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After Ten Years


WAKE4ME

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WAKE4ME Newbie
:unsure:B) :lol:HELLO EVERYONE, THIS IS SOMETHING NEW TO ME, TEN YEARS I WAS BEING TREATED FOR M.S. TO THINK I HAVE THIS IS REALLY A RELIEF, COMPARED TO THINKING I WOULD BE IN A WHEELCHAIR FOR THE REST OF MY LIFE!! I FEEL AT LEAST ALL I HAVE TO DO IS CHANGE HOW I EAT??? SURE BEATS CHEMO,COPAXONE ANYDAY. ALOT OF PEOPLE FIND THIS HARD TO BELIEVE. WELL THEY DO CALL IT PRACTICEING MEDICENE. :lol::lol: I REALLY DO NOT KNOW WHERE TO START? ANYONE HAVE ANY REALLY GOOD FOOD IDEAS?? :D

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CarlaB Enthusiast

Welcome!

How did you end up getting diagnosed after all these years being treated for MS?

Lisa Mentor

Welcome WAKE:

Yes, it absolutely beat the alternative. Welcome to the club.

My first suggestion would be for you to read, read, read from this site. You will learn more about Celiac and it's side effect than from any doctor.

Start off with some simple meats, seafood, rice, potatoes and fresh veggies. Limit or eliminate dairy for a while until you heal. And be very diligent.

There are some pastas and gluten free breads that really aren't bad. Cooking gluten free is great with a few changes from non-gluten.

Your lotions, shampoos, lip balm all need to be gluten free as well. (i.e. anything that can find it's was into your mouth).

Other will pipe in with other suggestion and NoGluGirl has a wonderful beginner list of gluten free confirmed products.

Looking forward to getting to know you.

(WAKE - Wake Forest?)

NoGluGirl Contributor
:unsure:B) :lol:HELLO EVERYONE, THIS IS SOMETHING NEW TO ME, TEN YEARS I WAS BEING TREATED FOR M.S. TO THINK I HAVE THIS IS REALLY A RELIEF, COMPARED TO THINKING I WOULD BE IN A WHEELCHAIR FOR THE REST OF MY LIFE!! I FEEL AT LEAST ALL I HAVE TO DO IS CHANGE HOW I EAT??? SURE BEATS CHEMO,COPAXONE ANYDAY. ALOT OF PEOPLE FIND THIS HARD TO BELIEVE. WELL THEY DO CALL IT PRACTICEING MEDICENE. :lol::lol: I REALLY DO NOT KNOW WHERE TO START? ANYONE HAVE ANY REALLY GOOD FOOD IDEAS?? :D

Dear WAKE4ME,

ThiI have a list that should really help. This is overwhelming. I went through this with myself six months ago. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

Condiments:

Smart Balance Margerine

Crisco Shortening

Crisco Oil

Pompeiian Olive Oil

Great Value soy sauce

Heinz Ketchup

Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

Sweet Baby Ray's Barbecue Sauce

Kraft French Fat-Free Salad Dressing

Kraft Thousand Island Fat-Free Salad Dressing

Pace Picante Sauce

Ortega Salsa

All Classico Red and *White sauces

All Jif Peanut Butters including Smooth Sensations

Welch's Grape Jelly

Cool Whip*

Philadelphia Cream Cheese*

Miracle Whip

Daisy Sour Cream (fat-free, low-fat, regular)*

Snack Foods:

Utz Potato Chips (Found at Sam

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    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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