Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Someone Has Very Possible Symptoms Of Celiac/gluten Intolerance...


Glutenfreefamily

Recommended Posts

Glutenfreefamily Enthusiast

I have a habit of when I feel like I have seen the light that I love to help others to feel good also. Well honestly no one seems to want to know about it :rolleyes: With kids I mention it always but with adults sometimes I hesitate to mention it since they dont want to change their foods no matter how much I hear about their physical ailments. Two have seemed very interested in it till they found out there is no magic pill and it requires a diet lifestyle change.

I know its hard to take at first but i just wish someone could have told me about it 10 years ago. I get really frustrated when its with kids, As a parent myself I try to do everything I can for them for their health. I'm getting sick of getting blown off though <_< my husband tells me I shouldn't bother with it. I just have a hard time doing that knowing their suffering. I have always had the mother personality and want to take care of others and help them.

Do you share with others? How have they responded?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kyalesyin Apprentice

I always tell people. Even if its just someone saying 'y'know, I feel real bloated today' I pop up with, 'have you ever figured you might be gluten intolerant? Lotta people are...'

I mention it every time I get chance. Little and often seems to percolate gently into peoples brains... more often than not, people will reject a new concept the first time they hear it no matter what its about, and about 95% of the time, you let them sit and think about it they'll start to come around to it on their own when they've had time to think about it rationally. Its the way I have to do things with my wife- tell her something, then back off for a day or so and let her think about it, and then bring it up again.

darlindeb25 Collaborator

Yup, I always share with others too. If they do not want to think about what I tell them, then that is up to them. It has been proven now that gluten intolerance is not rare and the only way people will find out is by us explaining it to them. Doctors certainly are not "in the program" as of yet. Just tell them you are working along beside their guardian angel! :)

aikiducky Apprentice

I usually focus on how I myself feel better and my symptoms have improved. Like "I used to be bloated all the time too, but luckily it has gone away since I discovered that I was reacting to gluten" or something like that. Then if people are interested they ask questions and if they're not, I don't pursue it further.

Pauliina

Belinda Meeker Apprentice
I usually focus on how I myself feel better and my symptoms have improved. Like "I used to be bloated all the time too, but luckily it has gone away since I discovered that I was reacting to gluten" or something like that. Then if people are interested they ask questions and if they're not, I don't pursue it further.

Pauliina

Good-one Pauliina (lol) reverses sigology :)

binky1246 Rookie

In my excitement about feeling better, I have mentioned it to a few people. The thing I am learning is that people aren't very receptive about it. Once they find out what is involved, their health isn't worth it. It saddens me, because it is family and I know they have it. I guess that I will continue to live my life and let them live theirs. My question is, when they complain about how they feel, should I care or tell them it is their choice and I don't want to hear it? Probably harsh, but when people don't help themselves, it frustrates me.

Glutenfreefamily Enthusiast

Thanks Everyone :) I met someone who was skinny as a rail, said she couldnt put on weight, had brain fog, arthritic joints and was always nauseous with upset stomach. She said she didnt know what to do about it. I mentioned to her about the gluten free diet and that might take care of it. I always mention this site to since they might want to investigate on their own but she said she was too weak at first to make food then she said it is probably expensive. So I figured I left the little mark there and hopefully she will investigate it one day. I always mention it to parents of kids with adhd, autism, or behavior problems. My sister shared it with her school district about a casein free gluten free diet since none of the other social workers knew it might help the kids including my sister.

binky- I dont know what to tell you either, Im dealing with the same thing. I dont know whether to blow them off or listen to them over and over again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kaycee Collaborator

I haven't read all the postings for this, as I have to go to work in a minute. But I feel we have to share the information about gluten.

I have just been reminded in an article I have read, that 1 in 100 can have coealiac, and 1 in 10 can be gluten sensitive (Intolerant). I feel we need to let people know. I passed this article to three other people in total at work yesterday and it had a list of symptoms, and all three people said "hang on a minute I've got most of those!"

So I will tell them and leave it to them to make up their own minds about what they would like to do about it.

Cathy

Glutenfreefamily Enthusiast
I haven't read all the postings for this, as I have to go to work in a minute. But I feel we have to share the information about gluten.

I have just been reminded in an article I have read, that 1 in 100 can have coealiac, and 1 in 10 can be gluten sensitive (Intolerant). I feel we need to let people know. I passed this article to three other people in total at work yesterday and it had a list of symptoms, and all three people said "hang on a minute I've got most of those!"

So I will tell them and leave it to them to make up their own minds about what they would like to do about it.

Cathy

Thanks Cathy

I am going to share too, I just feel like the celiac poster child sometimes :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.