Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Terrible Again

confused

Recommended Posts

confused Community Regular
confused
Posted

I have had a bad week. I think i got glutenened on friday, cause i was sick on saturday. Then i have been really tired all week. Then today i woke up with my stomach gurgling really bad and could feel lots of gas in my stomach, Now i have been running to the bathroom every 10 minutes with watery poop(sorry tmi), and im miserable. I have never had poop like this. Is this part of being glutened. or do u think something else could be going on. and what can i do to feel better. Or do u think i have been glutened again since friday.

paula

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sickofit Newbie
sickofit
Posted
I have had a bad week. I think i got glutenened on friday, cause i was sick on saturday. Then i have been really tired all week. Then today i woke up with my stomach gurgling really bad and could feel lots of gas in my stomach, Now i have been running to the bathroom every 10 minutes with watery poop(sorry tmi), and im miserable. I have never had poop like this. Is this part of being glutened. or do u think something else could be going on. and what can i do to feel better. Or do u think i have been glutened again since friday.

paula

Know how you feel. I have had the watery stuff lots., but never sure from what as I react to so many things. Do you have other food intolerances? The only thing I know how to do is drink lots of water all day to get the bad stuff out of my system. Hope some of the experts on here have some better ideas!

confused Community Regular
confused
Posted
  • Author

Thanks now im having really bad back pain on my right. I have no idea what is going on in my body.

paula

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

It could just be a glutening. I am not sure, as I am not an expert, but I get those symptoms when I get glutened really good. Usually not just with cc, but a major cc, those are usually some of my symptoms..

I am sure others will chime in on this.. I guess if you really feel like it could be something else, it couldnt hurt to go to the doc either...

Nantzie Collaborator
Nantzie
Posted

Sounds like a glutening to me. I used to get the watery diarrhea all the time.

I notice on the gene thread you started that you have one of the same genes I do; DQ1, 0602. When I first got my results back, someone here told me that it was more common to have pain and neuro symptoms with that gene. (Which I was having, big time.) I'd say your back pain is probably nerve pain from the glutening. For me, it's usually constant pain in a particular area, usually my back and hips. It sometimes gets bad enough that I get what feels like painful electric shocks. It usually interferes with my mobillity anywhere from just walking funny, to really not being able to walk much.

If you feel like something else might be going on, you should see your doctor. It sounds a lot like me when I get glutened though.

Nancy

rsm Newbie
rsm
Posted

It may be a gluten problem or it could be a reaction to dairy or some other item. I see new items pop up now that did not bother me before. Hang in there.

confused Community Regular
confused
Posted
  • Author
Sounds like a glutening to me. I used to get the watery diarrhea all the time.

I notice on the gene thread you started that you have one of the same genes I do; DQ1, 0602. When I first got my results back, someone here told me that it was more common to have pain and neuro symptoms with that gene. (Which I was having, big time.) I'd say your back pain is probably nerve pain from the glutening. For me, it's usually constant pain in a particular area, usually my back and hips. It sometimes gets bad enough that I get what feels like painful electric shocks. It usually interferes with my mobillity anywhere from just walking funny, to really not being able to walk much.

If you feel like something else might be going on, you should see your doctor. It sounds a lot like me when I get glutened though.

Nancy

nancy that is exactly what it feels like. The pain is like in my back and in my hip area. I almost convinced myself i was having an appenditicits. But i know its not that.

My hubby tried to talk me into going to the dr, and i said no way. I did tell him if im still feeling this bad i will go tommorow. I just dont want to go today.

Im wondering if i got sick from fritos last night.

Mother nature also decided to show her head this morning, so maybe it is just an mixture of everything. i just know my heating pad will be my best friend today.

paula

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nantzie Collaborator
Nantzie
Posted

I usually have one or two days of the nerve pain and then it starts getting obviously better. It sucks that you're getting cramps on top of it. I hope you feel better tomorrow.

Nancy

confused Community Regular
confused
Posted
  • Author

I am so happy that you said just one or two days. Cause i have an baseball tournament and soccer games this weekend.

Before my husband went to work, he told me he was going to clean the house from top to bottom on friday, and we taking all gluten out of the house. He said he hates seeing me this way and its not worth having bread in the house. That is practically the only gluten we have is the bread and frozen pizzas. He did ask me if he could keep his coors light and i said of course, but he is responsible for throwing away his cans. lol.

paula

AndreaB Contributor
AndreaB
Posted
Im wondering if i got sick from fritos last night.

I know that whenever I had a lot of frito's they made me sick. CC issues with them. I could handle a little but I don't eat them anymore.

Nantzie Collaborator
Nantzie
Posted

You have a smart husband. Just make sure not to kiss him after he's had a beer. ;)

My husband eats gluten sometimes when he's out, or if he goes out to lunch when he's at work. So he doesn't feel like he's missing out on anything.

Going by my symptoms, I'd say you should be fine by the weekend. Maybe still a little achy, but that's about it. But everybody is different. Fingers crossed for ya.

Nancy

rsm Newbie
rsm
Posted
I know that whenever I had a lot of frito's they made me sick. CC issues with them. I could handle a little but I don't eat them anymore.

I have that problem with fritos in quantity and store bought tostada shells. The tostada shells are killer, for me anyway, they taste good but wow, do they make me sick.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.