Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Causing The Numbness

holdthegluten

Recommended Posts

holdthegluten Rising Star
holdthegluten
Posted

I have been having numbness and weakness in my legs,feet,arms,and hands. What is causing this tingly feeling? Its kind of scary. Any info. I dont have any nutritional deficincies. My tests all looked good. I got glutened about a week ago.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wowzer Community Regular
wowzer
Posted

It could be from getting glutened. That went a way for me when I went gluten free. I will get the tingling if I get glutened. I hope it goes away for you soon. Wendy

Betty in Texas Newbie
Betty in Texas
Posted

I know how you feel I was having this for about a year and finally figured it out. I started taking 500 mg of B12 letting it melt in my mouth. About a month it has all gone a way. It was bad it would wake me up in the middle of the night and I would be shaking my hand trying to get the feeling back in it my husband thought maybe I was loosing it but he under stands . He is just so happy I finnaly found out what was causing it . I am 55 and found out I celiac 3 years ago lot of suffering. Hope this helps I dont go to a lot of Drs. I try to figur it out on my own since I don't have insurance any more since it went to a $ 1,000 a month could't afford that. But I will be fine and I hope you start felling better.

ravenwoodglass Mentor
ravenwoodglass
Posted
I have been having numbness and weakness in my legs,feet,arms,and hands. What is causing this tingly feeling? Its kind of scary. Any info. I dont have any nutritional deficincies. My tests all looked good. I got glutened about a week ago.

This is a result of your glutening. The suggestion to start taking sublingual B12 is a good one. It should help. If your B12 levels are down, and different folks feel this lack at different levels, mine was still over 200 but I was having severe symptoms at diagnosis. My doc considered this an OK level but by looking through my old labs I discovered that it had been dropping from about 500 steadily over a couple years.

Also if your celiac presentation has neuro features often these will show up full force when glutened. These neuro features can mimic symptoms for disease like MS, in fact many of us go through a lot of tests for MS and some are misdiagnosed with it from the symptoms alone. It will resolve once the neurotoxin is out of your system.

Hopefully this will pass for you quickly. Try to eat as much whole unproccessed food as you can for a bit while you heal that will help. Feel better soon.

darlindeb25 Collaborator
darlindeb25
Posted

When doing bloodwork, you must ask for a B12 count or they don't even check it. Then, if the doctor tells you it is in the normal range, then you probably need more. The normal range is much lower than your B12 should actually be. You can't really get too much B12, your body eliminates what you do not need daily. I take 2400mcg daily, the recommended daily 100% value of B12 is 6mcg, which is nothing. I take 40,000% of the daily recommended value. I do have neuropathy and I honestly think the additional B12 has slowed the progression.

Once you have a B12 deficiency, you will always need to take additional B12. I started out at 1200mcg and my B12 level at testing was 1237 with the ranghe being 200-1100. No one told me you must stop taking your B12 several days before testing to get a true level.

If the numbness and weakness continues, ask your doctor to order a nerve conduction test, or a doppler for neuropathy. It's fairly painless, just some little shocks.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,682
    • Most Online (within 30 mins)
      7,748
    Amber1rose
    Newest Member
    Amber1rose
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.