Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Caffeine?


holdthegluten

Recommended Posts

holdthegluten Rising Star

Does anyone react to caffeine strangely. I took an excedrin tension headache pill today, and i felt all jittery, shaky,weak, and lost my appetite. Does anyone react this way to caffeine. It only has 65mg in it. It took my headache away, but made me feel so anxious and nervous.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

Yeah....I cant have caffeine at all. I've avoided it completely for a few years now. I get all those symptoms you listed....thats why I dont touch it. My liver is dealing with alot of toxins from other issues...I cant handle stuff like caffeine, alcohol, chemicals, etc.

VydorScope Proficient
Does anyone react to caffeine strangely. I took an excedrin tension headache pill today, and i felt all jittery, shaky,weak, and lost my appetite. Does anyone react this way to caffeine. It only has 65mg in it. It took my headache away, but made me feel so anxious and nervous.

While I do not react like that, that is normal for some people. In fact the lost of appetite part is why many diet pills have caffeine in them. Acts as a stimulant so you burn more calories, and suppresses your appetite at the same time. The other things you listed are very common side effects to getting more caffeine then your system can handle.

holiday16 Enthusiast
Does anyone react to caffeine strangely. I took an excedrin tension headache pill today, and i felt all jittery, shaky,weak, and lost my appetite. Does anyone react this way to caffeine. It only has 65mg in it. It took my headache away, but made me feel so anxious and nervous.

I was wondering about that too. I've been gluten free for about 6 months and I noticed that I'm starting to have a reaction like what you described if I have really strong coffee. I used to make Starbucks, but started to react so I switched to a water process decaf which has been fine. Made the regular Starbucks again the other day and felt bad for quite some time. I thought maybe it was just that brand which seems pretty strong (even though it was not as strong as what we used to get), but we stopped and got McDonalds coffee today and even though I only drank a little bit I reacted to that as well.

I used to be able to have these before going gluten free and was fine with just one cup, but now I'm reacting. I'd love to know why going gluten free would affect that if anyone knows! Thank goodness I never drank much caffeine so it's not that hard to cut out for me. I can still drink tea with caffeine just not coffee.

aikiducky Apprentice

I'm not sure this is true, but maybe it's that you didn't absorb all of the caffeine before going gluten free? I don't know how caffeine is absorbed though so I'm not sure this would be it.

I have a similar reaction to big amounts of caffeine, but I've learned to recognize what my limit is, and as long as I don't exeed it, I can have some. I prefer tea though because i can drink more of it before getting jittery. :)

Pauliina

AkBravo34 Rookie

Well I'm horrible and sometimes substitute a Coca-Cola for a meal...I find that if I have two or so sodas throughout the day my stomach starts going crazy...could be because of the caffene and carbonation that makes me feel that way and lack of substaintial food in my system...sometimes if you aren't eating enough, caffene can really mess with you!

VydorScope Proficient
Well I'm horrible and sometimes substitute a Coca-Cola for a meal...I find that if I have two or so sodas throughout the day my stomach starts going crazy...could be because of the caffene and carbonation that makes me feel that way and lack of substaintial food in my system...sometimes if you aren't eating enough, caffene can really mess with you!

Or all that sugar... esply on an empty stomach, not at all a good plan. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.