Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Without Weight Loss Or Stunted Growth?


momtogavin

Recommended Posts

momtogavin Newbie

Is it possible for a child to have celiac without the associated symptom of weight loss and/or stunted growth? As I posted a while back, I suspect my 10 month old has celiac but he is a porker and in the 95th percentile for weight. I am taking him to the doc next week for a blood draw (I think that is what they are going to do). I fed him whole wheat toast for lunch (about 1/2 slice) after his sweet potatoes and he has had 4 loose/pasty pale brown/yellowish stools. Just wondering if the weight loss/stunted growth is always indicative of Celiac. Thank you.

Natalie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shayesmom Rookie
Is it possible for a child to have celiac without the associated symptom of weight loss and/or stunted growth? As I posted a while back, I suspect my 10 month old has celiac but he is a porker and in the 95th percentile for weight. I am taking him to the doc next week for a blood draw (I think that is what they are going to do). I fed him whole wheat toast for lunch (about 1/2 slice) after his sweet potatoes and he has had 4 loose/pasty pale brown/yellowish stools. Just wondering if the weight loss/stunted growth is always indicative of Celiac. Thank you.

Natalie

Yes, it is possible to have celiac and still be in the 100th percentile for weight and height. The very first child that I met with celiac disease (prior to finding out about my dd's gluten problems) was in the 95th for both height and weight. He had biopsy and blood proven celiac disease. My dd had FTT and did not test positive for celiac disease on blood work. We opted out of the biopsy as her GI felt she was too little to biopsy, had egg allergies and soy intolerance (not a great candidate for anesthesia) and we were fed up with invasive tests.

It may also be that your son has extreme gluten sensitivity and not celiac disease. No matter what the results are, trust in your own observations on this. You live with your son. No one will know his reactions to foods better than you and tests aren't always accurate.

HTH

momof2sn Apprentice
Yes, it is possible to have celiac and still be in the 100th percentile for weight and height. The very first child that I met with celiac disease (prior to finding out about my dd's gluten problems) was in the 95th for both height and weight. He had biopsy and blood proven celiac disease. My dd had FTT and did not test positive for celiac disease on blood work. We opted out of the biopsy as her GI felt she was too little to biopsy, had egg allergies and soy intolerance (not a great candidate for anesthesia) and we were fed up with invasive tests.

It may also be that your son has extreme gluten sensitivity and not celiac disease. No matter what the results are, trust in your own observations on this. You live with your son. No one will know his reactions to foods better than you and tests aren't always accurate.

HTH

What is the difference between gluten sensitivity and celiac disease??

2kids4me Contributor

Celiac disease is an autoimmune disease. The body reacts to the gluten as an invader and attacks the intestinal villi where the gluten is absorbed = flattened villi, damaged intestine, malabsorbtion. Untreated celiac may also result in other autoimmune conditions if left untreated.

Gluten sensitivity has many similar symptoms to celiac but the villi are not attacked by the immune system.

Removing gluten form the diet solves both conditions.

Lactose intolerance and/or casein allergy/sensitivity has intestinal symptoms (and skin) too.

Blunted villi can be found in cases of casein intolerance bu the damage is not as severe as in celiac . Blunting as opposed to complete flattening and lymphoctyes invading.

I probably dont have all the info - I hope other posters will correct me if I am wrong and/or offer further insight.

**my daughter was bloated and considered overweight at the time of diagnosis. She "slimmed out" within weeks of gluten free. It wasn't fat - it was fluid retention and bloating

Sandy

ptkds Community Regular

My dd was the biggest out of all my kids, and she was the first one diagnosed w/ celiac disease. I am overweight and I was recently diagnosed w/ celiac disease. So yes, it is VERY possible to be big and still have celiac disease. You should request the test. It won't do any harm to check.

ptkds

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.