Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hair Loss

Amanda Thomas

Recommended Posts

Amanda Thomas Rookie
Amanda Thomas
Posted

You have all been a wealth of information to me. My 3 year old was diagnosed on 4/5/07 and has been gluten and wheat free since 4/6/07. I went the whole 9 yards, new pots pans, dishes silverware, sippy cups, strainers, toaster,etc... I know she is not being cross contaminated.

This past Saturday, she woke up and had a clump of hair on her pillow, I didn't think too much of it, now every morning she is waking up with clumps on her pillow and as I brush her hair, it falls out. She has spots of baldness. Has anyone else ever experienced this? We are going into the doctor in the morning, just wanted some ideas before I went in if possible.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


loraleena Contributor
loraleena
Posted

It sounds like Alopecia. My son had this and lost half his hair. We ended up using a natural product with essential oil called Kalasol and it grew his hair back. Hair loss can be caused by gluten, but it says your daughter is now gluten free. The other thing I know of that can cause hair loss is hypothyroidism. If you get her checked, make sure they don't check just her TSH. She needs several other tests especially the Thyroid peroxidase antibodies. Go on some of the thyroid threads to get more info on the tests (from Georgie). I can't remember all the tests at the moment.

Nantzie Collaborator
Nantzie
Posted

You didn't mention personal care products specifically, so I just wanted to remind you that shampoo, lotion, cosmetics, nail polish (thinking of you here not her), all can have gluten in it. I was glutening myself and my kids once because of CC from my nails (doh!).

Nancy

Michi8 Contributor
Michi8
Posted

Alopecia can definitely be connected to celiac disease. Your daughter has only been gluten free just under 3 weeks, so it would not be surprising if her body is still showing effects of gluten ingestion...and it's also possible that she is still getting gluten from something in her diet, perhaps from cross contamination. Keep up with the gluten free diet, and, as suggested by loraleena talk with your doctor about testing for other health problems such as thyroid, vitamin & mineral levels, and other malabsorption issues.

Michelle

Amanda Thomas Rookie
Amanda Thomas
Posted
  • Author
Alopecia can definitely be connected to celiac disease. Your daughter has only been gluten free just under 3 weeks, so it would not be surprising if her body is still showing effects of gluten ingestion...and it's also possible that she is still getting gluten from something in her diet, perhaps from cross contamination. Keep up with the gluten free diet, and, as suggested by loraleena talk with your doctor about testing for other health problems such as thyroid, vitamin & mineral levels, and other malabsorption issues.

Michelle

I was more concerned because it just started to happen, just this past weekend. We use the Suave kids 2 in 1 shampoo and johnsons buddies body wash. We also use burts bees, but I ran out last week. Her hair has never fallen out before, maybe I am being over paranoid!!! Since I am still new to this, what do I look for in the bath products? Would they say contain wheat?

loraleena Contributor
loraleena
Posted

Alopecia can happen suddenly or take a while. Shampoo,lotions, etc. do not have to say wheat. I would check on a gluten listing site for products that are safe, or actually call the company. I use Giovanni and Shakai, both confirmed safe by the company and all natural. Has your daughter had a illness about 3 months ago? Illnesses can trigger Alopecia (it is autoimmune) and it takes 3 months for the hair folicle to die and the strand to fall out. My son's started exactly 3 months after having the croup.

Juliet Newbie
Juliet
Posted

Alopecia areata (if that's what your child has) can also come from stress, other illnesses, weather changes, practically anything. My niece has it, which is an autoimmune disease and not any of the fungal or dermatitis forms which can be easily treated. It doesn't hurt her at all, and luckily she only has one spot. She's been given a cream to help stop it from spreading, but from what my sister was told not much can truly be done about it if it is the autoimmune version called alopecia areata, which is what she has. My niece has this form of alopecia but does not have celiac disease, however since both are autoimmune diseases there does seem to be a correlation between the two.

Here are a couple of links describing some of the symptoms as well as what you could do next:

Open Original Shared Link

Open Original Shared Link

I would bring this to your pediatrician's attention and see if something can be done.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Michi8 Contributor
Michi8
Posted

Apparently there is a stronger correlation between celiac and alopecia areata than once thought.

A Google search came up with this Pubmed article:

Open Original Shared Link

Celiac disease and alopecia areata: report of a new association.

Corazza GR,

Andreani ML,

Venturo N,

Bernardi M,

Tosti A,

Gasbarrini G.

Department of Internal Medicine, University of L'Aquila, Italy.

Celiac disease is frequently associated with other autoimmune disorders but has never been reported in association with alopecia areata. In a routine clinical practice, 3 patients with such an association were observed. In one of the patients, celiac disease was diagnosed after the occurrence of malabsorption symptoms. In the youngest patient, a 14-year-old boy, gluten-free diet resulted in complete regrowth of scalp and body hair. A prospective screening program for celiac disease using antigliadin and antiendomysial antibodies was therefore set up in 256 consecutive outpatients with alopecia areata. Three patients, all completely asymptomatic for intestinal diseases, were found to be positive and underwent biopsy. Histological analysis showed a flat intestinal mucosa consistent with the diagnosis of celiac disease. The results show that alopecia areata may constitute the only clinical manifestation of celiac disease and that the association between these two conditions is a real one because the observed frequency of association is much greater than can be expected by chance. It is suggested that antigliadin and antiendomysial antibodies should be included in the work-up of patients with alopecia areata.

PMID: 7557104 [PubMed - indexed for MEDLINE]

Michelle

Amanda Thomas Rookie
Amanda Thomas
Posted
  • Author

We went into her pedi yesterday and spent a lot of time talking. Kaitlyn Grace is very anemic, so we started a new vitamin. Again I thank all of you, I tend to go worse case scenario with everything!!! We are going to do this vitamin and after 2 weeks do another iron test, if she is still anemic, he said we should delve further.

  • 2 years later...
Lisa C Newbie
Lisa C
Posted

My son has alopecia and I am interest in finding the natural product Karasol you mentioned for hari growth - can you tell me where I can find it?

Lisa C Newbie
Lisa C
Posted

My son has alopecia and I am interest in finding the natural product Karasol you mentioned for hari growth - can you tell me where I can find it?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.