those who have to avoid soy, etc.) and The Gluten-Free Vegetarian Kitchen.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
foxglove Rookie
foxglove
Posted

I am also vegetarian, and just diagnosed with celiac. It has been suggested that I eliminate dairy and soy as well for a time, but it does really narrow my choices ... Do any of you have suggestions for vitamins and suplements that would be especially good for a vegetarian/celiac? Also, do you know if we can have hemp hearts? Because that would be a good protein replacement for the soy and tofu I usually have. I'm just worried I am not going to get everything I need!

Also, is there something I can take to speed the healing process up? My boyfriend sister (who has had celiac for several years) suggested just drinking lots of water, but I wonder if there is anything else that would help de-toxify me.

hathor Contributor
hathor
Posted

I can't recommend any vitamins right off hand. I found a nice combo at my local coop and it even says it is vegetarian & doesn't contain gluten, casein, soy, or yeast. But it turns my pee a bright yellow & I'm not so sure about that :huh:

Do NOT trust the labels to tell you if they contain something. Look for affirmative statements that they do NOT contain something. I was reacting to a new supplement a while ago that said it was "hypoallergenic." I emailed and found that soy was in the glaze.

The most important things seem to be B12 (need a source with vegan diets) and magnesium. I've just looked for things that don't contain what I can't have and which do contain enough magnesium. A good amount of antioxidants seems best, too.

Of course, probiotics are recommended for anyone with digestive issues.

I haven't heard about any problems with hemp. Of course, folks can be intolerant of anything. But I have hemp tortillas all the time.

If you are eating normal food, you don't have to worry about getting enough protein. People think we need more protein than we do. Plant sources, even putting soy to one side, have plenty. Here is a link with some articles that I hope will put your mind at rest:

Open Original Shared Link

edgeyveggie Newbie
edgeyveggie
Posted

Hey I've noticed a bunch of comments about supplements, I have a special forum on my message board specifically for supplements, where I've listed a few so far, if anyone has found any goof gluten free supplements for vegetarians it'd be great if you could contribute. My website is Open Original Shared Link thanks a lot

MaryJones2 Enthusiast
MaryJones2
Posted
My son has celiac, and was diagnosed by DNA cheek swab testing. There are now 15 of us in our family. He is vegetarian and celiac. Makes it more challenging.

I am a pesce vegetarian (meaning I eat fish) and am also intolerant to dairy and soy. I was a vegetarian for 10 years before I had to elimiate gluten. I had to change my eating habits quite a bit because there is almost no comercially prepared or fast foods that are gluten, dairy, soy and meat free but that was a good thing because I wasn't eating fast or quick foods any more. I eat a lot of salads when I go out but don't really have a problem at home. I think I eat a more balanced diet now than before.

As for supplements I take Calcium, Magnesium, B Vitamins and Iron.

mandasmom Rookie
mandasmom
Posted
I am a pesce vegetarian (meaning I eat fish) and am also intolerant to dairy and soy. I was a vegetarian for 10 years before I had to elimiate gluten. I had to change my eating habits quite a bit because there is almost no comercially prepared or fast foods that are gluten, dairy, soy and meat free but that was a good thing because I wasn't eating fast or quick foods any more. I eat a lot of salads when I go out but don't really have a problem at home. I think I eat a more balanced diet now than before.

As for supplements I take Calcium, Magnesium, B Vitamins and Iron.

There is a web site for vegiacs vegiac.com....My vegiac daughter swears that her diet is healthier than most--boring I think but really a whole and pure diet. I for one, think that bing part of the social scene of your family and friends is worth changing your point of view for. Cant cahnge gluten and other intolerances but the veggie thing should be negotiable. ...cant convince her though!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing...
    2. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    3. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    4. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    5. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,872
    • Most Online (within 30 mins)
      7,748
    Koyanna
    Newest Member
    Koyanna
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.