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Stanford Celiac Clinic


JamiD

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JamiD Apprentice

Anyone been seen there?

My GI is referring me, but I don't know if I'll be accepted based on elevated antibodies alone.


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holdthegluten Rising Star
Anyone been seen there?

My GI is referring me, but I don't know if I'll be accepted based on elevated antibodies alone.

Im trying to get in with the dietician Pat Kearney. I found it online and had no idea it was reputable. Ill let you know if i get in there. Are you trying to see a doctor or dietician?

JamiD Apprentice

Holdthegluten, I'm just trying to get in and hope that someone is familiar enough with this disease and its healing patterns to make sure I'm on the right track and that nothing has been missed.

I'm not eating anything but meat, green vegetables, and fruit plus all the usual supplements and I'm still low on energy.

Rachel--24 Collaborator

About a year and a half ago I wanted to see the head GI at the Stanford clinic (forget her name). They wouldnt accept me without a positive biopsy. Mine was negative but had been done after 6 months gluten-free.

They were going to schedule me with another Dr. there but wanted all my records from my previous GI first. I ended up never going because I found other Dr.'s in the meantime.

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    • RMJ
      I agree with @trents, they should have run a total IgA.  What was the normal range for the DGP IgA test?  Different labs use different units thus have different normal ranges.
    • Churro
      Thanks for your assistance. 
    • trents
      Get your total IGA checked to make sure your celiac antibody test scores are trustworthy.   
    • Churro
      I do eat 4 slices of wheat bread with almond butter. Yes it was a reference to my iron consumption. 
    • trents
      To give you a frame of reference for pretesting gluten consumption necessary to ensure valid antibody testing, here is the current recommendation for those who have been on a gluten free diet: The daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks. Not sure why you mentioned eggs and chicken. They are not sources of gluten. Was that in reference to dietary iron consumption?
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