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Thyroid Test?


holdthegluten

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darlindeb25 Collaborator

Thank you, another question answered!

As for the endo, I will not return to him. I can't recal if I told you about his comment. He said to me, "Just because you have antibodies does not mean there is a problem." Then he said, "If your doctor discovered you have a uterus and sent you to me because you might be pregnant, he would be at fault, just because you have a uterus, does not mean you are pregnant!" At that comment, I knew I didn't like him. In my opinion, he was degrading me, and my doctor, for my worries. He doesn't have that right. My worries are valid.


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Ksmith Contributor
Thank you, another question answered!

As for the endo, I will not return to him. I can't recal if I told you about his comment. He said to me, "Just because you have antibodies does not mean there is a problem." Then he said, "If your doctor discovered you have a uterus and sent you to me because you might be pregnant, he would be at fault, just because you have a uterus, does not mean you are pregnant!" At that comment, I knew I didn't like him. In my opinion, he was degrading me, and my doctor, for my worries. He doesn't have that right. My worries are valid.

Oh...totally! That guy is a JERK! Find a new doctor...preferably not an endo.

darlindeb25 Collaborator

Emotional stress is every bit as hard on adrenals as physical.

Someone in another forum mentioned how hard stress is on a person, especially with adrenal fatigue. I wanted to ask about stress. In November, I was looking forward to a vacation to Michigan to see my family. The vacation was to be the first week in December and believe me, it takes me time to prepare for my family. I was having stomach pains, especially during the night. On Thanksgiving Day, I was at home alone and my kids emailed me a picture of my youngest son's newborn baby. It's a long story, anyways, the minute I saw that baby, I knew it was my grandchild. My tummy got so cramped, I thought maybe it was the flu. The closer it got to vacation time, the worse I got. I was leaving on Wednesday night, on that Tuesday morning, I went to the doc thinking I may even have an ulcer. I was so stressed, she decided I was depressed/anxiety ridden and prescribed Celexa and did a thyroid panel. I actually think I had a breakdown and I did have to posepone the vacation for a couple of weeks. I did finally get to go, but not without incidents. I was stressed on the way there, so stressed on the day I was returning that I wasn't even sure I could make the trip (it's an 800 mile drive one way). Then in April, I was still dealing with anxious feelings, so they did another panel and an AB test, at my request only, also doubling my dose of Celexa. I still am having anxious feelings and of course, stress with my health, my job, my sweetheart, and my family. Then, the endo told me I am fine!

Do you think this is part of my thyroid picture? I am trying to log everything to take to the next doctor, is this worth bringing up too?

casnco Enthusiast
Hashi's is Hashimoto's Disease.

Loraleena and Ksmith--can your antibodies rise and fall too? Can they change at different times of the day? Trying to learn all I can. I just found it so strange that when this new doctor saw me, he told me he knew that my numbers would not have changed from April and they were so different. Why didn't he catch that? Never mind, I know why, cause he doesn't care.

I have been reading everything I can find on thyroid and it's amazing the different opinions out there. I think my signature says it all though, if a patient says something is wrong, than something is wrong.

Deb: Thanks for clearing up Hashi's/Hashimoto's Disease. I will google that and see if my thyroid issues are related.

Good luck with your research on the antibodies. It is a shame doctors are so busy/disinterested that we must do our own investigation and practically self diagnose.

loraleena Contributor

Prolonged stress can reak havoc on your body and health. A lot of my health issues started after prolonged stress in my former marriage. Even now, if I get stressed so many symptoms return. It can cause adrenal fatigue/burnout.

darlindeb25 Collaborator

Yesterday, I saw a new doctor that came highly recommended by a very good friend. Dr. Gewirtz is a gyno, yet she also has a nutrition center, stress management, mood disorders, interpersonal relationships--the works. My friend said she would be an excellant place to get started. Dr. Gewirtz did tell me she promises she will make me feel good again. She sits with you in her office and talks with you for some time, asking what is going on, how you feel, history, all that. She told me she wants me to see a cardiologist, just to make sure my heart is fine and to have my new heart murmur checked out--a gastro for my celiac disease and a colonoscopy--a neurologist for my neuropathy and dizziness--plus she wants to try to retrain my metabolism to work again by having me eat every 2 hours, no more than 100 calories and no more than 1200 a day. I had to have more bloodwork this am, a pelvic sonagram on Monday to check for polyps in the uterus---I am so overwhelmed by all this. I'm guessing she isn't sure about thyroid, yet says she will send me to a very good endo (of course her first recommendation is the doc I already saw). Time will tell, I guess!

Another thing that has been bothering me a little is my blood pressure. It was always low, good numbers, 110/60, then at the doc in April, 116/70, then at the endo, 120/70, today it was 110/90. 90 is not a good number, I have to wonder what is going on with it. I wasn't worried about going for bloodwork so I have no idea why it was high. The doc I saw today wants me to have x-rays on my neck and shoulders because I have so much pain there. :huh: All very difficult to take being docs have failed me so many times.

I'm betting many of you have had this same scenario played out, haven't you?

georgie Enthusiast
I'm betting many of you have had this same scenario played out, haven't you?

Yes !

Another thing that has been bothering me a little is my blood pressure. It was always low, good numbers, 110/60, then at the doc in April, 116/70, then at the endo, 120/70, today it was 110/90. 90 is not a good number, I have to wonder what is going on with it. I wasn't worried about going for bloodwork so I have no idea why it was high

90 isn't a good number but what I am seeing is an erratic BP. And that screams 'adrenal' or 'HypoPituitary' to me. Try googling Schmidt's Syndrome ..... Also called Polyendocrine or Polyglandular Autoimmine Syndrome. I can't help a lot sorry as I am just researching this myself right now.

I'm guessing she isn't sure about thyroid, yet says she will send me to a very good endo (of course her first recommendation is the doc I already saw). Time will tell, I guess!

I think you already know the answer to this one .... you are in a Drs loop there. You know that Endo doesn't have a clue re Thyroid and yet this new dr thinks he does .....


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darlindeb25 Collaborator

Thank you Georgie, I will research those and yes, I know I am in a Dr. loop. I am getting just a little scared that they will be putting me in a boat without any paddles. :( As I research thyroid, I think this has been ailing me for a lot longer than even I realized.

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      That’s a really insightful observation about antibody testing and the gluten challenge! You’re absolutely right that antibody levels can remain elevated for months or even years after going gluten-free, especially if there’s ongoing cross-contamination or occasional slip-ups. The immune system doesn’t reset overnight—it can take time for antibodies like tTG-IgA to normalize, which is why many doctors recommend waiting at least 6–12 months of strict gluten-free eating before retesting. For someone who’s been gluten-free for less than two years or hasn’t been meticulous about avoiding cross-contact, there’s absolutely a chance they’d still test positive, since even small amounts of gluten can keep antibodies elevated. This is partly why the gluten challenge (where you eat gluten before testing) exists—it’s designed to provoke a measurable immune response in people who’ve been gluten-free long enough for antibodies to drop. But you raise a great point: the challenge isn’t perfect, and false negatives can happen if the timing or amount of gluten isn’t sufficient to trigger a strong antibody response. This is why diagnosis often combines antibody tests with other tools like genetic testing or endoscopy. Your question highlights just how nuanced celiac testing can be! For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:      
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