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What Do People Know About Iron Infusions

anemic

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anemic Rookie
anemic
Posted

Hello everyone!

I have had 10 iron infusions in the last ten weeks that was supposed to cure my severe anemia from celiac. At first the treatments appeared to be working fairly well but in the last month or so my ferritin has levelled off and is no longer increasing with treatment. I will be seeing my hemotologist in a month or so to discuss the problem but wondered if anyone else has had this. Of course, my worry is that it is not just celiac but also another disease affecting my blood. Any thoughts would be most appreciated.

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CarlaB Enthusiast
CarlaB
Posted
Of course, my worry is that it is not just celiac but also another disease affecting my blood.

You might Google babesia and malaria. They both go after red blood cells.

Rusla Enthusiast
Rusla
Posted

I have had iron infusions and had to also continue to have iron shots. I got sick of the needles and feeling like a junkie with non or the hallucinations so, I have opted for sublingual b-12 they work great as long as I take them. If I forget my B-12 and ferratin drop like a stone.

  • 4 weeks later...
JodiC Apprentice
JodiC
Posted

I am going to be going in this week for iron inffusions. I was really hoping they would work and I would feel alittle better. I wonder if there isn't some bleeding going on somewhere in your body that is causing this. What is the rest of your bloodwork like? I am dealing with extremely low levels of iron, D and C (scurvy).

confusedks Enthusiast
confusedks
Posted

Hello,

I had a treatment of 5 IV's of iron (consecutively) and they raised my ferritin from nothing (literally came back on labs as .3<) After the treatments it went up to 130!!! This was great, but then they went back down to 40 in less than 4 weeks. The doctor told me to make SURE I was taking Folic Acid while the treatments, and I should keep taking them, but that's a whole other issue. You must be taking this for the iron to absorb in your body. Talk to your hematologist about how much to take. I hope this helps.

feel free to PM me if you have and questions or just wanna talk

Kassandra

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