Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Now Showing Since Going gluten-free


Nikki Rediker

Recommended Posts

Nikki Rediker Newbie

I was diagnosed in February. Since I have changed my diet I have been lethargic, weak, tired all the time and last night had a sever ache in my right leg (like growing pains). I never experienced symptoms (only diagnosed because of family history) but since going gluten-free I feel like now I have symptoms. Is this a stage for newbies or normal? Am I being contaminated and now can feel the effects? Any suggestions welcome. Thanks, Nikki


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



4getgluten Rookie

Nikki, Welcome to the board! The only idea I can offer is that now that you are gluten-free, your body is much more sensitive to it. I know when I first started eating gluten-free; I could eat gluten-free products that were manufactured on equipment that was also used for products containing wheat. Cross contamination didn

ravenwoodglass Mentor

"Am I being contaminated and now can feel the effects?"

There is a good chance this is exactly what is going on. Are you eating out? Have you checked your toiletries? Have you checked your pet food and litters? Are you an Arts and Crafts person and if so have you checked your glues, clays, paints? Are you eating a lot of mainstream food? Many companys do not divulge shared lines. Lays is notorious for CC in their products.

There is a withdrawl aspect to going gluten free also, and if you get CC'd it will prolong the withdrawl. The best way to heal at first is to eat as much naturally gluten free food as you can. Fresh fruit and veggies and meats, fresh potatoes and rice.

One more vital thing with the effect your having is to add a Sublingual B12, this dissolves under the tongue bypassing the digestive system by being absorbed in the mouth by your mucous membranes. Being even a little low can cause fatigue and other nerve related problems and we won't absorb this from our food until healed.

I hope you feel better soon.

Nikki Rediker Newbie

Thanks so much for the replies! I have been eating out (I travel a lot) but I always wonder if the kitchen has any idea. I'll try the B12 and trying all natural to see if it helps. Thanks! Nikki

chocolatelover Contributor

Hi Nikki,

I just wanted to add a couple of quick things...this disease is so strange and can really affect people quite differently. I'm sure it was quite a shock to you to be feeling fine, take out the gluten, and now are feeling rotten!

I suspect your body is going through a type of withdrawl and and it will just take some time to get the gluten out of your system. Once that happens, you'll probably notice that there are symptoms that you have never even noticed that have gone away! It's pretty amazing how that happens.

It's definitely possible that you are being cc'd and don't know it, as ravenwoodglass suggested. It's amazing that wheat and gluten can be in so many things that we would never suspect. Shampoo? Soy sauce? Envelope glue? Most of us were completely clueless until we started really researching it. Restauarants can also be tricky...I'm a newbie at this as well, and I've had some good experiences and some nightmares so far. There are some great places to go like Outback, PF Chang's, Carrabas has a gluten free menu, as does Maggiano's, I believe. There are also a great number of resources here--all you have to do is ask!

Feel better!

CL

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.