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Anyone Know Of Good Celiac Doctor In Minnesota - Twin Cities?

GFinMN

By GFinMN
in Doctors

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GFinMN Apprentice
GFinMN
Posted

Anyone recommend a celiac specialist in the twin cities area?

  • 1 month later...
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skyepie Newbie
skyepie
Posted

There are wonderful GI doctors who specialize in celiac disease at Mayo Clinic in Rochester. Drive an hour, it'd be worth it. One of the leading researchers in the field is located there. Also, there is a Gluten-Free Cupboard grocery store and a Good Food Store in Rochester, both have a wide variety of gluten-free products.

Katydid Apprentice
Katydid
Posted

I ditto the suggestion of Mayo because they have a renowned specialist there. I think his name is Dr. Murray At the very least, you could call and ask them for a referral to a good celiac doctor in the cities. Oh - If you do go to Rochester, be sure and check out that Gluten Free Cupboard the previous poster mentioned. They are just a little teeny store, but they have absolutely everything.

kbtoyssni Contributor
kbtoyssni
Posted

Not a celiac specialist, but my GP is great if you're looking for a yearly doc who won't give you the evil eye when you mention you have celiac and will know what to look for. I go to Ronda Stellar at the Shoreview Medical Clinic. She says whenever she gets someone who's having trouble getting pregnant, she'll test them for celiac. She's also been to several talks about it so she' pretty knowledgeable and realizes there's more to it than the stereotypical symptoms.

sparkles Contributor
sparkles
Posted

This is not about a doc but if you live in the twin cities, there is a great grocery store called Fresh and Natural. There is one in Shorview and one in Bloomingtom. They have tons of gluten-free foods, seminars, even cooking class. It puts both Trader Joe's and Whole Foods to shame. Also there are two great gluten-free bakeries in Mnpls and Eagan. Both have foods at Fresh and Natural!!!!

GFhopeful Rookie
GFhopeful
Posted

MN Gastroenterologists is a group of doctors that practice around the Twin Cities. I am new to Celiac but when in the hospital, this group saw me and are the ones who recommended the endoscopy when I did not have symptoms typical of Celiac. Don't yet know how good they are but am also thinking of driving down to Mayo and having them take a look at everything as a second opinion. Good luck.

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    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
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      By tiffanygosci · Posted

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    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
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      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
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