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Incontinence Problems? Help


cs789

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cs789 Rookie

My 5 1/2 year old son was diagnosed with celiac in November with the blood test and biopsy. HE's been gluten free since then. Very postive change overall.

But for awhile he has been wetting his pants during the day. I don't know if he is lazy, too busy to think about or if this has anything to do with his celiac.

We try to take him at least 4 or 5 times a day and it still happens and he doesn't seem to care....

Has anyone else had this problem?

Any suggestions would be helpful.


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Guhlia Rising Star

My daughter (not dx'd) wets herself for approximately 3 days after going out to eat generally. I'm assuming it's a gluten issue. She's already strictly gluten free, but it's likely she's getting trace amounts of gluten when we go out. She's not very careful about where she shoves her fork or her fingers, she's only 3. Anyway, I would check into everything that he could be getting his little hands into. Better to assume it's Celiac and cover all bases than to just let it go and call it laziness. Perhaps he's getting glutened at school? Since it's the end of the school year the teachers are probably being more lax and there are probably school parties with gluten everywhere. If he's not in school yet, the same can be true of daycares. Incontinence can DEFINITELY be a gluten issue.

Esther Sparhawk Contributor

My daughter Annie has incontinence problems when she gets glutened. Usually, it's loose stool, but occassionally we see wetting problems. Like you, I've wondered if the wetting accidents weren't due to cross-contamination.

I found that she was being exposed to gluten in these areas:

soap at the daycare

touching dog food/cat food then sticking fingers in mouth

exposure to playdough on the tables at daycare

daycare provider was using gluten-contaminated sunscreen

I was giving her Flintstone vitamins without knowing they were not gluten-free -- just didn't think about it...

finger paints at daycare

We've been on a gluten-free diet for two years now, and I'm still learning the many ways a kid can get glutened. Best of luck to you!

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    • cristiana
      Hi Colin I share your frustration. My coeliac disease was diagnosed in 2013 and it took some years for my  TTG levels to settle to normal levels in  blood tests.  I had to make a few significant changes at home to make sure our house was as gluten free as possible (I share a house with gluten eaters) but time and time again I found I was glutened (or nearly glutened whilst eating out  - like regular bread being served with a gluten-free meal ).  Even eating in chains that Coeliac UK were recommending as safe for coeliacs.  So I gave up eating in restaurants for a while.  My blood tests normalised.  But here's the thing:  the lowest my TTG readings ever got to were 4.5 (10  and under being my local lab's normal levels) and now that I am eating out again more regularly, they've gone up to 10 again.  I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset.  My next coeliac blood review is in September and I mean to give up eating out a few months before to see if that helps my blood results get back on track. It seems to me that there are few restaurants which really 'get it' - and a lot of restaurants that don't 'get it' at all.  I've found one restaurant in Somerset and a hotel in East Sussex where they really know what they are doing.    The restaurant in Somerset hardly uses flour in any of their dishes; the hotel in East Sussex takes in trainees from the local college, so they are teaching best standards.   But it has taken a lot of searching and trial and effort on my part to find these two places.  There are certainly others in the UK, but it seems to me the only real way to find them is trial and error, or perhaps from the personal recommendation of other strict coeliacs (Incidentally, my coeliac hairdresser tells me that if a Michelin star restaurant has to have a separate food preparation so she has never been glutened in one - I can't say I've ever eaten in one!) For the rest, I think we just have to accept that gluten may be in the air in kitchens, if not on the surfaces, and there will always be some level of risk wherever one dines, unless the restaurant cooks exclusively gluten free dishes. Cristiana  
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