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Need Test Info. & Address'es


Guest j.louise

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Guest j.louise

Help....I have been a lurker and now trying to find out where and how to get tested for Glutin and Celiac. I will appreciate what ever info. anyone can give me. This site is so overwhelming that I just don't know where to begin.


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mftnchn Explorer
Help....I have been a lurker and now trying to find out where and how to get tested for Glutin and Celiac. I will appreciate what ever info. anyone can give me. This site is so overwhelming that I just don't know where to begin.

Wecome to the forum!

Your doctor should be able to order the blood test panel for celiac. You can start there. He/she may not be aware about celiac but try to insist on the test.

If your blood tests are positive he/she should schedule a biopsy. A good doctor will do that anyway if you have celiac symptoms because you can have negative blood tests and positive biopsy.

Be sure to do both the blood tests and the biopsy before you start the gluten free diet.

If both blood test and biopsy is negative, but you still think you may have it you can try enterolab stool test which may be more able to pick up gluten insensitivity before so much damage is done in the intestine. Again it is best to do this before going gluten free or at least early on in the diet.

Finally, you can try the diet which is the most accurate test anyway! If you do, remember that you have to be very strict about all sources of gluten in your food as well as what you might mistakenly ingest by using personal care products with gluten or being around gluten food. (Crumbs, flour in the air, etc.) Also remember it can take quite a while to feel better.

On this site if you search the Pre-Diagnosis Testing and Symptoms thread for your questions, like blood tests, enterolab, biopsy, or your symptoms, it may help you find the information you want more quickly.

Yes, it is overwhelming, so just tackle one question/topic at a time. Wade right in here, and ask questions and people will help you!

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    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
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      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
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      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
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