Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Daughter Was Glutened - Need Advice

annacsmom

Recommended Posts

annacsmom Apprentice
annacsmom
Posted

My college daughter who is extremely careful about eating out, etc, was just glutened by, if you can believe it, wheat berries. She had scrutinized everything in the salad, ingredients, you name it. Unbelievably, they didn't list wheat berries as an ingredient. Well, since she was starving, she gobbled some forkfuls before she realized the berries were in it. She immediately brought it over to the worker and he told her what they were. How completely stupid!! She was SO upset.

Anyway, today she is obviously not doing well. Her symptoms are mostly neurological. She had a test this morning and literally lost her memory. She is exhausted and emotionally crippled. Does anyone know what she can take or do to ease up on these symptoms? She made sure she got 8 hours sleep last night, as she knew this would happen. I've told her to double up on her sublingual B12 and eat really well and drink lots of water. If anyone has any other advice, please help. Her finals are right around the corner and these symptoms can last a long time.

Thanks in advance.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bigapplekathleen Contributor
bigapplekathleen
Posted

If I accidentally ingest gluten, I IMMEDIATELY take a few activated charcoal pills/tablets. You can buy these at any pharmacy. They help ease the symptoms and shorten my reaction time from DAYS or WEEKS to often just hours or one day.

I buy COUNTRY LIFE 100% pure activated charcoal 260 mg. They contain only the charcoal in a gelatin shell. There is no yeast, corn, wheat, soy, gluten, milk, salt, starch, preservatives or artificial color.

I take a couple of them - depending on how much I ate and how bad my symptoms are. Yesterday, I took 2 after some cross-contamination issues after eating 'out'. I felt bad for a few hours, but symptoms were gone within 4 hours of starting & I am just a little groggy today - but feel pretty normal.

Warning, though: don't take these through airport security unless they are sealed really well. I tested positive for explosives as a result of my bottle of charcoal tablets! Luckily, they understood and let me through eventually - after a 30 minute delay.

Ginger can also soothe an upset stomach, but never really did much for me, since the issues are far greater than just intestinal symptoms.

Kat

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,199
    • Most Online (within 30 mins)
      7,748
    Andrea Spencer
    Newest Member
    Andrea Spencer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.