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Hello Everyone

Zenaida

By Zenaida
in Coping with Celiac Disease

Recommended Posts

Zenaida Newbie
Zenaida
Posted

Hello to everyone. My husband and daughter have been recently diagnosed with Celiac disease. I can't tell you how this news has hit me. I feel so bad for both of them I don't know what to do or say. I can't go on.

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psawyer Proficient
psawyer
Posted

Welcome to our community. You will find lots of support here, and the people here will have answers to your questions.

Celiac is overwhelming at first, but it gets easier every day. I`m coming up on 7 years diagnosed, but had years of misery before learning what the cause was. Saw far too many emergency rooms and EMTs while trying to figure it out.

The good news is now you know, and you can cope with it. It will only get better as their health improves on the gluten-free diet.

missy'smom Collaborator
missy'smom
Posted

Welcome. It's a challenge but I am so greatful that I know what's wrong and I can do something about it. Knowledge is power. Just take it one day at a time.

CarlaB Enthusiast
CarlaB
Posted

You CAN go on!!

It's very difficult in the beginning, but as time goes on it's second nature. I have replaced everything I used to eat with gluten-free versions ... but I never ate very many sandwiches (the gluten-free bread is good toasted and for grilled cheese).

Our whole house eats gluten-free at home, which makes it easier. Three of us are on the diet.

Tinkyada Pasta is a great rice pasta. In the beginning it's easier, and healthier, to eat whole foods that are naturally gluten-free -- meat, poultry, fish, eggs, fruit, vegetables, potatoes, rice. You will find that eating gluten-free really forces you to eat healthier!

There are gluten-free products that replace regular food. They are expensive, but good for treats. I manage to do without them except for the pasta, Kinnikinnick bread, and Van's waffles.

In the beginning they may need to cut out dairy. If there is damage to the intestinal villi, then the part is gone that digests lactose. Then they can add it back later (unless they're casein intolerant).

Welcome to the forum! You will learn a lot here and realize that it's not all that bad. It's a disease whose cure is a change in diet.

pedro Explorer
pedro
Posted

Hi everyone.

You met my lovely wife Zenaida.

We have been married for 17 years, with three beautiful daugthers.

Best regards to everyone.

Lisa Mentor
Lisa
Posted
Hello to everyone. My husband and daughter have been recently diagnosed with Celiac disease. I can't tell you how this news has hit me. I feel so bad for both of them I don't know what to do or say. I can't go on.

Welcome to our world. Your pedro has been a wonderful member here and with hopes you wil join us as well.

A good person to talk to is Nikki, she is not celia, but her family is. She lives in the UK but she is a great person to talk to. We'll hook you up.

nikki-uk Enthusiast
nikki-uk
Posted
Welcome to our world. Your pedro has been a wonderful member here and with hopes you wil join us as well.

A good person to talk to is Nikki, she is not celaic, but her family is. She lives om the UK but she is a great person to talk to. We'll hook you up.

I'M HERE!!! ...Just found this thread! :)

HI ZENAIDA!! (Is that you in Pedro's avatar?)

Yup as Lisa said my hubby + son #2 are coeliacs (son's #1 +3 tested neg)

When my hubby was dx nearly 3 yrs ago he was so very ill that we were just pleased to find out what was wrong.

Adjusting to the gluten-free diet was tricky at first (and OMG the first supermarket shop took HOURS while I read the ingredients of EVERYTHING!! :rolleyes: )

...but slowly but surely it got easier.You get to know (and store in your brain!) what's ok,-what's not and when you see your loved ones slowly but surely get better it's fantastic!!!

...Because of my hubby's dx of celiac disease I thought it was prudent to get the children tested but strongly suspected son #2 as he's always had bathroom issues.

He was dx in Oct 06 and took to the gluten-free diet with no problems whatsoever as he thought it was 'cool' that he got to eat what Dad does!!!

I must admit it was very easy adding my son to the gluten-free diet as we were already set up for my hubby. :)

I am actually gluten-free as well (although not a coeliac,- I found it clears my eczema if I avoid gluten)

Our evening (family) meals are gluten-free so we can all eat together and it's now become second nature to me.

It can feel overwhelming at first constantly having to check everthing but trust me it DOES get easier with time! :)

Please ask any questions you have or PM me if you want to :)

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mftnchn Explorer
mftnchn
Posted

Welcome! I'm so glad you're here!

It is overwhelming--I'm still in that stage, plus still having a lot of ups and downs and wishing to feel a lot better. A day at a time is certainly helpful;

Also approaching the changes knowing it is going to take a good while. Its helped me to read other's stories and know that most people have experiences accidental glutening as they figure this whole thing out.

Zenaida Newbie
Zenaida
Posted
  • Author

Hi, Nikki and the rest of you. I'm glad to be a part of your family. I have the same problem as you, we have decided to all go gluten free. It's not fair to the other girls or myself but it's the best thing that can happen to us. We will be going away on vacatin soon so we'll see how we do. I'll keep you posted, as to how it goes. Bye for now

Lisa Mentor
Lisa
Posted

I guarentee that soon you and pedro will be fighting for the computer to visit us. :P

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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