Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy And Biospy Result


grey

Recommended Posts

grey Explorer

So, I survived the scope and biopsy (which is hurting more than expected now that I'm awake). The gastro gave me three pictures of "abnormalites" from the procedure. I've been trying to look them online, but am getting progressive more freaked out/confused.

I think picture #2 is suggestive of celiac disease, from what I've read, in combo. with my symptoms and position tTG (35).

1. Hiatal Hernia

Cardia

2. Mild scalloping of folds

2nd portion Duodenum

3. salmon coloured mucosa

Distal Esophagus.

The info. online I was getting mentioned survery for #1 and cancer for #3. And the gastro actually wanted to see me agan within theweek. Which is rare.

Has anyone these come up in their endoscopy results?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
So, I survived the scope and biopsy (which is hurting more than expected now that I'm awake). The gastro gave me three pictures of "abnormalites" from the procedure. I've been trying to look them online, but am getting progressive more freaked out/confused.

I think picture #2 is suggestive of celiac disease, from what I've read, in combo. with my symptoms and position tTG (35).

1. Hiatal Hernia

Cardia

2. Mild scalloping of folds

2nd portion Duodenum

3. salmon coloured mucosa

Distal Esophagus.

The info. online I was getting mentioned survery for #1 and cancer for #3. And the gastro actually wanted to see me agan within theweek. Which is rare.

Has anyone these come up in their endoscopy results?

Don't jump to any conclusions and go easy on the internet searches, they can scare the crap out of you. I also had the hiatal Hernia, scalloping folds and gastritis.

Spend your time here learning as the scalloping of the duodenum indicated that you can set up camp here.

I'll step aside for others. Stay cool :)

Guest j_mommy

I also had a hiatal hernia. This is (according to my GI) not a big deal unless it's bothering me. It does not bother me....I don't have reflux or anything like that and when they did the scope they didn't notice any problems in my throat.

hope this helps!!

grey Explorer

Thanks -it's good to know others have had multiple things turn up in the biopsy. I also tried searching the fora, but wasn't getting references to hernia and the esophagus.

I'll back away from the general internet searching though! I think that's the right thing to do.

(It's amazing. I generally feel fine, but as I'm trying to type, it's *really* hard. Must be the left-over demerol in my system. Now I know why they said don't make decisions for another 12 hours. I'm so glad someone esle could me drive me home.

happygirl Collaborator

grey: so are you going on the gluten-free diet now that your biopsy is over? or what are your plans/instructions?

I'm sorry you are having a hard time after the procedure...I sure hope that it passes quickly. Hopefully you'll get a good nights sleep!

Lisa Mentor
Thanks -it's good to know others have had multiple things turn up in the biopsy. I also tried searching the fora, but wasn't getting references to hernia and the esophagus.

I'll back away from the general internet searching though! I think that's the right thing to do.

(It's amazing. I generally feel fine, but as I'm trying to type, it's *really* hard. Must be the left-over demerol in my system. Now I know why they said don't make decisions for another 12 hours. I'm so glad someone esle could me drive me home.

You will feel some much better in the morning. I had to ask my husband about 20 times what the doctor said. After a good night sleep and knowing that the proceedure is over....every thing is uphill from now. Consider this a new beginning toward health and wellness.

grey Explorer

My "instructions" were to eat a 'heartburn diet'; I found them kind of amusing, given my other health stuff. It includes thinks like avoid fried food, chocolate, coffee, tight clothing, smoking, lose weight, & eat less. (Um... I just lost 35 lbs, isn't that part of why I'm here?) I only wish I could eat chocolate and coffee w/o a migraine! And don't smoke and pretty much have to force myself to eat anyway. Ah well.

I will meet with the gastro on Thursday week to talk about the results of the biopsies and what's next about deficiencies, etc.

It's my plan, however, to begin going gluten-free. All the tests are done, and the past few weeks it has seemed like wheat has been getting increasingly bad. So I'm starting in the morning (with the exception of medicines & lotions, I'm still looking those up!)

I'm really hopeful that going gluten-free will help! Right now, it seems more exciting than scary. I hope that lasts a little while. ;)

grey: so are you going on the gluten-free diet now that your biopsy is over? or what are your plans/instructions?

I'm sorry you are having a hard time after the procedure...I sure hope that it passes quickly. Hopefully you'll get a good nights sleep!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

Sometimes it's hard...not going to lie! But it's more exciting then hard most of teh time b/c now you know what makes you sick and you can fix it!!! That was the best part for me!

I had a GI appt today and my dr says to me I really have to do this diet. I kinda laughed b/c I have been doing it since my biopsy and b/c I KNOW THAT!!!LOL I don;t want to be sick anymore.

Just remember you're on the road to good health...every road has bumps but once you're on it for awhile..it will get easier.

Good Book: Living Gluten Free for Dummies by Dana Korn & Celiac Disease: A Hidden Epidemic by Dr. Green.....you can by both at amazon .com for about $30 if you buy them together!

grey Explorer

j_mommy - Thanks for the book references -I had one but not the other - I was too impatient for Amazon & went to Borders instead!

My results came back today and confirmed the celiac:

Complete loss of villous architecture, crypt hyperplasia, active chronic inflammation, and intraepithelial lymphocyctosis.

They also did a biopsy of my esophagus to check for Barrett's, and that turned out ok (no Barrett's); which is good news.

I'm excited, although nervous and a little scared too. I can't quite believe that I know what has been making me sick for so long! I started gluten-free yesterday and I'm really hopeful, which is a strange but good feeling to have about my health. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,039
    • Most Online (within 30 mins)
      7,748

    Briannas01
    Newest Member
    Briannas01
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.