Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Michigan Doctors Help

amyd

By amyd
in Doctors

Recommended Posts

amyd Newbie
amyd
Posted

Hi-

In need of help. After years of suffering my mother was diagnosed 5 years ago with Celiac Disease. I started to have trouble after my children were born (now 3 and 4). When I went to our family doctor and asked him about Celiac he pulled out a pda and punched it in. He then read me a "definition". This can NOT be the person I leave in charge of my childrens health. I got the information from my mother regarding what blood tests to run. He wrote the orders and the results came back "inconclusive". We all have the genetic marker. However, we had been gluten free for about a month when the blood work was done. I am not overly concerned about getting a DR. to do the actual diagnosis. I know we have Celiac and have confidence in that self diagnosis. We have all switched to a gluten free diet but I still have so many quetions. Things that I would like to be able to discuss, about my childrens future health, with someone who knows what they are talking about. Example: My 4 year old is very full of life, runs around and seems to thrive but... he always has dark circles under his eyes and he is VERY tall and thin. This could just be his body type but the circles make me wonder .... am I missing something? Is there something connected with Celiac that I'm missing.

Please help if you know of a good doctor let me know.

Desperate for Doctors in Michigan.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StrongerToday Enthusiast
StrongerToday
Posted

I don't know what area you're in, but there are several Michigan groups that might be able to help you. I know there's an Ann Arbor group, as well as Lansing and a more metro Detroit area. You should google it and I bet you'll find lots of info.

Good luck and let me know if I can help you find any information.

mandasmom Rookie
mandasmom
Posted
I don't know what area you're in, but there are several Michigan groups that might be able to help you. I know there's an Ann Arbor group, as well as Lansing and a more metro Detroit area. You should google it and I bet you'll find lots of info.

Good luck and let me know if I can help you find any information.

Both the University of Michigan and The detroit medical center have childrens hospitals. Go to their web sites and look for a pediatric gastroenterologist..when you call to make the appointment ask if he or she has special knowledge of or interenst in celiac disease.

tabdegner Apprentice
tabdegner
Posted

I'm in the Southwest corner of Michigan and I go to Dr. Morrow at Grand River Gastroenterology. I've been pretty happy with him.

Q1821 Apprentice
Q1821
Posted

I just wanted to say I totally understand your problem with MI doctors, I lived there for 2 1/2 years and the doctors did nothing for me. They sent me all over the place and had me doing stool samples, getting a colonoscopy and then told me all I had was IBS. They wanted to put me on a bowl relaxer and medimucil, I was so mad! All I wanted was a clear answer, did I have celiac disease or not. Never got one, so I went gluten-free anyway and I've never felt better. Best of luck to you, it sounds like the "big city" doctors is where you want to be.

sickofit Newbie
sickofit
Posted
Hi-

In need of help. After years of suffering my mother was diagnosed 5 years ago with Celiac Disease. I started to have trouble after my children were born (now 3 and 4). When I went to our family doctor and asked him about Celiac he pulled out a pda and punched it in. He then read me a "definition". This can NOT be the person I leave in charge of my childrens health. I got the information from my mother regarding what blood tests to run. He wrote the orders and the results came back "inconclusive". We all have the genetic marker. However, we had been gluten free for about a month when the blood work was done. I am not overly concerned about getting a DR. to do the actual diagnosis. I know we have Celiac and have confidence in that self diagnosis. We have all switched to a gluten free diet but I still have so many quetions. Things that I would like to be able to discuss, about my childrens future health, with someone who knows what they are talking about. Example: My 4 year old is very full of life, runs around and seems to thrive but... he always has dark circles under his eyes and he is VERY tall and thin. This could just be his body type but the circles make me wonder .... am I missing something? Is there something connected with Celiac that I'm missing.

Please help if you know of a good doctor let me know.

Desperate for Doctors in Michigan.

sickofit Newbie
sickofit
Posted

People, including me, that have allergies have dark circles under their eyes. I'm "allergic" to dust mites, dander, etc., but also have food "sensitivities" and when I eat something too often (I have to do a rotation diet) or eat anything with preservatives, MSG, nitrates, sulfites, artificial colors or flavors, I looked like I haven't slept for a week. I could not get help from any regular doctors but did find at least some of this out by going to a naturopath that did blood work.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
    3. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to...
    4. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
    5. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,831
    • Most Online (within 30 mins)
      7,748
    ATownCeliac
    Newest Member
    ATownCeliac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.