Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Downs Celiac Boy - Taste In Mouth

hubster2

Recommended Posts

hubster2 Newbie
hubster2
Posted

My 18 year old Downs Syndrome celiac son, diagnosed 1 month ago, complained then and complains now of a bad taste in his mouth. Ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cdfiance Explorer
cdfiance
Posted

Hi, my fiancee (who has Celiac) has been bothered with a bad taste in her mouth quite a bit since she first got sick with Celiac symptoms. It seems like it has been caused by different things at different times.

The things that we found to possibly causing the problem for her were:

  • when she was throwing up a lot (mostly pre-diagnosis) for obvious reasons
  • when she was on an antibiotic that gave her a really gross taste in her mouth
  • recently she had oral thrush (yeast infection in her mouth) that gave her a yucky taste in her mouth and also caused white patches in her mouth/tongue
  • I think when she gets dehydrated she also gets a bad taste in her mouth, maybe just from having a really dry mouth

I don't know if any of these apply to your son but I just wanted to let you know what we think the culprits were in our case so you could see if there was possibly a similar cause with your son. I hope you guys can figure out what is causing it.

Good luck,

Ryan

gdobson Explorer
gdobson
Posted

Maybe it's just from the diet change since it has only been a month? I know when you make a big alternation to your diet you frequently have issues like halitosis and dry mouth and of course, the nasty taste in your mouth.

ravenwoodglass Mentor
ravenwoodglass
Posted

After I went gluten-free I found that barley malt would give me a metalic taste that would last quite some time. This may not be what is causing this but thought I would mention just in case. In the early stages I was consuming Rice Crispies and also did not check 'natural flavors' as much as I needed to. Wheat will be listed as an allergen now but barley (this is often labeled malt), oats and although I haven't seen it, rye can be in the flavors and not be disclosed on the label.

Teacher1958 Apprentice
Teacher1958
Posted
My 18 year old Downs Syndrome celiac son, diagnosed 1 month ago, complained then and complains now of a bad taste in his mouth. Ideas?

I think I must have had a bad taste in my mouth for decades and didn't realize what it was. After going off of gluten, my mouth tastes totally different. I can only describe it as a "neutral" taste.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,827
    • Most Online (within 30 mins)
      7,748
    Rebecca Hurst
    Newest Member
    Rebecca Hurst
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.