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- trents replied to colinukcoeliac's topic in Gluten-Free Restaurants11What should I expect from a UK restaurant advertising / offering "Gluten Free" food
@cristiana, no, I'm asking if, when you eat out, do you actually experience symptoms of gluten exposure apart from any consideration of blood antibody test scores? -
- trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Persistent isolated high DGP-IGG in child despite gluten-free diet
Like you, I was a silent celiac. I was largely asymptomatic insofar as GI symptoms were concerned. The first real evidence, retrospectively, of having celiac disease was the development of mildly but persistently elevated liver enzymes which initially was discovered when I tried to donate blood at age 37. That was in about 1987. Of course, my PCP checked... -
- Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications4Reverse Osmosis (RO) Water
Initially I was going to re-post all of the threads that have people stating they drink or recommend RO water. There are just too many to post, so I'll recommend using the search feature here to find them all. There are currently 4 pages worth of posts with people mentioning or recommending RO water/filtration systems. Granted, some of the search results... -
- Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications5
What would you do - neighbor brought gluten-free pizza from Papa Murphy's
I could not agree with you both more. I still haven't bumped into my neighbor's mom to explain, but I am certain she will understand. I am in play it safe and error on the side of caution mode right now. I see no point in taking any unnecessary risk. Thank you both for your time and thoughts. -
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@cristiana, no, I'm asking if, when you eat out, do you actually experience symptoms of gluten exposure apart from any consideration of blood antibody test scores? -
Like you, I was a silent celiac. I was largely asymptomatic insofar as GI symptoms were concerned. The first real evidence, retrospectively, of having celiac disease was the development of mildly but persistently elevated liver enzymes which initially was discovered when I tried to donate blood at age 37. That was in about 1987. Of course, my PCP checked me for all the hepatitis varieties but cold not find any reason for the elevated liver enzymes. I was also slipping into mild anemia by the time I was in my late 40's and had developed some occasional loose stool and oily stool. My PCP had no clue. I was really concerned about the liver enzymes as they were steadily increasing though never got to alarming levels. My PCP threw his hands up and said during one office visit, "I don't know why your enzymes are elevated. Maybe that's just the way your are." Well, that was not a satisfactory answer. This was about year 2000 and it was not well known that one of the atypical symptoms of celiac disease is elevated liver enzymes. In fact, it happens in about 18% of celiacs. Finally, I booked an appointment with a GI doc who tested me right away for celiac disease and I was positive, both for blood work and biopsy. Within a few months of eliminating gluten my liver enzymes had normalized. But it took 13 years to get a diagnosis. And by that time I had developed osteopenia. Sorry for the long-winded story. My point is, celiac disease can be very slow in developing. By the time symptoms manifest themselves to the extent where they get your attention such that you seek testing, much damage can already be done to body systems. You and your son are very smart to be be pursuing this thing early in his life and let me encourage you, that whatever the next round of testing reveals, you continue to get testing done on a regular basis.
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Initially I was going to re-post all of the threads that have people stating they drink or recommend RO water. There are just too many to post, so I'll recommend using the search feature here to find them all. There are currently 4 pages worth of posts with people mentioning or recommending RO water/filtration systems. Granted, some of the search results are from this thread. For me, it causes major issues with my stomach and as mentioned, there is no way I will ever intentionally drink it again. As we know, everyone's body is different. I am certainly not looking for a debate, but do highly advise anyone considering RO water to do their own research. Consider starting with this Google search: Is reverse osmosis water safe to drink long term?
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I could not agree with you both more. I still haven't bumped into my neighbor's mom to explain, but I am certain she will understand. I am in play it safe and error on the side of caution mode right now. I see no point in taking any unnecessary risk. Thank you both for your time and thoughts.
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Brilliant news for British Coeliacs! Colin was launched in 1990 so I am fortunate in that I was able to try this amazing chocolate swissroll cake before my diagnosis. But the good news is he has now appeared in the Gluten Free aisle at M&S, and also is available home delivery through Ocado. https://www.marksandspencer.com/food/made-without-wheat-gluten-free-colin-the-caterpillar/p/fdp60761680
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