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anemic

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anemic Rookie

I've had my 5th iron infusion this week (5 more to go) and my ferritin is 99 (hasn't been for years) and my hemoglobin is 135. I feel really good- here are 10 reasons why

1. I finally have the energy to chase my children around, and actually catch them

2. I can focus at work and finally catch up on the last 2 years worth of mess

3. I'm getting used to potato and corn pasta and it's not so bad

4. I can fantasize about great bread with other celiac friends, its almost as good as...

5. My weight is going up

6. My anxiety is going down

7. I'm sleeping better

8. The dry skin, eyes seems to be improving, just in time for bathing suit season

9. I have to be organized about family meals so we're not wasting $ on take-out and fatty, nasty stuff

10. I am finally in control (somewhat) of my illness, rather than it controling me.

Tune in next week when I'm having a total meltdown over the craving for a hotdog bun and cold beer!


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missy'smom Collaborator

Glad to hear that you're feeling better. :)

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    • Rogol72
      @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or two everywhere he goes. I would go see an allergist as soon as possible as suggested.
    • Scott Adams
      After years of stable management, developing new symptoms to historically safe foods like nuts and fish strongly suggests a secondary issue has developed. It is highly unlikely to be a new gluten issue if the foods themselves are certified gluten-free. The most probable explanations are a new, separate food intolerance (perhaps to a specific protein in certain nuts or fish) or a true IgE-mediated food allergy, which can develop at any age. The symptoms you describe—cramps and the urge to vomit—can be consistent with either. It is crucial he sees an allergist for proper testing (like a skin prick or blood test) to identify the specific culprit and rule out a serious allergy, as reactions can sometimes worsen with repeated exposure.
    • trents
      Nuts are a common source of food allergy reaction/intolerance/sensitivity. But fish usually not. Of course, intolerances can develop to any food, whether or not they are common ones. I'm at a loss here.
    • Scott Adams
      Your doctor's recommendation to wait three months is very sound and aligns with general advice for celiac disease. While the acute GI symptoms resolve quickly, the autoimmune response and intestinal inflammation can linger, impairing nutrient absorption crucial for early fetal development. This three-month window allows your body to calm the immune response and for your gut to fully heal, ensuring you are in the best possible nutritional health for conception and pregnancy. In the meantime, focus on hydrating, eating nourishing, easily digestible foods, and resting—your body needs time to recover. It's a frustrating delay, but it's the best step for a healthy pregnancy.
    • Celiacpartner
      He’s noticed it after having a few different kinds of nuts and nuts on top of a gluten free nut bar. and it’s happened after having some fresh caught fish, and tonight from packaged plain salmon from the supermarket. He has stomach cramps and feels the need to vomit to try and relieve the symptoms. 
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