Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thyroid Test?


holdthegluten

Recommended Posts

darlindeb25 Collaborator

Thank you, another question answered!

As for the endo, I will not return to him. I can't recal if I told you about his comment. He said to me, "Just because you have antibodies does not mean there is a problem." Then he said, "If your doctor discovered you have a uterus and sent you to me because you might be pregnant, he would be at fault, just because you have a uterus, does not mean you are pregnant!" At that comment, I knew I didn't like him. In my opinion, he was degrading me, and my doctor, for my worries. He doesn't have that right. My worries are valid.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ksmith Contributor
Thank you, another question answered!

As for the endo, I will not return to him. I can't recal if I told you about his comment. He said to me, "Just because you have antibodies does not mean there is a problem." Then he said, "If your doctor discovered you have a uterus and sent you to me because you might be pregnant, he would be at fault, just because you have a uterus, does not mean you are pregnant!" At that comment, I knew I didn't like him. In my opinion, he was degrading me, and my doctor, for my worries. He doesn't have that right. My worries are valid.

Oh...totally! That guy is a JERK! Find a new doctor...preferably not an endo.

darlindeb25 Collaborator

Emotional stress is every bit as hard on adrenals as physical.

Someone in another forum mentioned how hard stress is on a person, especially with adrenal fatigue. I wanted to ask about stress. In November, I was looking forward to a vacation to Michigan to see my family. The vacation was to be the first week in December and believe me, it takes me time to prepare for my family. I was having stomach pains, especially during the night. On Thanksgiving Day, I was at home alone and my kids emailed me a picture of my youngest son's newborn baby. It's a long story, anyways, the minute I saw that baby, I knew it was my grandchild. My tummy got so cramped, I thought maybe it was the flu. The closer it got to vacation time, the worse I got. I was leaving on Wednesday night, on that Tuesday morning, I went to the doc thinking I may even have an ulcer. I was so stressed, she decided I was depressed/anxiety ridden and prescribed Celexa and did a thyroid panel. I actually think I had a breakdown and I did have to posepone the vacation for a couple of weeks. I did finally get to go, but not without incidents. I was stressed on the way there, so stressed on the day I was returning that I wasn't even sure I could make the trip (it's an 800 mile drive one way). Then in April, I was still dealing with anxious feelings, so they did another panel and an AB test, at my request only, also doubling my dose of Celexa. I still am having anxious feelings and of course, stress with my health, my job, my sweetheart, and my family. Then, the endo told me I am fine!

Do you think this is part of my thyroid picture? I am trying to log everything to take to the next doctor, is this worth bringing up too?

casnco Enthusiast
Hashi's is Hashimoto's Disease.

Loraleena and Ksmith--can your antibodies rise and fall too? Can they change at different times of the day? Trying to learn all I can. I just found it so strange that when this new doctor saw me, he told me he knew that my numbers would not have changed from April and they were so different. Why didn't he catch that? Never mind, I know why, cause he doesn't care.

I have been reading everything I can find on thyroid and it's amazing the different opinions out there. I think my signature says it all though, if a patient says something is wrong, than something is wrong.

Deb: Thanks for clearing up Hashi's/Hashimoto's Disease. I will google that and see if my thyroid issues are related.

Good luck with your research on the antibodies. It is a shame doctors are so busy/disinterested that we must do our own investigation and practically self diagnose.

loraleena Contributor

Prolonged stress can reak havoc on your body and health. A lot of my health issues started after prolonged stress in my former marriage. Even now, if I get stressed so many symptoms return. It can cause adrenal fatigue/burnout.

darlindeb25 Collaborator

Yesterday, I saw a new doctor that came highly recommended by a very good friend. Dr. Gewirtz is a gyno, yet she also has a nutrition center, stress management, mood disorders, interpersonal relationships--the works. My friend said she would be an excellant place to get started. Dr. Gewirtz did tell me she promises she will make me feel good again. She sits with you in her office and talks with you for some time, asking what is going on, how you feel, history, all that. She told me she wants me to see a cardiologist, just to make sure my heart is fine and to have my new heart murmur checked out--a gastro for my celiac disease and a colonoscopy--a neurologist for my neuropathy and dizziness--plus she wants to try to retrain my metabolism to work again by having me eat every 2 hours, no more than 100 calories and no more than 1200 a day. I had to have more bloodwork this am, a pelvic sonagram on Monday to check for polyps in the uterus---I am so overwhelmed by all this. I'm guessing she isn't sure about thyroid, yet says she will send me to a very good endo (of course her first recommendation is the doc I already saw). Time will tell, I guess!

Another thing that has been bothering me a little is my blood pressure. It was always low, good numbers, 110/60, then at the doc in April, 116/70, then at the endo, 120/70, today it was 110/90. 90 is not a good number, I have to wonder what is going on with it. I wasn't worried about going for bloodwork so I have no idea why it was high. The doc I saw today wants me to have x-rays on my neck and shoulders because I have so much pain there. :huh: All very difficult to take being docs have failed me so many times.

I'm betting many of you have had this same scenario played out, haven't you?

georgie Enthusiast
I'm betting many of you have had this same scenario played out, haven't you?

Yes !

Another thing that has been bothering me a little is my blood pressure. It was always low, good numbers, 110/60, then at the doc in April, 116/70, then at the endo, 120/70, today it was 110/90. 90 is not a good number, I have to wonder what is going on with it. I wasn't worried about going for bloodwork so I have no idea why it was high

90 isn't a good number but what I am seeing is an erratic BP. And that screams 'adrenal' or 'HypoPituitary' to me. Try googling Schmidt's Syndrome ..... Also called Polyendocrine or Polyglandular Autoimmine Syndrome. I can't help a lot sorry as I am just researching this myself right now.

I'm guessing she isn't sure about thyroid, yet says she will send me to a very good endo (of course her first recommendation is the doc I already saw). Time will tell, I guess!

I think you already know the answer to this one .... you are in a Drs loop there. You know that Endo doesn't have a clue re Thyroid and yet this new dr thinks he does .....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Thank you Georgie, I will research those and yes, I know I am in a Dr. loop. I am getting just a little scared that they will be putting me in a boat without any paddles. :( As I research thyroid, I think this has been ailing me for a lot longer than even I realized.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.