Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glad To Be Gluten Intolerant


cwj-tlj

Recommended Posts

cwj-tlj Rookie

:rolleyes: I know this may sound strange but the alternatives didn't sound good and I am feeling better than I have been for years. It's fun to be getting older and feeling better. of course it cast lots of money and after finally finding the right doc to put it all together.

I was having severe mental changes like suicidal thoughts, guilt, etc. Seriously I felt if things didn't get better I would end up in the psych. ward. I feel very strongly about the possible number of people who are on suicide watch eating a steady diet of hospital gluten ridden food.

After going gluten free I was better mentally in about 12-24 hrs and physicaly in about 5-7 days. Of course I did test it once and back into hell I went for 3 days. I have been battling vague episodes of severe fatigue and flulike symptoms as well as chronic oral HSV really for 18 yrs. Got worse after my second child was put on antidepressants which kept me going for another 8 yrs. until a "crash" on a vacation in April from which I never recovered thanks to Kashi bars daily. I've always been constipated and a bit overweight so my symptoms weren't apparant. However I was Dx'd with Crohns 10 yrs ago from which I thought had grown out of . Little did I know I was poisoning myself.

Anyway thanks for letting me lurk for a few week and helping me get to this point. I'm sure there will be more ups and downs and I still have lots of questions.

T.J.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
:rolleyes: I know this may sound strange but the alternatives didn't sound good and I am feeling better than I have been for years. It's fun to be getting older and feeling better. of course it cast lots of money and after finally finding the right doc to put it all together.

I was having severe mental changes like suicidal thoughts, guilt, etc. Seriously I felt if things didn't get better I would end up in the psych. ward. I feel very strongly about the possible number of people who are on suicide watch eating a steady diet of hospital gluten ridden food.

After going gluten free I was better mentally in about 12-24 hrs and physicaly in about 5-7 days. Of course I did test it once and back into hell I went for 3 days. I have been battling vague episodes of severe fatigue and flulike symptoms as well as chronic oral HSV really for 18 yrs. Got worse after my second child was put on antidepressants which kept me going for another 8 yrs. until a "crash" on a vacation in April from which I never recovered thanks to Kashi bars daily. I've always been constipated and a bit overweight so my symptoms weren't apparant. However I was Dx'd with Crohns 10 yrs ago from which I thought had grown out of . Little did I know I was poisoning myself.

Anyway thanks for letting me lurk for a few week and helping me get to this point. I'm sure there will be more ups and downs and I still have lots of questions.

T.J.

Congratulations on your "de-lurking" and a very warm welcome. I hope that your health issues have made a turn-a-round because there are many new days ahead.

Please feel free to ask any questions. When, I first posted I believe that I was relentless. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,037
    • Most Online (within 30 mins)
      7,748

    cbattiato
    Newest Member
    cbattiato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.