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Finally Feeling Better

LoveBeingATwin

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LoveBeingATwin Enthusiast
LoveBeingATwin
Posted

I just wanted to say that I am actaully feeling better. I posted a couple of days ago becuase I was thinking about going and seeing the specialist again..but I wanted to try one more thing before I did and it has helped.

I completely took out of my diet: eggs, soy, dairy, grains, rice, potatoes, nuts, beans, corn and gluten of course. I FEEL so much better and it has only been two days. So basicly I am eating similar to the paleo diet ( veggies, fruit, meat and salad) and I feel great. I have not had the big D in three days. I will eat anything as long as I don't have the big D! My stomach is not killing me nor is it nosiy anymore. I have energy. I am hoping this stays this way. I plan on eating like this as long as I am feeling good.

I was looking back at my food journal and it seems like I had symptoms with just about all those food items I mentioned above. I actually had a reaction, itching and breathing problems to corn so that is definitely out of my diet. I know that I am eliminating almost everything from my diet, but if I feel better does that matter? I also wanted to thank those who gave me advise on changing the things that I eat, especially those high allergen foods. It has helped tremendously. I will keep you posted.

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miles2go Contributor
miles2go
Posted

I have a list that's as long as that, as do many folks on this board and when people ask me, "well, what do you eat?" I don't think they have any realization how many foods are actually out there. I believe that we're programmed early on to be eating these common allergens for most of our lives and then we react to them? Hello? :D

Nancym Enthusiast
Nancym
Posted

Welcome to the paleo world! People think it's such a restrictive diet but really, you look at what most people eat, it's probably a short list of things... maybe 20 items in it. They're all just variations on grains. Anyway, with vegetables, spices, fruit and meat, the variety is infinite!

Hint: Look at SE Asian foods for loads of ideas on what you can eat (minus the rice). I'm becoming a Thai food cook. :)

Ursa Major Collaborator
Ursa Major
Posted

Aha, lectins! I thought so. Have you taken out tomatoes and peppers, too? I am very glad you are feeling better.

oceangirl Collaborator
oceangirl
Posted
Aha, lectins! I thought so. Have you taken out tomatoes and peppers, too? I am very glad you are feeling better.

Almost paleo (with alittle rice) is helping me, too. Congratulations! I hope you continue to feel better.

lisa

Ann1231 Enthusiast
Ann1231
Posted
I just wanted to say that I am actaully feeling better. I posted a couple of days ago becuase I was thinking about going and seeing the specialist again..but I wanted to try one more thing before I did and it has helped.

I completely took out of my diet: eggs, soy, dairy, grains, rice, potatoes, nuts, beans, corn and gluten of course. I FEEL so much better and it has only been two days. So basicly I am eating similar to the paleo diet ( veggies, fruit, meat and salad) and I feel great. I have not had the big D in three days. I will eat anything as long as I don't have the big D! My stomach is not killing me nor is it nosiy anymore. I have energy. I am hoping this stays this way. I plan on eating like this as long as I am feeling good.

I was looking back at my food journal and it seems like I had symptoms with just about all those food items I mentioned above. I actually had a reaction, itching and breathing problems to corn so that is definitely out of my diet. I know that I am eliminating almost everything from my diet, but if I feel better does that matter? I also wanted to thank those who gave me advise on changing the things that I eat, especially those high allergen foods. It has helped tremendously. I will keep you posted.

I'm very happy for you that you are feeling better! I'm to the same place. I can't eat much but meats, non-starchy vegetables, fruits. I do feel better and haven't had intestinal problems at all. I did try some nuts the other day and my joints hurt so badly now, I'm giving those up forever I think!

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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