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How Careful Do I Have To Be?

ptkds

By ptkds
in Dermatitis Herpetiformis

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ptkds Community Regular
ptkds
Posted

I recently went to see a dr in a dermatologists office (he wasn't a derm) about all the itchy spots I have been getting since going gluten-free. He said it wasn't DH, but it was related to gluten. Then I took my 22m old dd to an allergist and we were discussing various symptoms, and i mentioned my itchy spots. He said it was most likely DH and I should get a biopsy. So I plan on making an appt w/ the derm dr on Monday (it will take 3+ months to get in to see her!)

So my question is, how careful do I have to be? We have been making sure my youngest has been eating gluten (so we can test her for celiac disease). Is it safe to touch her and clean her up after she has had gluten? She is only 12m, so she gets messy when she eats. And are there any other "restrictions" like bandaids, iodine, etc?? I can't find any info out on this.

Thanks,

ptkds

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Born2run2 Rookie
Born2run2
Posted

Obviously you are going to have to handle your baby. There is no way around that. The nature of babies is a very hands on. Besides they learn by being touched, that is how they develop. Poor baby if she has got to eat gluten for such a long time. I can understand your delimma, maybe wear gloves and protective clothing. Judy

rinne Apprentice
rinne
Posted

It might be a lotion or soap that you are using, you can phone the companies directly and ask them. The suggestion for gloves was a good one too.

I hope the testing is over soon and you have the answers you need.

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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

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      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

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