Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Test?


holdthegluten

Recommended Posts

darlindeb25 Collaborator

Thank you, another question answered!

As for the endo, I will not return to him. I can't recal if I told you about his comment. He said to me, "Just because you have antibodies does not mean there is a problem." Then he said, "If your doctor discovered you have a uterus and sent you to me because you might be pregnant, he would be at fault, just because you have a uterus, does not mean you are pregnant!" At that comment, I knew I didn't like him. In my opinion, he was degrading me, and my doctor, for my worries. He doesn't have that right. My worries are valid.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ksmith Contributor
Thank you, another question answered!

As for the endo, I will not return to him. I can't recal if I told you about his comment. He said to me, "Just because you have antibodies does not mean there is a problem." Then he said, "If your doctor discovered you have a uterus and sent you to me because you might be pregnant, he would be at fault, just because you have a uterus, does not mean you are pregnant!" At that comment, I knew I didn't like him. In my opinion, he was degrading me, and my doctor, for my worries. He doesn't have that right. My worries are valid.

Oh...totally! That guy is a JERK! Find a new doctor...preferably not an endo.

darlindeb25 Collaborator

Emotional stress is every bit as hard on adrenals as physical.

Someone in another forum mentioned how hard stress is on a person, especially with adrenal fatigue. I wanted to ask about stress. In November, I was looking forward to a vacation to Michigan to see my family. The vacation was to be the first week in December and believe me, it takes me time to prepare for my family. I was having stomach pains, especially during the night. On Thanksgiving Day, I was at home alone and my kids emailed me a picture of my youngest son's newborn baby. It's a long story, anyways, the minute I saw that baby, I knew it was my grandchild. My tummy got so cramped, I thought maybe it was the flu. The closer it got to vacation time, the worse I got. I was leaving on Wednesday night, on that Tuesday morning, I went to the doc thinking I may even have an ulcer. I was so stressed, she decided I was depressed/anxiety ridden and prescribed Celexa and did a thyroid panel. I actually think I had a breakdown and I did have to posepone the vacation for a couple of weeks. I did finally get to go, but not without incidents. I was stressed on the way there, so stressed on the day I was returning that I wasn't even sure I could make the trip (it's an 800 mile drive one way). Then in April, I was still dealing with anxious feelings, so they did another panel and an AB test, at my request only, also doubling my dose of Celexa. I still am having anxious feelings and of course, stress with my health, my job, my sweetheart, and my family. Then, the endo told me I am fine!

Do you think this is part of my thyroid picture? I am trying to log everything to take to the next doctor, is this worth bringing up too?

casnco Enthusiast
Hashi's is Hashimoto's Disease.

Loraleena and Ksmith--can your antibodies rise and fall too? Can they change at different times of the day? Trying to learn all I can. I just found it so strange that when this new doctor saw me, he told me he knew that my numbers would not have changed from April and they were so different. Why didn't he catch that? Never mind, I know why, cause he doesn't care.

I have been reading everything I can find on thyroid and it's amazing the different opinions out there. I think my signature says it all though, if a patient says something is wrong, than something is wrong.

Deb: Thanks for clearing up Hashi's/Hashimoto's Disease. I will google that and see if my thyroid issues are related.

Good luck with your research on the antibodies. It is a shame doctors are so busy/disinterested that we must do our own investigation and practically self diagnose.

loraleena Contributor

Prolonged stress can reak havoc on your body and health. A lot of my health issues started after prolonged stress in my former marriage. Even now, if I get stressed so many symptoms return. It can cause adrenal fatigue/burnout.

darlindeb25 Collaborator

Yesterday, I saw a new doctor that came highly recommended by a very good friend. Dr. Gewirtz is a gyno, yet she also has a nutrition center, stress management, mood disorders, interpersonal relationships--the works. My friend said she would be an excellant place to get started. Dr. Gewirtz did tell me she promises she will make me feel good again. She sits with you in her office and talks with you for some time, asking what is going on, how you feel, history, all that. She told me she wants me to see a cardiologist, just to make sure my heart is fine and to have my new heart murmur checked out--a gastro for my celiac disease and a colonoscopy--a neurologist for my neuropathy and dizziness--plus she wants to try to retrain my metabolism to work again by having me eat every 2 hours, no more than 100 calories and no more than 1200 a day. I had to have more bloodwork this am, a pelvic sonagram on Monday to check for polyps in the uterus---I am so overwhelmed by all this. I'm guessing she isn't sure about thyroid, yet says she will send me to a very good endo (of course her first recommendation is the doc I already saw). Time will tell, I guess!

Another thing that has been bothering me a little is my blood pressure. It was always low, good numbers, 110/60, then at the doc in April, 116/70, then at the endo, 120/70, today it was 110/90. 90 is not a good number, I have to wonder what is going on with it. I wasn't worried about going for bloodwork so I have no idea why it was high. The doc I saw today wants me to have x-rays on my neck and shoulders because I have so much pain there. :huh: All very difficult to take being docs have failed me so many times.

I'm betting many of you have had this same scenario played out, haven't you?

georgie Enthusiast
I'm betting many of you have had this same scenario played out, haven't you?

Yes !

Another thing that has been bothering me a little is my blood pressure. It was always low, good numbers, 110/60, then at the doc in April, 116/70, then at the endo, 120/70, today it was 110/90. 90 is not a good number, I have to wonder what is going on with it. I wasn't worried about going for bloodwork so I have no idea why it was high

90 isn't a good number but what I am seeing is an erratic BP. And that screams 'adrenal' or 'HypoPituitary' to me. Try googling Schmidt's Syndrome ..... Also called Polyendocrine or Polyglandular Autoimmine Syndrome. I can't help a lot sorry as I am just researching this myself right now.

I'm guessing she isn't sure about thyroid, yet says she will send me to a very good endo (of course her first recommendation is the doc I already saw). Time will tell, I guess!

I think you already know the answer to this one .... you are in a Drs loop there. You know that Endo doesn't have a clue re Thyroid and yet this new dr thinks he does .....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Thank you Georgie, I will research those and yes, I know I am in a Dr. loop. I am getting just a little scared that they will be putting me in a boat without any paddles. :( As I research thyroid, I think this has been ailing me for a lot longer than even I realized.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,925
    • Most Online (within 30 mins)
      7,748

    Linda Stark
    Newest Member
    Linda Stark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.