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Got The Test Results Back, Now Have More To Do "frustrated"

Guest GoofyG

By Guest GoofyG
in Parents, Friends and Loved Ones of Celiacs

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Guest GoofyG
Guest GoofyG
Posted
:( DD who is 3, had some blood work done. Her test for the celac disease came back neg. When they tested her to see how her nutrients was, it was very low. So dhe isn't getting any nutrients. They are now going to do a scope on her Wednesday. They said it would take 3 days for the results. I just hope they get what they need. My other DD who is 1 will see him on Monday, though he said he doesn't want to do the scope on her. So I don't know what all is really going to happen. I guess there is something going on since she doesn't absorb her nutrients. I'll update when I hear anything. Has anybody else been threw this? Is DD going to be herself that day, or just sleeping. This will be her first time having a sedation. I don't know what is going to happen. She is sooooo little.
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ptkds Community Regular
ptkds
Posted

Sorry you don't have a real answer yet.

When you take dd in, they will probably put an IV in and sedate her. She will go to sleep. The procedure should only take about 5-10 minutes. Then she will wake up. She will probably be a little groggy and grumpy. Make sure you bring something for her to drink in a sippy or whatever she uses. They won't let you go home until they are sure she can keep something down. She may sleep all day, or just be a little grumpy, or be her normal self! It all depends on the child and the meds they give her. Just try to relax, and everything will go well.

Keep us updated!

ptkds

Guest GoofyG
Guest GoofyG
Posted
Sorry you don't have a real answer yet.

When you take dd in, they will probably put an IV in and sedate her. She will go to sleep. The procedure should only take about 5-10 minutes. Then she will wake up. She will probably be a little groggy and grumpy. Make sure you bring something for her to drink in a sippy or whatever she uses. They won't let you go home until they are sure she can keep something down. She may sleep all day, or just be a little grumpy, or be her normal self! It all depends on the child and the meds they give her. Just try to relax, and everything will go well.

Keep us updated!

ptkds

Thanks for the reply. I know I get sick when I'm sedated. I hope she will be ok. I didn't think about her sippy cup. She is drinking out if a normal cup, but I think that day I'll bring a sippy cup.

momof2sn Apprentice
momof2sn
Posted
Thanks for the reply. I know I get sick when I'm sedated. I hope she will be ok. I didn't think about her sippy cup. She is drinking out if a normal cup, but I think that day I'll bring a sippy cup.

I just wanted to say that both of my kids had endoscopy done on 3-28-07. They are 20 months and 5. Both of my kids did not have to have an IV and were just given a mask of ansthesia in the operating room, that only took a few seconds for them to be out. You may want to ask if you have that option. I know most of us don't want to have our babies poked anymore than they have to. I was able to be in there for both of my kids ( I have to tell you that that is hard, but they are my kids and I would want to be there with them. I would fine out too, if there is any blood work that needs to be done? Like allergy test or the antibody panel, or anything else that maybe your doctor suspects is going on, so it can be done while your child is out. The procedure took 5 min. for my daughter and about 2 min. for my son. They time to wake up was about 30 min. for each. They were given something to drink by the nurse. They were grumpy when they woke up, but they were eating breakfast about and hour later and then at chuckie cheese about another hour later and then ate some more. My daughter's biopsy was normal, but genetic blood work (another thing you may want to request while she is out, our ins. paid for it) and antibody panel were positive. My son's antibody panel was negative (they checked him just because of my daughter's symptoms)

My daughter had blunted villi, low iron, B-12, and folate. Inflammed intestines and chronic diarrhea. She has now been gluten-free for a week and the diarrhea was gone in 24 hours. Her tummy still looks big, but she is doing great!!!!!!!!!!

Just remember that you are doing this to help her get better and always remember that if something doesn't jive with you then trust your mommy instinct. You are the one with your baby every day not the doctor. If you don't get the answers you think you deserve, then push and if your still don't get results find another doc to work with.

Best of luck. Look to the future that your baby will soon be well!!!

VydorScope Proficient
VydorScope
Posted

Note on the "little grumpy" comment....

SOME kids wake up screaming scared, many just plain upset. Do not worry if she does, its NORMAL. She will not likely not even remember it later. Its a well known, but often forgotten to be mentioned side effect with small children and anthestia of any kind.

Some kids do not have a problem like this, I do not know the percentages, but the impression the docs gave me is MOST children have some kind of problem like this.

Nic Collaborator
Nic
Posted
Note on the "little grumpy" comment....

SOME kids wake up screaming scared, many just plain upset. Do not worry if she does, its NORMAL. She will not likely not even remember it later. Its a well known, but often forgotten to be mentioned side effect with small children and anthestia of any kind.

Some kids do not have a problem like this, I do not know the percentages, but the impression the docs gave me is MOST children have some kind of problem like this.

VydorScope is absolutely right, "little grumpy" did not cover it for my son. My youngest son woke up in this crazy frenzy and kept trying to jump off the table. It was almost comical. He is my non celiac. My celiac just had a colonoscopy last month and woke up very well and ready to play video games. He had the sedation through IV. I told the nurse about the experience I had with my other son and she asked if he had been gased, which he was. She said that when children are put out with gas they tend to wake more disoriented then with the IV.

Nicole

Guest GoofyG
Guest GoofyG
Posted
VydorScope is absolutely right, "little grumpy" did not cover it for my son. My youngest son woke up in this crazy frenzy and kept trying to jump off the table. It was almost comical. He is my non celiac. My celiac just had a colonoscopy last month and woke up very well and ready to play video games. He had the sedation through IV. I told the nurse about the experience I had with my other son and she asked if he had been gased, which he was. She said that when children are put out with gas they tend to wake more disoriented then with the IV.

Nicole

Thank you all for the reassurance. I don't know how they are putting her under. I see the Dr with the baby tomorrow, I'll ask then. He was trying to not run the genetic test, due to the fact if insurance companies see it later they won't want to cover you. That makes since. I had my gahlbladder removed and I have issues with the insurance companies. I will let you all know what happens.

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