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Adjusting Medication?...

holiday16

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holiday16 Enthusiast
holiday16
Posted

gluten free due to increased absorption, about how long after being gluten free did you have to do it? I've been having some problems lately and I'm beginning to wonder if it's because now that I'm absorbing more my med dose could be too high. I'm going to call the Drs. office tomorrow to ask and hopefully it's that simple since that's a very easy fix!

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Guest j_mommy
Guest j_mommy
Posted

I would say that it is a definate possibility that you would need to adjust meds!! You and your Dr may have to play with the dose for awhile to get the right amount especially if you're newly gluten-free!

Make sure that your meds are gluten-free though!

holiday16 Enthusiast
holiday16
Posted
  • Author

Looks like this was the problem. I had my meds adjusted and I am feeling so much better. Not sure yet what the final dose will be as I'm still playing with it, but it feels great to be lowering it for the first time in years. Great to know this diet is doing me good!

marciab Enthusiast
marciab
Posted

I had to reduce my Klonopin for myoclonus after 7 months on the diet. It was starting to make me feel completely drugged out during the day. I was too wiped out to hold my head up ... However, since I have been sick with CFS since 1990 and was accustomed to feeling dragged out and sleepy, if the Klonopin had become too strong any sooner than 7 months, I would have just chalked it up to CFS fatigue / drowsiness.

I slowly decreased this med since I had been taking it for 16 years and it is known to cause seizures if reduced too quickly. It took me 4 months to get off of .5 to 1.0 mg.

FWIW: My doctor did not want me to completely come off this med as she thought I had anxiety issues. :P But, I did it anyways ... It wasn't really anxiety. It was a jittery feeling I had been getting from gluten, corn, etc.

So far so good. I haven't had any since August 2006. I've had a few nites of jerking, but these episodes appear to be related to cross contamination with gluten.

Hope this helps ... marcia

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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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