Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Normal?


Mj25

Recommended Posts

Mj25 Newbie

I was just recently diagnosed with celiac disease in March. I have been on the gluten free diet for a month as of yesterday (May 1) and have been experiencing muscle spasms all over my body and I mean all over! I have also had several bouts where I get very shaky, dizzy, nauseous and feel very weak. I was previously told that I am hypoglycemic but usually if I eat something sweet when I feel like that it goes away and this doesn't go away no matter what I eat. I have to just lay down and rest and it is the worst feeling. Also, I have had this DH rash all over my body for a week now and it will not go away. Is all this normal? Is there anyway to get rid of this rash or at least soothe it somewhat? It is driving me crazy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Several things come to mind when you talk about muscle cramps, weakness and dizziness. The muscle cramps could be caused by a magnesium deficiency. The weakness could be an iron deficiency/anemia. You could also have adrenal fatigue.

My suggestion is, to see your doctor and demand (nicely :rolleyes: ) to be tested for nutritional deficiencies, since those are extremely common with celiac disease. The reason of course is, that your intestines can't absorb certain nutrients when your villi are damaged.

You need to be tested for magnesium, calcium, vitamin D, ferritin (iron), hemoglobin, vitamins B12 and B6 and vitamin K (if I forgot something, others please chime in).

You should also have a bone density test done, as even children can have osteoporosis because of celiac disease already.

pedro Explorer

HI Mj25

My daugther suffers from the rashes. We got a natural soap that contains vit E as long as the soap Does Not contain gluten.

I experienced the muscle spasms and cramps all over my body, they usually attack at in the middle of the night. When I started the gluten-free diet 5 weeks ago. I try to take lots fluid everyday to flush my system, and please don't forget to take vitamins. The feeling of shaky, dizzy, nauseous, weak, has dissapear for me.

I hope you get better, best regards to you.

loco-ladi Contributor

Well, once upon a time I had a foster child with juvenille asthma and not wanting him to be dependant on medicine we both looked into natural things to do that would help....

One thing was increasing the magnesium intake, so I will admit when he found out that it meant more leafy green veggies he was dumbstruck, I believe his exact words were "EEEWWWWWWWW... theres NO way I will eat lettuce or spinich" we ended up striking a deal, he only had to eat 1 leafy green veggie a week at a meal if he learned how to take a magesium suppliment..... never seen a kid so eager to learn to swallow a pill in my life!

p.s. he absolutely loves spinich now(dont think thats spelled right but i cant do no better today i guess)

DestinyLeah Apprentice

Another thought- your muscles cannot function correctly without potassium, neither can your brain. It is the 'lube' that makes the signals from nerves transition smoothly. The other thing you would notice in this case is a rapid or odd heartbeat, where beats are either skipped or added where they shouldn't be.

Definitely get tested for deficiencies, as well as for white count. High white count along with these symptoms usually means a lot of inflammation, and in order to treat a deficiency, you would need to know which ones you have. Besides, Rx supplements could be needed if you are severely under the necessary amount. a month later, and I'm still on horse-pill potassium supplements. I just don't absorb anything anymore!

sunshinen Apprentice

I would also question whether you are accidentally still getting gluten. It took me about 6 months to really learn the diet.

When I was diagnosed, I had reached the point where it was very hard to bring my sugars back up. I think this is because it gets to where we just aren't absorbing or adequately processing either the fat/proteins that help balance sugar levels or the sugar to actually bring the levels back up. For several months, I had to really eat lots of snacks throughout the day.

I also took a lot of supplements to build my body back up, including vitamins, minerals, and adrenal and immune system support.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.