Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hitting Rock Bottom Today


georgiagirl

Recommended Posts

georgiagirl Rookie

Hi everyone,

I'm three months diagnosed, and three months gluten free. I ate something last night at the beginning of a great concert. It was labeled as gluten free, but obviously had gluten in it, or was cross-contaminated.

The abdominal pain was excrutiating. I suffered through the concert (miserable) and came home and cried myself to sleep.

I've had a positive attitude to this illness up till now. Today I've hit rock bottom. Learning that I can't trust the "gluten free" food is devastating. I feel like all the hard work and discipline I've put into the last 3 months has been wiped out by a company that's careless about insuring their products aren't cross contaminated.

:(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissy Collaborator

try not to get too discouraged. there are so many things that can cause symptoms similar to "glutening" symptoms. it can be too easy to automatically assume that gluten is the culprit.

Guest j_mommy

I'm sorry you had a bad expierence!!!!

Always check labels....even if it says gluten-free and CC is an issue!

but as Chrissy said it could have been something else entirely.....food left out too long, something you drank, a bug ect!

I hope you feel better soon!

Susanna Newbie

Bummer--so sorry you were violated that way. That really sucks.

But.

The good news is that over all, since you went gluten free, your gut has been healing. Likely, you've been feeling better too, no? And, by going gluten-free, you've been lowering your risk of all kinds of BAD health problems down the line. GOOD FOR YOU! So, put your focus on the fact that you're doing the right thing for your body. You're doing your best. Pat yourself on the back for making the big change and sticking with it. Don't expect perfection from yourself or the food industry. Forgive the food or the manufacturer of the food that made you sick. Accept that once in a while, you or someone else might make a mistake that gets you temporarily sick, and use those times to appreciate how GOOD you feel the rest of the time. Forgive the mistake. Learn from it. Stay gluten free. Feel better.

I'm just 15 months into my gluten-free life, and I got glutened recently at a restaurant where I'd eaten gluten-free successfully several times. Will I go back? I think I will, but I learned a few things about how to order from this recent glutening and you better believe I'll be savvier next time. I learn something from each glutening that will help me protect myself better in the future.

It really does take time to adjust to this disease--I was much more upset by setbacks like the one you just had when I was just diagnosed. I tolerate these bumps in the road more in stride now, and I bet you will too in time.

Good luck.

Susanna

chrissy Collaborator

gerogiagirl---in case it helps any, feeling discouraged about this disease probably gets all of us, occasionally, at times. my girls have been diagnosed for about 1 1/2 years-----and i still occasionally cry about it----i just don't let them know. i can't tell you how much i wished it was me instead of my kids when they got the diagnosis.

georgiagirl Rookie

Thanks so much to all of you who replied and offered me support. I can't tell you how much it means to me. Thank you, thank you, thank you. I'm feeling better now, both physically and emotionally. Thanks for letting me wallow in a bit of self-pity for a while.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,532
    • Most Online (within 30 mins)
      7,748

    jimploszay
    Newest Member
    jimploszay
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.