Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Interesting Article In The New Scott Free Issue


jerseygrl

Recommended Posts

jerseygrl Explorer

There is an article about a young woman who has just been dx'd with celiac disease. Now, instead of the flirtatious girl that she once was, she feels

extremely inhibited socially. She worries about getting glutened by kissing someone! In fact, she has been known to carry a new toothbrush

and toothpaste to any party in case she meets someone she's attracted to.. Now, there are a whole lot of "issues" I could comment

on regarding this, but for now, I am curious about this one aspect -- I dont have celiac, but my young DD does --

is it common to have to worry about playing "tonsil-hockey" with someone (of course, she's not dating till she's 30, heh heh!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



snapple Apprentice

I don't know about everyone else, but I do worry about kissing those that eat gluten. I have been known to be so strict about others lips touching mine, that my husband started comlaining a lot (he wasn't getting his daily alottment of kisses :P ) . I have toned it down some, but yes, it is something I really am careful with. Usually if it has been a few hours or he has brushed his teeth, than we can kiss freely. other than that, we usually stop and think before kissing ensues. Spontaneous is no longer part of our vocab :lol:

Kate

jerseygrl Explorer

Wow, this concern just never occured to me. But then again, there was the girl who died 6 months or so ago by kissing her boyfriend

after he ate peanuts. She was allergic, and I guess he just didnt think about it...... so sad.

Nantzie Collaborator

Yep. My husband doesn't kiss me if he's had gluten. He has to brush his teeth first. Or if several hours have gone by, it seems to be okay.

Just like the rest of the celiac life, the boys who really care about her will be more than willing to do what they need to do to keep her safe and healthy. It will probably weed out a lot of jerks. ;)

My daughter also is going to have to deal with this when she dates. Although my husband assures me that we're moving to an island, patrolled by boyfriend-eating sharks. :lol: I'm pretty sure he's kidding. :unsure:

:D

Nancy

jerseygrl Explorer

I don't know how old your daughter is, Nan, but maybe by the time my 6yo learns how to jump the BF-eating sharks,

there will be a cure or a pill ofr celiac disease ;)

Nantzie Collaborator

LOL!

Nancy

blueeyedmanda Community Regular
Wow, this concern just never occured to me. But then again, there was the girl who died 6 months or so ago by kissing her boyfriend

after he ate peanuts. She was allergic, and I guess he just didnt think about it...... so sad.

That is sad, it probably was the last thing on his mind.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kyalesyin Apprentice

We've had problems with kissing a few times here....

We know when I've had gluten and not gotten rid of it- my wife gets rash around her mouth. I find that eating cheese works well- seems to pick up any clinging gluten and get rid of it very effectively.

jerseygrl Explorer

Oddly, my DD never has stomach discomfort when glutened -- she just gets terribly aggitated and really "wigs out" neurologically.

That should make for an interesting dating scenerio!! :lol::blink:

mandasmom Rookie

My husband is really allergic to shell fish--I sent him to the hospital on our honeymoon bacuse I had eaten lobster and then kissed him!!!! We are very careful about kissing....lots of toothbrushes in our house!!!! But i have given up my seafood..just to be sure!!

sfm Apprentice
There is an article about a young woman who has just been dx'd with celiac disease. Now, instead of the flirtatious girl that she once was, she feels

extremely inhibited socially. She worries about getting glutened by kissing someone! In fact, she has been known to carry a new toothbrush

and toothpaste to any party in case she meets someone she's attracted to.. Now, there are a whole lot of "issues" I could comment

on regarding this, but for now, I am curious about this one aspect -- I dont have celiac, but my young DD does --

is it common to have to worry about playing "tonsil-hockey" with someone (of course, she's not dating till she's 30, heh heh!)

I don't always think of things like that - but my boyfriend will not kiss me, after eating gluten, until he has had a chance to rinse his mouth or chew gum for awhile. My children are the same way, and won't drink from my straw or my cup if they've been eating gluten. And it does make sense, if you think about it... I am extremely sensitive to very small amounts of gluten.

Sheryll

zansu Rookie

it does give all new meaning to the phrase "you make me sick!" :o

Karen B. Explorer

When I was first diagnosed, I didn't believe that it could be that sensitive. I was still thinking of it like an allergy (a little bit is okay). My hubby didn't tell me what he was doing but for a few weeks, he tracked which days he had raisin bran for breakfast and which days he had a gluten-free hot cereal. He also called me at work to see if I was having tummy troubles.

After a few weeks he showed me the results and we've been careful since then. Understand that we've been married for over 20 years and I'm not talking about a major lip lock. Our only morning contact was a quick peck on the way out the door and it was enough to make my tummy rumble all day. That was when I started changing my paradigm for Celiac from a dimmer switch (like my MSG allergy) to an on/off switch.

I would almost think that such sensitivity was psychosomatic except that I didn't know he was tracking my answers when I gave them. When he charted it, there wasn't a lot more to say but "You're right, Dear!"

Sneaky man, my husband.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    2. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Accuracy of testing concerns

    3. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

    4. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

    5. - Teaganwhowantsanexpltion replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748

    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
    • Teaganwhowantsanexpltion
      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.