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Lisa

Arm Tremors And Balance Issues

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Hello all:

I have been gluten free and diary light for two years this August. So I have the diet fairly well managed.

My new development, currently is that my left arm tremors. I can hold a drink with ice in my left hand and I can hear the ice rattle in the glass. When I switch to my right hand, no movement and all it quiet.

I can stand on one leg on my left leg and cannot maintain my balance. I try the same on my right leg and no problem. I find it interesting that it is my left arm and left leg. My right side appear uninpared.

I eyesight has become increasingly blurry and uncomfortable, I have to remove my contacts by late afternoon and put on the glasses.

I have looked up somethings on the Internet as in Graves, Wilson's Disease and hyperthyroid and found a few similarities, but not the fit. It has been a year since I have had any blood work done, but it may be time for more.

Has anyone experiences these things and what direction do I need to go.

Thanks for you time.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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No, Carla. But, but yesterday early morning I did have some "intestinal distress". I made some gluten free crustless quiche a few days ago and I had some for dinner, lunch and breakfast.

It could be a dairy or casein overload.

The contacts being irritated and blurred vision and the shakes have been increasing a while before the quiche. I have been a little stress though, but not outwardly.

Don't know?


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Try to rest ... stress can aggravate health issues.

If you start searching for a problem, include an IGeneX Lyme test in your testing ... I'm not saying everyone has Lyme, but it can cause those neuro issues you described, and it is aggravated by stress. I carried it asymptomatically for years and it only reared its ugly head during stressful times.

Hopefully with some rest, less stress, and eating right, it will just go away on its own. :rolleyes:


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Ok, well I guess I'll go there....... ;)

Two or three summers ago we were looking at some land to build a house. I had on high-top work boots, socks and jeans and tromped through the property. I kept those clothes on all day and took a shower in the evening....

Two days later, I had 85, YES 85 redbug/or chigger bits in every place available. Misery for about a month until all those suckers died off. I killed those bad boys with nail polish remover.

This was about a year before I was diagnoes with Celiac via biopsy.

So, I know that the symptoms can be similar, but I am confirmed Celiac. Could Lyme be present as well. I know the answer, yes.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Yes, there are many celiacs over on Lymenet. If you're genetically susceptible to celiac, Lyme can even be it's trigger, not that the two are otherwise connected.

I KNOW you know how to be 100% gluten-free and have been ... so if these symptoms are getting worse, I wouldn't blame it on the gluten at this point.

I don't know what else causes those kind of neuro symptoms, but I'm sure there are other things ...

That many bites!!! :o


gluten-free 12/05

diagnosed with Lyme Disease 12/06

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Guest j_mommy

Mommagoose,

Don't want to jump the gun here....but considering your stress ect...are you sure you didn't have a minor stroke??? They can cause all the symptoms that you're having! People have them every day with out even knowing...and most people(unless it's a severe stroke) don't get the one sided droopieness ect!!!

Don't want to freek you out....just throwing it out there as an idea!

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Have you had B12 tested ? And do you have the paperwork? The symptoms you describe sound like mine when B12 was low. The neuro damage can start and Drs don't even detect it , as they don't understand. A great book to read is Sally Pacholok , "Could It Be B12? An Epidemic of Misdiangoses". She also has forum happening and if you want to PM me I can send you the link. Its amazing to know that neuro damage can start with a B12 still in the 'normal' range of 300 - 400. And Pernicious Anaemia is autoimmune and linked to Celiac.


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.

Diagnosed June 2006 with adrenal insufficiency.

Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.

Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.

Trialled Dairy Free Diet and reacted positively to that challenge in January 07.

News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !

Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

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Hey Miss Jessie,

Yup, it could be an issue. I had one doctor suggesting that. I have not gone there as of yet.

REALITY sucks, at least for the time being. Stress can do some mean things to youl

Thank you Carla and Jess and every one else.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Lisa --

My celiac neurological trouble started with my eyesight. Then I had the balance issues, then the tremors. I strongly recommend that you see a COMPETENT neurologist, and soon. I may even ask him/her if they have treated patients with neurological celiac. It's not an unreasonable question. Sounds like you're ingesting some type of gluten, and it may be targeting those little Perkinje cells in your cerebellum.

Take care of you ---- you'd BETTER be okay!

Love,

Lynne


Lynne

Courage does not always roar. Sometimes it is the quiet voice at the end of the day that says, "I'll try tomorrow".

"There's not a word yet, for old friends we've just met. Part Heaven, part space, or have I found my place? You can just visit, but I plan to stay, I'm going to go back there some day." Gonzo, in the Muppet Movie

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I hope this resolves soon for you, while you are at your doctor have him also test your blood sugar. I would also, if you are still eating mainstream foods, go to pure and unprocessed for a bit. You may be getting a bit of CC that is effecting the brain but not enough to cause severe GI problems. Even the smallest amount of CC will bring back my neuro issues temporarily. Unfortunately that includes things that most are safe with like grain derived alcohols and vinagers. IF you are consuming things like that you may want to drop them for a bit and see if it makes a difference. It may not, we are all different but the avoidance of them has made all the difference for me and my DS, my DH is okay with them but he does not have as much of a neuro presentation to begin with.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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An update to my B12 Story. I had gone too long between my B12 shots and all my pins and needles, wobbley legs ,blurred vision had returned. I have just had another B12 shot and they have disappeared almost immediately. Hope this is the answer for you Momma Goose cos B12 shots are an easy 'cure'.Last night I was on a walking stick - today I am almost brand new :) Sally - the author of that book has been in touch with me via her Forum, and says I have a potential malpractice suit I could file against the 10 - 20 Drs who never did a B12 test for me , despite all the neuro symptoms I had !!!

Lisa - its very important to have B12 tests, MMA tests BEFORE you start B12. So many Drs do a B12 shot at the appt and send the patient off to the blood test after :blink: Like ..HUH ???????? After a B12 shot my B12# can soar to 1600. But that doesn't mean I don't have low B12 anymore!!! :lol: Once you are dx as needing B12 - its usually for life. Your body needs it and can't absorb it from food ( either from Pernicious Anaemia or Celiac). Sally explains it all well in her Forum and book. People can die from a B12 deficiency. Or become paralysed. Its weird that its not recognised in the early stages and treated - that Drs wait until you are a hospital case....


Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.

Diagnosed June 2006 with adrenal insufficiency.

Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.

Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.

Trialled Dairy Free Diet and reacted positively to that challenge in January 07.

News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !

Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

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